Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for April 2013

Son 5yrs with fluctuating Platelet count over 2 yrsGo very low every other week. Now having problems with tonsils when platelet count low..

Hi our son now 5 yrs has had fluctuating platelet count for over two years now. Platelets go as low as 1. Also having problems now with tonsils, become really...

Hi our son now 5 yrs has had fluctuating platelet count for over two years now. ...

Fifof

•12 years ago

3 Replies

Rituximab

Hi I am going into hospital for my first dose on monday - can anyone let me know about their experiences and any side effects they have had or successes....

Hi I am going into hospital for my first dose on monday - can anyone let me know...

Morgan

•12 years ago

13 Replies

Is Indium screen test the same as Indium scan test? I see sites in US that does the scan but not the screen?

lifespan

•12 years ago

6 Replies

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ITP/autoimmune disease

I am 53 now, so you can imagine not much was known when I was 6! I bruised easily and was always tired. The doctors tested my bone marrow Thinking I had...

I am 53 now, so you can imagine not much was known when I was 6! I bruised easi...

klc517

•12 years ago

8 Replies

12 yr old with itp

My daughter was dx with itp about a yr ago she has never really shown any signs such as brushing. Her platelet count had never dropped lower than 90 until last...

My daughter was dx with itp about a yr ago she has never really shown any signs ...

Roni09

•12 years ago

7 Replies

Any structured database with ITP patients and treatments?

With all this individually responsive / non responsive treatments a searchable structured database would be immensely important, of course anonymous.

With all this individually responsive / non responsive treatments a searchable s...

eagle2

•12 years ago

6 Replies

Diet for ITP Patients and is this a curable disease?

I am 39 and was just diagnosed with ITP 3 days ago. It is something very new to me. I had blood transfusion and am now on prednisolone for a week.. is there...

I am 39 and was just diagnosed with ITP 3 days ago. It is something very new to ...

sonia1973

•12 years ago

48 Replies

NEW with ITP

HI Im male 50. In general healthy and in good condition but was feeling weak after a bad respiratory infection earlier in February. After spontaneously...

HI Im male 50. In general healthy and in good condition but was feeling weak aft...

eagle2

•12 years ago

25 Replies

1 year old with itp

my son was diagnosed 4 weeks ago with itp when i noticed he had bruises and rashes i was scared to take him to be seen but i am proud i did and got a diagnosed...

my son was diagnosed 4 weeks ago with itp when i noticed he had bruises and rash...

Sophie2013

•12 years ago

3 Replies

convention

just wondering are many people going to the itp convention tomorrow

healthissue

•12 years ago

2 Replies

romoplostim balance

Hi been taking romoplostim since August 2012 still responding to it but cant seem to get a stable balance im now running to hospital twice weekly once to have...

Hi been taking romoplostim since August 2012 still responding to it but cant see...

salmagal

•12 years ago

30 Replies

Is eleven weeks too early to diagnose chronic ITP?

Hello I first went to my doctor with a rash in January and found myself in a hospital oncology unit the next day for an appointment with a consultant. My...

Hello I first went to my doctor with a rash in January and found myself in a ho...

Nickypg

•12 years ago

9 Replies

New Maybe ITP, or something else?

3/28/13 I went alone to a restaurant and became so weak and ill I couldn't drive home. Had to sit on the floor in the bathroom and wait for someone to come get...

3/28/13 I went alone to a restaurant and became so weak and ill I couldn't drive...

tropical1

•12 years ago

9 Replies

painful fingers in morning

iam on n plate at mo was diagnosed in august with itp. everymorning.when i wake.all my fingers are.so painful i also get pain.in same position in back of head...

iam on n plate at mo was diagnosed in august with itp. everymorning.when i wake....

healthissue

•12 years ago

1 Reply

Does anyone know if a child has Itp, is it ok to go on to school when some of the class has chickenpox, playlets sittin at 9, r they at ris

iccle

•12 years ago

2 Replies

Lyndsay lohan

I noticed a picture of lyndsay lohan on my girl friends magasine and it was slagging her bruises off,i have since looked at loads of others and they realy look...

I noticed a picture of lyndsay lohan on my girl friends magasine and it was slag...

toolski

•12 years ago

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MMF

Hi my daughter has been on a combination of Eltrombopag and MMF since December, her count has been nearly back to normal (hightest count being 112) since...

Hi my daughter has been on a combination of Eltrombopag and MMF since December, ...

lindylou45

•12 years ago

4 Replies

Had Rituximab in january; platelets steady but develop itchiness around upper limbs. Anyone with similar experience or reason why?

Rafiq

•12 years ago

2 Replies

Does anyone know of anywhere in the U.S. that performs the indium screening test? My hemo says it's officially "not recommended here.

I had a splenctomy 8 months ago, with no positive results, and now they've discovered an accessory spleen, and want to yank that out too. I've been on various...

I had a splenctomy 8 months ago, with no positive results, and now they've disco...

Catlee

•12 years ago

8 Replies

Circulation problems and I T P?

Has anyone suffered circulation problems ie hands turning purple colour

Wolverhampton

•12 years ago

2 Replies

ITP Support in Sydney

A bit of a long shot but I just moved to Sydney and wasn't able to get referred before I came here. I am going to go to a normal dr for advise on treatment...

A bit of a long shot but I just moved to Sydney and wasn't able to get referred ...

squeaks

•12 years ago

6 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for April 2013

Son 5yrs with fluctuating Platelet count over 2 yrsGo very low every other week. Now having problems with tonsils when platelet count low..

Rituximab

Is Indium screen test the same as Indium scan test? I see sites in US that does the scan but not the screen?

ITP/autoimmune disease

12 yr old with itp

Any structured database with ITP patients and treatments?

Diet for ITP Patients and is this a curable disease?

NEW with ITP

1 year old with itp

convention

romoplostim balance

Is eleven weeks too early to diagnose chronic ITP?

New Maybe ITP, or something else?

painful fingers in morning

Does anyone know if a child has Itp, is it ok to go on to school when some of the class has chickenpox, playlets sittin at 9, r they at ris

Lyndsay lohan

MMF

Had Rituximab in january; platelets steady but develop itchiness around upper limbs. Anyone with similar experience or reason why?

Does anyone know of anywhere in the U.S. that performs the indium screening test? My hemo says it's officially "not recommended here.

Circulation problems and I T P?

ITP Support in Sydney

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive