Time Out

[Topography52_-]

My hematologist told me I need to take time out for me read a book , have a bath, paint your fingernernails / toenails, and you know I do it all see itp is not so bad : ))))

[dede7]

I agree I try to pace myself more than ever before to not get too drained

[ellaco in reply to dede7]

Mine told me to chill out and do things I enjoy doing for me that is baking patisserie, listerning to music and driving me new car 🚗. It has had a positive effect on me both in mood and my count has come up to!

[Topography52_- in reply to ellaco]

Love it :, ))))

[dede7 in reply to ellaco]

Good not much has helped my platelet count but i feel like my body is calling me to do that -sllloooo down!!

[Topography52_- in reply to dede7]

I like music when I am work very early 6 o clock UK time we have happy music on love it just sing my heart out keep your mood uplifted it helps but then I do feel tired vocally though : ))))

[grannygoodwitch in reply to ellaco]

My hematologist does not think I should worry, he said I would not bleed to death I would die of something else. I liked this Dr. but allas he is leaving the area so now I need to get another one. He was a very positive Dr. and went straight for the bone marrow biopsy which confirmed his suspicions that I have ITP. I am going to try and start up swimming again and hopefully get on the treadmill soon. I love playing video games with my grandchildren and of course myself for me time so I know I will not let this stop me from having fun and enjoying retirement.

[Topography52_- in reply to grannygoodwitch]

That's the way to go I normally get a bit down before my weekly bloods but its because when I go to hospital it actually makes me ill think its psychological kinda funny though : ))))

[grannygoodwitch in reply to Topography52_-]

Well I guess we all have a new family and it is the ITP one and we all have great stories and advice and hopefully someday someone will know what to do to cure this thing. You never know a child could be born now or soon and that child will have the answers we need. Hope all have a great day today.