lrivera15 hours ago
hi my name is Lizette and I have a 4 year old daughter who was just diagnosed with itp her numbers have been going up and down fro 14- mid 2...
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Low dose Rituximab ITP treatment - any experience ?
prudencepayesa day ago
Hi, I've just completed my 4 weeks of Rituximab infusions in response to Platelet counts that fell to single figures. I have been given the ...
Ana Report negative still is ITP autoimmune disorder
Avantidave19882 days ago
Did any one face more then one episode of ITP even with ANA report as negative . .
Rokandtia3 days ago
I would b interested to hear any informed views / experiences on having a vasectomy when diagnosed with itp. Itp has know been managed succe...
DanielleR934 days ago
What is everyone's itp i would like to know the difference between mid and severe thanks
DanielleR935 days ago
Hey everyone could anyone tell me what their itp started out like please much appreciated 😊
AcuteITP 19 year old
Badami6 days ago
Any one has any success with homeopathy/ayurveda for ITP
I'm from Mumbai India
Steroids & IVig only works briefly, anybody experienced this?
Thewakey317 days ago
Hello, my husband recently was diagnosed with ITP & given Steriods which took his count from 6 to 60 within a week or two then dropped back ...
11 Replies1 Like
First results after steroids....
Bellazac19718 days ago
My 13 year old daughter had a platelet count of 19 and after a week of steroids we got her first results just 30 mins ago......208!!!!! Is t...
6 Replies1 Like
Deborah51679 days ago
Hello All, I was diagnosed with acute ITP in October . I was in alot of pain with my joints , but I was told it was from the bruising and ...
Joint pain while on predisolone
Avantidave198810 days ago
I am experiencing terrible join pain though now dose is reduced to 5mg alternate days still..along with bad insomia..don't know if this is h...
how Platelet count get normal
SARazak10 days ago
Hi,My sister having ITP Her platelet count an an averagete 30k Every 15 days it 20k and in other days 15 its 50k up and down please suggest...
Davy11 days ago
We have a boy in the Danish group. I do not know his age, but I would think he is about eight years old. He has ITP with a low platelet coun...
Is it normal to have decrease platelet count with steroid tapering
Avantidave198812 days ago
Mine was 90 then 1 lakh then 150 then 136 and now with alternate days 5mg does its 107..
Does the count fall then maintains stable count in f...
SHOULD FLU SHOTS BE GIVEN TO ITP PATIENTS
jose194613 days ago
i received a flu shot and within a week my platllets went from 39,soon 4 then 46. now im on 125 daily on prednizone(ugg). i was hospitalized...
Pain in muscles and joints
Davy13 days ago
From time to time I hear about people with ITP, having pain in muscles and joints. I have also experienced it myself.
Do any of you know if t...
Chelley07516 days ago
Good news for me atm..
My count came back at 205.. Pretty good from my initial diagnosis of 6..
Expecting to be reduced to 5mg Prednesone fo...
Bellazac197119 days ago
Our 13 year old daughter is having a bone marrow biopsy on Tuesday following 4 months of "watch and wait". Count has hovered between 3...
edim19 days ago
I found a post from 4 years ago that somebody (eagle2) asked if there is a database of ITP patients and the treatments they underwent. Can ...
Eliminating other diseases
jwk419 days ago
I am very new to all this😞 at what point where you guys confident it was itp and not cancer or something? I'm scared to death.
Can pregnancy cause ITP
Avantidave198821 days ago
At present I am responding well to steroid but my doctors are saying pregnancy can trigger ITP..very scared with this thought
Itp treatment with steroid causing cronic insomnia
Avantidave198823 days ago
Does itp treatment with steroid causes insomnia . .Currently after 3 and half month now tapered to 5mg still able to sleep for less than 4 h...
No symptoms! frustrating!!
Ironspur1424 days ago
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed...
7 Replies1 Like
mcewan1234524 days ago
I suffer from fatigue do any other itp sufferers have this symptom and if so any advice on how to combat, some days at work are very hard to...
Any ITP patient , living without medication?
AWSARa month agoPOPULAR
Hello every one.
Is there any body who has been diagonse with ITP and not taking any medication? and also having no symptoms of ACTIVE BLEEDI...
42 Replies1 Like
STEROID TREATMENT RESPONSIVE BUT WITH SERIOUS INSOMNIA SIDE EFFECT
Avantidave1988a month ago
I have been under going treatment for itp.So far have responded well to steroid count have reached normal with tapering of 7.5 mg as of now ...
Platelet count of 4
jwk4a month ago
I am sooooo scared of this being leukemia.all my other blood counts are normal. I see a hemotologist in 2 days. I'm so worried. Any insight?
Worried and confused
tompa month ago
Went to ER. Blood poison, low platelet. Now it's 4th day in hospital for IV antibiotics. I was diagnosed last July with enlarged spleen. N...
dede7a month ago
Has anyone encountered more eye redness or in general more susceptible to viruses ? Been to the eye doctor three times now on my eye redness...
10 Replies1 Like
fatigue most of the time, trying some alternatives like more paleo foods and vitamins, mostly though I feel like people don't relate and thi...
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