Starting Revolade in Mexico
LAROJA6 hours ago
Hi, so glad I found this group. I am in Mexico and starting Revolade tomorrow. I´m over 55 and worried what it will do to my liver. Any ex...
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Ito diagnosed the end of July 2016 with a count of 5!!
Lou19676 hours ago
I went on 65mg of steroids and my count went up to 30 after a month the steroids were dropped to 40mg and the platelets dropped to 18 so the...
Yet another question for the inexperienced like me.
Jordan19912 days ago
Just wondering guys if there were any benefits that can be claimed for having ITP? Currently off work and will be for at least another month...
Jordan19914 days ago
So basically I've started my rutoximab treatment which is gonna last for 4 weeks! As the steroids aren't working! My bone marrow examination...
Just found this site and have already read so many posts that give me hope
Rfisher30134 days ago
Hi my name is Rickey and am 34 and i have itp, was diagnosed a little over a year ago, my levels have varied dramatically lowest being 12. ...
Has anyone got ITP from Antibitics
Magic19606 days ago
As a 56 year old women I was in the hospital last week, I was in for a week.
My lowest platelets 18 and hemoglobin 6.4.
I was tested yesterd...
Wendybrookes10 days ago
I'm a 41 year old who has had chronic ITP for 23 years, with periods of remission, mainly when I was pregnant.
Initially treated wi...
Jordan199111 days ago
I'm a 24 year old male who has been diagnosed with ITP about 2\3 weeks ago. My platelets were 2 when I was taken to hospital but have since ...
So tired all the time always in pain
fccoate14 days ago
I was trying to figure out if anyone else felt the same fatigue I do with itp. I've had it my whole life. I'm always extremely tired....my a...
Diet and excercise
Ironspur1414 days ago
Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by ...
Hidden16 days ago
I haven't posted in some time... Two years ago, I tried my 3rd round of Nplate without much fanfare or atlas I thought. My counts had been i...
The condition that just keeps giving...
Pollyangel21 days ago
I have been having migraines since ITP was diagnosed... however, Saturday and especially Sunday had such an intense pressure headache (star...
Hidden21 days ago
My sister have itp, her count 15. She is heavy period & pain. Pl help
Grandson and Dog both have ITP
lilredphoeniciana month ago
My grandson was diagnosed with ITP in Dec of 2015 he was 2 months shy of his 3rd birthday. He is an identical twin. My grandson woke up in ...
Extremely Low Platelets
Judionnaa month ago
Hi, my sister in law is in the hospital in Florida and her platelet number is 4-8 and they can not get it up and even after a bone marrow bi...
ITP_September_2014a month ago
Below is the information I received regarding a spleen scan.
The typical platelet study entails the following:
1. We take a small volume (app...
Friday, August 26th my count was 29. I didn't receive my Nplate shot for two weeks which caused my count to drop significantly.
Cigarettes and ITP
Pollyangela month ago
I was a smoker... stopped on 6 July this year... just wondering if this could be causing my platelet count to drop?
Where did they go???
So much for my count of 109...
Count today 58... wiped the smug smile of my wee face...
Ho hum... 😕
Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate shot in two weeks. I'm starting to feel sluggish, developing ...
Vacation / Sick Days
All my vacation and sick days go to Dr visits, colds and naps. I hate feeling like i'll never get my life back if I don't find a cure. How d...
ITP – Need more options
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Np...
Does mmf always improve count slowly?
crazydogladya month ago
Hi, have been on mmf (myfenax) for just over 3 weeks, on a dose of 500mg twice a day. Went to haematology clinic on Monday and my platelet c...
Hiddena month ago
Hi .. I'm on 60mg prezolone and I've got an acne burst on shoulders and chest . Should I take oral antibiotics cause body wash and lotions d...
Low platelet count of 5
jovibluesa month ago
I have been doing so much reading online about my mums case of low platelet count but because her situation is unique I dont really have any...
5mg maintennance dose Prednisolone
holcottsa month ago
I would be interested to hear from anyone who has found that taking a low dose steroid daily keeps their platelets up. I have fou...
I've got how many?
Had a blood count on Wednesday... I have 109 platelets... the most I've had since January this year.
Happy bunny 🐇
Trying out different vitamins
Lynwoodleya month ago
My original count was 33 when o found out I had ITP about 9 weeks ago I looked up many items on ITP and some said diet and vitamins helped....
kaya122 months ago
Hi I have a platelet count of 66 but am on no treatment just wanted some advice as to whether I should be concerned or on any treatment ?
Evak572 months ago
Hi,my daughter was diagnosed at age 17 (she is 24 now) with ITP. She was admitted to hospital with platelets counts 6 . The doctor tried dif...
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