Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for July 2017

Any other symptoms?

Hello, I was diagnosed with ITP at 11 years old. Long story short it practically went away I just check my platlet count regularly to be sure. Since then I've...

Hello, I was diagnosed with ITP at 11 years old. Long story short it practically...

AshleyC53

•7 years ago

4 Replies

Splenectomy

Please can anyone who has had the splenectomy done or having it done message me, thank you.

Please can anyone who has had the splenectomy done or having it done message me,...

Nidazainab

•7 years ago

35 Replies

ITP SEPTEMBER AWARENESS MONTH

September is ITP Awareness month and you can find out how to help spread the word about ITP by checking out the following link....http://globalitp.org

September is ITP Awareness month and you can find out how to help spread the wor...

AnthonyHeard

Administrator•7 years ago

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My mom and son both have ITP. Anyone else?

My 11 month old son was diagnosed with ITP almost 2 months ago. He was admitted to the hospital with platelets of 5000, given 3 courses of IVIG and started on...

My 11 month old son was diagnosed with ITP almost 2 months ago. He was admitted...

Kelly109

•7 years ago

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UPDATE-Just finished a 5 week round of Chemo

I wrote on here 2 months ago to get an uplift..well things changes for the worst since then. I have had to be on multiple rounds of antibiotics for UTI and...

I wrote on here 2 months ago to get an uplift..well things changes for the worst...

JBUGGIE210

•7 years ago

1 Reply

Ivig

I read all the time of peoples counts going up by the hundreds after ivig drip mine only went to 210 any thoughts please obviously mine have now dropped I am...

I read all the time of peoples counts going up by the hundreds after ivig drip m...

Topography52_-

•7 years ago

23 Replies

Promacta anyone?

has anyone been on Promacta pills for ITP? Ratuxan didn't work, so next we try this. Would like to get an idea of what i'm getting into with these pills, as...

has anyone been on Promacta pills for ITP? Ratuxan didn't work, so next we try...

nancy504

•7 years ago

12 Replies

REMINDER on RESEARCH - If you haven't had your say yet, please do so now !

On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group of health professionals, we launched a national...

On the 24th April, in conjunction with The Haemophilia Society, the James Lind A...

AnthonyHeard

Administrator•7 years ago

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Taking Duromine while on Prednisone

Hi,has anyone taken Duromine while on Prednisone?If yes what are the side effects?

Hi,has anyone taken Duromine while on Prednisone?If yes what are the side effect...

Neolicius

•7 years ago

1 Reply

13 year old daughter with ITP. Trying to treat her ITP with diet. Any others finding luck getting platelets up with diet?

My daughter has Celiac Disease and then we found out at age 10/11 she has ITP. I may have gotten her platelets up one time from 80,000 to 123,000 with diet......

My daughter has Celiac Disease and then we found out at age 10/11 she has ITP. ...

Roxanned

•7 years ago

18 Replies

Itp diagnosed 1 year ago

I was diagnosed exactly 1 year ago with a count of 5! I went on steroids then a chemo drug to which nothing helped - I had 3 ivig's which lasted for around...

I was diagnosed exactly 1 year ago with a count of 5! I went on steroids then a ...

Lou1967

•7 years ago

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Platelets at 73,000

I have had low platelets for a few years I believe but only really aware of it in the past year (ranging from 106,000 - 73,000 today). I'm a bit of a worrier...

I have had low platelets for a few years I believe but only really aware of it i...

ConnieEd

•7 years ago

23 Replies

Grateful but frustrated

I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the...

I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was...

Betty1950

•7 years ago

2 Replies

ITP Ups and Downs

I was diagnosed with ITP when I was 3, I have had since then a platelet count between 2-50 (never been tested above 50) typically and tend to sit around 20....

I was diagnosed with ITP when I was 3, I have had since then a platelet count be...

ChrisCal

•7 years ago

16 Replies

Anyone have MDS too?

Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effect of MDS is chrinically extremely low platelets. My dad was diagnosed with MDS...

Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effec...

HappyHopeful

•7 years ago

3 Replies

Fall i platelets count after ivig treatment

My platelates fall upto 2000 then after transfusion treated with ivig treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls...

My platelates fall upto 2000 then after transfusion treated with ivig treatment....

Vika0001

•7 years ago

14 Replies

Remission;-)

Me4 hours ago I actually rituxin done 15 months ago and have been in remission for 13 months. I am stable at 40-60,000 and feeling good. I am still very tired...

Me4 hours ago I actually rituxin done 15 months ago and have been in remission f...

Justicekelly

•7 years ago

4 Replies

Results Bone Marrow .

Had my results from my bone marrow and yes it is ITP on a plus I now have a proper diagnosis .

Had my results from my bone marrow and yes it is ITP on a plus I now have a prop...

Topography52_-

•7 years ago

15 Replies

My daughter is doing well. Thanks for your blessings

Dear all ... Here is update regarding my daughter . As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering...

Dear all ... Here is update regarding my daughter . As you all know , in Nov,16...

Toughytoughy

•7 years ago

5 Replies

ITP DISORDER OF MY SON

Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 years. Recently on 13th June I observed redish and blackish spots over his...

Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 ...

Shilpid

•7 years ago

9 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for July 2017

Any other symptoms?

Splenectomy

ITP SEPTEMBER AWARENESS MONTH

My mom and son both have ITP. Anyone else?

UPDATE-Just finished a 5 week round of Chemo

Ivig

Promacta anyone?

REMINDER on RESEARCH - If you haven't had your say yet, please do so now !

Taking Duromine while on Prednisone

13 year old daughter with ITP. Trying to treat her ITP with diet. Any others finding luck getting platelets up with diet?

Itp diagnosed 1 year ago

Platelets at 73,000

Grateful but frustrated

ITP Ups and Downs

Anyone have MDS too?

Fall i platelets count after ivig treatment

Remission;-)

Results Bone Marrow .

My daughter is doing well. Thanks for your blessings

ITP DISORDER OF MY SON

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive