Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for March 2017

Bruises

Can I ask a silly question why is bruising bad in itp I am bruising very easily at the moment mainly yellow colour and some deep purple not with banging myself...

Can I ask a silly question why is bruising bad in itp I am bruising very easily ...

•8 years ago

prednisone

My Dr. called and told me I had 34000 now instead of 41000 I told her I already new since I get my results on line. She wants me to have another blood test...

My Dr. called and told me I had 34000 now instead of 41000 I told her I already ...

grannygoodwitch

•8 years ago

Weekly Bloods

Hi all, just had my weekly bloods done down to 34 not a concern my hematologist said she may look at treatment I do not want steroids due to effect I had when...

Hi all, just had my weekly bloods done down to 34 not a concern my hematologist ...

•8 years ago

Want to take advantage of all our features? Just log in!

or

ITP parent with ITP child

Hi, any one out there with ITP, whether active or dormant, who also has a child with ITP? I was diagnosed 26 years ago, tho following splenectomy, have...

Hi, any one out there with ITP, whether active or dormant, who also has a child ...

•8 years ago

Chronic ITP

Hello I have a 5 years old daughter who was diagnosed with ITP at 3 after coming back from a horrible experience at Olympus indoor water park. She came home...

Hello I have a 5 years old daughter who was diagnosed with ITP at 3 after coming...

•8 years ago

Is there a connection?

Is there a connection between itp and haemophilia? My sister and both her sons have haemophilia, my daughter has itp, is there a link or is this just an...

Is there a connection between itp and haemophilia? My sister and both her sons h...

•8 years ago

Life goes on

I really like this site, It brings people from all over the world together in one common goal, to see if there is something or someone out there that has the...

I really like this site, It brings people from all over the world together in o...

grannygoodwitch

•8 years ago

Pregablin is not okay to take for ITP

I have been taking pregabalin for a while now went from 75 mgs 2 times a day to 150 mg 2 times a day. The other day I just happened to look up pregabalin and...

I have been taking pregabalin for a while now went from 75 mgs 2 times a day to...

grannygoodwitch

•8 years ago

low platelets after a cold and prednisone question

Hello, last Nov. I was put on prednisone (60mg)for low platelets, the hematologist believes it was due to ITP. i finished my last dose Jan 3. About a month...

Hello, last Nov. I was put on prednisone (60mg)for low platelets, the hematologi...

•8 years ago

A little depressed.

My platelets have dropped again now at 34,000 this is probably not bad but I am getting a bit worried. I just got over a cold and it took about the normal...

My platelets have dropped again now at 34,000 this is probably not bad but I am ...

grannygoodwitch

•8 years ago

ITP question/advice... please.

Hi, so I'm new to this. My son has been diagnosed with ITP just over 2 weeks ago. He had severe bleeding and the typical purpura rash all over his body. He...

Hi, so I'm new to this. My son has been diagnosed with ITP just over 2 weeks ago...

•8 years ago

Itp and loosing a tooth

My six ear old girl with itp has just lost her first tooth! She was so happy but bled more than I would have liked - it has stopped now and I know it looks...

My six ear old girl with itp has just lost her first tooth! She was so happy but...

•8 years ago

Time Out

My hematologist told me I need to take time out for me read a book , have a bath, paint your fingernernails / toenails, and you know I do it all see itp is...

My hematologist told me I need to take time out for me read a book , have a bath...

•8 years ago

Spleen surgery

My mom had spleen surgery. Had anyone had success with this for ITP. Nothing else so far has worked

My mom had spleen surgery. Had anyone had success with this for ITP. Nothing els...

•8 years ago

Curious

So just wondering...? Have you had mono? Special diet? Drink alcohol? Anything you think contributed to itp?

So just wondering...? Have you had mono? Special diet? Drink alcohol? Anything ...

•8 years ago

ITP Support Association Annual Convention 2017

We are delighted to announce that the ITP Support Association Annual Convention for 2017 will take place on Saturday May 13th. The venue is the Royal Society...

We are delighted to announce that the ITP Support Association Annual Convention ...

Administrator•8 years ago

Be the first to reply

Bruising

Today is s bit of a bruiser : ))))))

Today is s bit of a bruiser : ))))))

•8 years ago

Eltrombopag

Hi all Can I ask about experiences of using Eltrombopag and more specifically about the dietary require that should be considered? I'm not the patient but am...

Hi all Can I ask about experiences of using Eltrombopag and more specifically ab...

•8 years ago

ITP AND AUTOIMMUNE HEMOLYTIC ANEMIA

Good morning.... My mom not only has the ITP, she has also just been added with Autoimmune Hemolytic Anemia... Has anyone had the same happen to them and how...

Good morning.... My mom not only has the ITP, she has also just been added with ...

•8 years ago

Scared

My ITP was triggered by my daughters birth. At this moment I am in maternity leave. But I will go back to the job very soon. I'm so scared of this. How...

My ITP was triggered by my daughters birth. At this moment I am in maternity lea...

•8 years ago

Flying

Thank you all for helping in my dilemma regarding flying I am going on holiday big hugs to everyone and woop woops bring it on :)))

Thank you all for helping in my dilemma regarding flying I am going on holiday b...

•8 years ago

Be the first to reply

Bruising under nails

Hello All, My Legs finger nails are like this from past a year and my ITP was diagnosed 6 yrs back. I have tried all treatments and nothing worked. Now I am...

Hello All, My Legs finger nails are like this from past a year and my ITP was di...

•8 years ago

What do I do any thought please : )))

Hi,my dilemma I am due to go on holiday in May only 3 hour flight my platelets bob up down never higher than 60 not too bothered but I have random nose bleeds...

Hi,my dilemma I am due to go on holiday in May only 3 hour flight my platelets b...

•8 years ago

How long before Revolade start to work?

I have low blood platelets, I was on steroids first and they initially boosted my count but they then plummeted, on the 2nd course of steroids they never...

I have low blood platelets, I was on steroids first and they initially boosted m...

•8 years ago

N-plate not working

My mom is 89 and has ITP for several years. Her N-plate shots are no longer working and she is in the hospital, with a count of 5,000. Anyone have success with...

My mom is 89 and has ITP for several years. Her N-plate shots are no longer work...

•8 years ago

platelets 60

Hi My platelets keep lowering with no known reason i was at 84 but now im at 60 is this anything to worry about ? x

Hi My platelets keep lowering with no known reason i was at 84 but now im at 60...

•8 years ago

Romiplostin Nplate

Had my first Nplate injection today.Has anyone had this treatment,and is it successful .

Had my first Nplate injection today.Has anyone had this treatment,and is it succ...

•8 years ago

Dexamethasone

Has anyone been prescribed Dexamethasone. If so what were your results and side affects. I have read that after the initial dose you don't take it again for...

Has anyone been prescribed Dexamethasone. If so what were your results and side...

•8 years ago

Answer

No Georgia. I didn't have preeclampsia! Was a normal pregnancy and an absolute normal labor. During my pregnancy my platelets were 250K. After two weeks after...

No Georgia. I didn't have preeclampsia! Was a normal pregnancy and an absolute n...

•8 years ago

Answer

kyriak51 Thank you so much for your support. My ITP it is autoimmune, was found the specifics antibodies. Was triggered by my daughters birth.

kyriak51 Thank you so much for your support. My ITP it is autoimmune, was found ...

•8 years ago

Be the first to reply

Search posts

Pinned Posts

Shedding some light on ITP - where to get information

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

All things ITP Support Association(58)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2023

Apr

May

Aug

Sep

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug

Sep