Vacation / Sick Days
ITP_September_20144 hours ago
All my vacation and sick days go to Dr visits, colds and naps. I hate feeling like i'll never get my life back if I don't find a cure. How d...
ITP – Need more options
ITP_September_20145 hours ago
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Np...
Be the first to reply
Does mmf always improve count slowly?
crazydoglady7 hours ago
Hi, have been on mmf (myfenax) for just over 3 weeks, on a dose of 500mg twice a day. Went to haematology clinic on Monday and my platelet c...
Hidden2 days ago
Hi .. I'm on 60mg prezolone and I've got an acne burst on shoulders and chest . Should I take oral antibiotics cause body wash and lotions d...
Low platelet count of 5
joviblues3 days ago
I have been doing so much reading online about my mums case of low platelet count but because her situation is unique I dont really have any...
5mg maintennance dose Prednisolone
holcotts6 days ago
I would be interested to hear from anyone who has found that taking a low dose steroid daily keeps their platelets up. I have fou...
I've got how many?
Pollyangel12 days ago
Had a blood count on Wednesday... I have 109 platelets... the most I've had since January this year.
Happy bunny 🐇
Trying out different vitamins
Lynwoodley12 days ago
My original count was 33 when o found out I had ITP about 9 weeks ago I looked up many items on ITP and some said diet and vitamins helped....
kaya1214 days ago
Hi I have a platelet count of 66 but am on no treatment just wanted some advice as to whether I should be concerned or on any treatment ?
Evak5720 days ago
Hi,my daughter was diagnosed at age 17 (she is 24 now) with ITP. She was admitted to hospital with platelets counts 6 . The doctor tried dif...
3 year old diagnosed with ITP
lynsey163020 days ago
Hi, this is all so new to me. I suppose I am joining this group to hopefully get a further understanding of this blood disorder.
My husband a...
Hidden20 days ago
After a year of testing, I finally got the diagnosis cmml-1, a type of chronic leukemia which is very difficult to diagnose. Hence the long ...
ITP Symptoms after 30 years
30yrremission21 days ago
When I was 22 years in 1986 I had ITP and had a spleenactamy. Now 30 years later I'm worried my ITP may be coming back. My symptoms before w...
Herkules5621 days ago
Since it is so rare to being diagnosed with this desiese I wonder it it's what I really got. Last Friday I noticed little small red dots on ...
My Purple Patch - ITP Blog
AnthonyHeard21 days ago
Please do check out my weekly ITP blog entitled My Purple Patch . I hope that recording my ITP story will help other ITP sufferers and their...
ITP HELP PLEASE
Bearcandy62a month ago
Husband has itp. 2 months , 3 different treatments, 4 day super dose of steroids, failed. Globulin treatment one week , got up to 60000 pla...
If there is a positive resonse after 4 days of corticosteroids
Hiddena month ago
Hi... I had positive response (from 15 to 80 count number in platelets ) after having corticosteroids (80 mg) for 4 days . What then? Is it ...
Bellazac1971a month ago
Advice would be really appreciated as we feel we have very little guidance and few people to turn to for answers at present. Our very tall, ...
Mums luck going from bad to worse.....
Laurag78a month ago
Has anyone who has been on the drug revolade been taken off it and suffered debilitating leg and arm pain.....my mum was taken off it as it ...
Give me options please..
prisha month ago
My girl aged 10is an persistant itl patient..
She gets tired and more petichia on her legs if she goes to school daily...and making...
Trying to contact Dr Provan
Hello again ! I'm trying to urgently contact private office of Dr Provan but it's very difficult . The cause of urgency is that I'm going aw...
Just diagnosed with ITP
I was diagnosed with ITP 2 days ago . Random blood test showed platelet count 15. I had noticed petechia on both lower legs . Now I am on pr...
Struggling with the meds.
8616927a month ago
I was diagnosed when my platelets were down to 3 - into the hospital. I now take Prednisone which is helping. However, there are many days w...
Unable to find way with ITP
aravindgirijaa month ago
This is aravind from hyderabad. My wife is suffering seriously with low platelets which caused due to ITP 5 years back .The last count ...
Headache and ITP
I recently had a really bad headache my last blood count was 63 not long after the headaches started l started to feel really sick after I ...
Does lacking of sleep cause the platelet count dropping?
Im_Worried_Guya month ago
Hi, I'm currently having dengue fever. But still got a few assignments to rush, so maybe need to do until overnight. In this case, I want to...
Having iTP Since 6 months i want to get rid steriod
akhurrama month ago
Hi, I diagnose ITP 6 months ago when i go for blood test and all this released
i am on steriod DELTACORTAL 15mg/day with immuran bla bla my ...
dollydana month ago
my daughter ruby is 11 was diagnosed with itp in February this year...went in to hospital with a 0 platelet count and hasn't risen since...w...
Any suggestions for treating Bruises?
ITPAffectya month ago
My count is mostly between 10k-15k so i likely to develop big bruises and as you all know it takes 20 to 25 days to go off. Revolade ...
Newly Diagnosed and Scared
Three weeks ago I was diagnosed with ITP. My platelets plummeted to zero but with immunoglobulin and prednisone (70mg now dow...
Start a Community