Worst Side Effects Ever
Barbo602 days ago
Have been tapering off of 120 mg of Prednisone over the last 3 weeks for an asthma exacerbation. It's the highest dose I've ever taken. My...
Low platelet count & air travel
WaleedAl-Saadi3 days ago
Old man, 70 years, immunocompromised because of chemotherapy, can he travel via aeroplane for 1:20 hour only?
Or there is a risk of bleeding?...
rec1234567893 days ago
I'm new on here but just wondering if anyone can please help me out.
My doctor has just put me on a short course of Prednisone (taking 15mg a...
Itp and MGUS
Julie1156 days ago
I have suffered with itp for 7 years now I have had lots of tests done now I have MGUS with itp does anyone else suffer with itp and MGUS mu...
Considering splenectomy to treat ITP
U_ever8 days ago
Hi - I have ITP and have been treated with Prednisone, Dapsone and IVIG intermittently for the past 3 years with no real success at getting ...
1 month off steroid still facing insomia
Avantidave19889 days ago
I was diagnosed with it in august since then started from high dose of 50mg to 5mg alternate day..But it has already been month off steroid ...
ITP and insurance
Dan_dan10 days ago
Hi, just wondering if anyone on here has had any success getting critical illness or income protection insurance? If so you could you tell m...
Rituximab how long before it starts to work?
Thewakey3116 days agoPOPULAR
My husband had his last (4th) treatment on the 23rd December but still no change in his platelets. We've read it can take up to 12 weeks to ...
24 Replies2 Likes
Aloe Vera Juice
Sachmo1619 days ago
Hi - has anyone had any significant changes in their platelet count since taking aloe Vera juice. I am on the trial drug fostaminib and my l...
4 Replies2 Likes
21 months old baby having ITP need advise urgently
nabila_aman20 days ago
My 21 months old baby recently diagnosed with ITP . his platelet count gone down to 9000 and he started getting bruises and re...
Pollyangel24 days ago
Santa (with the help of his little elf Eltrombopag 😉)... has gifted me with 147 platelets... the highest I've been all year.
8 Replies5 Likes
Charlnichoa month ago
Hi all, my 5 year old daughter started with the purple red pin pricks bruises on her back after a bout of scarlet fever which I think was th...
Any medicine for Swollen Bruises?
ITPAffectya month ago
Does anyone has any home tried and worked home remedies for swollen & painful bruises? I was trying hot pack but I don't see much ben...
Eltrombopag (revolade) side effects
LisaWeb83a month ago
Hi, I was diagnosed in July with ITP and started steroids for 3 months, this raised my platelets slowly from 7 to 54. I was very glad to st...
8 Replies1 Like
Ups and downs
Bellazac1971a month ago
I posted 2 weeks ago about our 13 year old daughter, her successful bone marrow biopsy, her starting of steroids and her quite incredible ju...
Lin6a month ago
Hi just like to wish everyone a Merry Christmas and hope you all have a very happy New year. Thank you to all for sharing, giving advice an...
8 Replies6 Likes
New Purple Person
janebrandia month ago
newly diagnosed and learning so much! It is comforting to connect to other purples out there. I don't know anyone with ITP. My platelets ...
5 Replies4 Likes
can i take papaya leaves extract while taking steroids
azulhilmi3a month ago
I have ITP and currently low on platelet. Im thinking of taking papaya leaves to increase platelet so that i dnt have to take steroids. Just...
Need Remedies for harmonial disorder by using steriods
Faheemshaha month ago
my daughter was advised cortisone (steroids) in the age of 05 years for treatment of HSP. Now she reached to 16 years abd has polycystic pr...
Can a 14 years old take steroid 10 mg for a month due to ITP ?
Toughytoughya month ago
My daughter having low platelets since August thiz year. After IVIG she has been on varying steroid doses high -low -high and currently at 1...
lrivera1a month ago
hi my name is Lizette and I have a 4 year old daughter who was just diagnosed with itp her numbers have been going up and down fro 14- mid 2...
Low dose Rituximab ITP treatment - any experience ?
prudencepayesa month ago
Hi, I've just completed my 4 weeks of Rituximab infusions in response to Platelet counts that fell to single figures. I have been given the ...
Ana Report negative still is ITP autoimmune disorder
Avantidave1988a month ago
Did any one face more then one episode of ITP even with ANA report as negative . .
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Rokandtiaa month ago
I would b interested to hear any informed views / experiences on having a vasectomy when diagnosed with itp. Itp has know been managed succe...
DanielleR93a month ago
What is everyone's itp i would like to know the difference between mid and severe thanks
DanielleR93a month agoPOPULAR
Hey everyone could anyone tell me what their itp started out like please much appreciated 😊
AcuteITP 19 year old
Badami2 months ago
Any one has any success with homeopathy/ayurveda for ITP
I'm from Mumbai India
Steroids & IVig only works briefly, anybody experienced this?
Thewakey312 months ago
Hello, my husband recently was diagnosed with ITP & given Steriods which took his count from 6 to 60 within a week or two then dropped back ...
19 Replies1 Like
First results after steroids....
Bellazac19712 months ago
My 13 year old daughter had a platelet count of 19 and after a week of steroids we got her first results just 30 mins ago......208!!!!! Is t...
6 Replies1 Like
Deborah51672 months ago
Hello All, I was diagnosed with acute ITP in October . I was in alot of pain with my joints , but I was told it was from the bruising and ...
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