Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,087 members • 2,077 posts

All posts for April 2017

Is cranberry juice safe to drink with ITP?

Hi I think I may have cystitis (and of course it's the bank holiday weekend!). Cranberry juice is recommended but I read on the American PDSA website that it...

Hi I think I may have cystitis (and of course it's the bank holiday weekend!). ...

•7 years ago

THIS IS YOUR CHANCE TO HAVE YOUR SAY FOR RESEARCH - The Survey is Now LIVE

On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group of health professionals, we are launching a...

On the 24th April, in conjunction with The Haemophilia Society, the James ...

Administrator•7 years ago

what's next

What is the next treatment if ratuxin doesn't work?

What is the next treatment if ratuxin doesn't work?

•7 years ago

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Whats the longest gap before it returned

I had ITP in 2012 i had it for 9 months and haven't had it since has anyone else had a huge gap where they were ok, and did it come back after many years?

I had ITP in 2012 i had it for 9 months and haven't had it since has anyone else...

•7 years ago

Itp

I was diagnosed at 23 after having some lumps that turned to bruises was told it was rare for my age to have it was told that the only time my platelets were...

I was diagnosed at 23 after having some lumps that turned to bruises was told it...

•7 years ago

“You don’t look sick?”

Over the years, I have developed a very sarcastic shell that I use to for protection. Most of the time,I like to believe that kindness is my superpower, not my...

Over the years, I have developed a very sarcastic shell that I use to for protec...

•7 years ago

effects of rituxan

Hi, I had 4 rituxan infusions last June, and my counts have been great. But, I have now had two episodes were I black out. I am 72 yrs old and have never...

Hi, I had 4 rituxan infusions last June, and my counts have been great. But, I ...

•7 years ago

31 years with ITP - new here

Hi, I was diagnosed with ITP in November 1986 after a bout of glandular fever, admitted to hospital with a platelet count of 3. I was aged 19. I had a...

Hi, I was diagnosed with ITP in November 1986 after a bout of glandular fever, a...

•7 years ago

A not so subtle reminder...

I plod along nicely... taking medication to keep my platelets in healthy numbers... looking for a job to return to the workplace... telling everyone I'm fine...

I plod along nicely... taking medication to keep my platelets in healthy numbers...

•7 years ago

24 years in remission

I had my spleen out 24 years ago due to ITP. I went into remission and have had no problems until this year. My plattlets have dropped, I did 4 weeks of...

I had my spleen out 24 years ago due to ITP. I went into remission and have had...

•7 years ago

Revolade for Children- Side effects?

Hi All. My son who is 5 years old has had ITP for over a year and half now and the doctor keeps pushing us on why we are not signing up for Revolade. He says...

Hi All. My son who is 5 years old has had ITP for over a year and half now and t...

•7 years ago

Bone Marrow Biopsy

Had a bone marrow biopsy yesterday. Took 15-20 minutes. No pain involved. Nurse in the room said she has had six done for medical research - now that's...

Had a bone marrow biopsy yesterday. Took 15-20 minutes. No pain involved. Nur...

•7 years ago

Platelets decided to go down again.

Well got more results this morning platelet count went back down to 39000 and now my RBC is a bit high not much, and my hematocrit went a bit high as well so...

Well got more results this morning platelet count went back down to 39000 and no...

grannygoodwitch

•7 years ago

Active child and ITP

Hello. I am new on here. It is great to find a place where we can learn from other peoples experiences/stories. My 3 year old son was diagnosed with ITP a...

Hello. I am new on here. It is great to find a place where we can learn from ot...

•7 years ago

Job Loss Teaches Me to be Kinder to Myself -PK Scott

I was 29 when I was Diagnosised with ITP and I struggled to keep my job. I was in and out of the hosipital and finally I had no more sick days. I would just...

I was 29 when I was Diagnosised with ITP and I struggled to keep my job. I was i...

•7 years ago

Can the platelets count still increase or there is no chance?

Hi,my father had platelets count disorder since almost 6 months and few times it dropped down to less than 10,000.My father had been eating Revolade tablets...

Hi,my father had platelets count disorder since almost 6 months and few times it...

•7 years ago

Symptomatic, Undiagnosed, Waiting

I'm new here.... My mother was diagnosed with ITP years ago and since I turned about seventeen I began surfacing symptoms my mom experienced when beginning her...

I'm new here.... My mother was diagnosed with ITP years ago and since I turned a...

•7 years ago

Almost Last Orders....ITP Support Association Annual Convention nearly Sold Out !

We have very few tickets left for the ITP Support Association Annual Convention being held on May 13th. If you have not reserved your place yet & want to come...

We have very few tickets left for the ITP Support Association Annual Convention ...

Administrator•7 years ago

Be the first to reply

ITP & depression

Hiya everyone, just wondering how you all cope with the anxiety & depression. As for me I'm sitting at 42 lowest ever has been 34. Covered in bruises at the...

Hiya everyone, just wondering how you all cope with the anxiety & depression. As...

•7 years ago

Advice please - operation pending

Advice please lovely people. I have a buried wisdom tooth, and need an operation to remove it, but my recent blood test showed a count of 58. This is a...

Advice please lovely people. I have a buried wisdom tooth, and need an operati...

•7 years ago

Little Update

Platelets dropped to 30 on my weekly bloods consultant told me I need a ivg drip getting this next Thursday I am also having a bone marrow biopsy the...

Platelets dropped to 30 on my weekly bloods consultant told me I need a ivg dri...

•7 years ago

suggest the ways to avoid the side effects of dexomethosane

hi friends,my doctor prescribed me dexomethasone 40 mg once in every 15 days and my platelet count is 70000. And i am a patient of itp since feb 2008. from...

hi friends,my doctor prescribed me dexomethasone 40 mg once in every 15 days and...

•7 years ago

Too High Platelet count following Rituximab and Romiplostim

My wife has had a very low platelet count (between 0-5) for a few months. She was put on Romiplostim injections but they did not have any effect. She was then...

My wife has had a very low platelet count (between 0-5) for a few months. She wa...

sandyhutchison77

•7 years ago

dealing with ITP

Hi All I'm new here and just wish to learn about my ITP had an episode last July and still coming to terms with all that goes with it. Finding a little...

Hi All I'm new here and just wish to learn about my ITP had an episode last July...

•7 years ago

ITP and joint pain

Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay...

Ive had ITP since 2004, initially treated with steroids which has left me with i...

•7 years ago

ITP SUPPORT ASSOCIATION new WEBSITE

SPONSORSHIP OPPORTUNITY Many of you have been using our new website, if you have yet to visit then go to https://itpsupport.org.uk/index.php/en/ The launch of...

SPONSORSHIP OPPORTUNITY Many of you have been using our new website, if you have...

Administrator•7 years ago

Have you ever heard about....

Hi! My doctor told me that pacients with ITP have a expectancy life with 30% lower than the healty people! She also heard at the last congress where she was!...

Hi! My doctor told me that pacients with ITP have a expectancy life with 30% low...

•7 years ago

Nose Bleed

Today I have had a nose bleed not had one for couple of weeks my nose bled for about ten minutes or so what I want to ask have my platelets dropped ????...

Today I have had a nose bleed not had one for couple of weeks my nose bled for...

•7 years ago

We Need Your Help

THIS IS YOUR CHANCE TO HAVE YOUR SAY FOR RESEARCH On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group...

THIS IS YOUR CHANCE TO HAVE YOUR SAY FOR RESEARCH On the 24th April, in conjun...

Administrator•7 years ago

Fatigue and Light Headed

If your Red Blood Cell count is low which mine is fatigue and feeling light headed are common.

If your Red Blood Cell count is low which mine is fatigue and feeling light head...

•7 years ago

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