Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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In need of some help/suggestions please

Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall.I don't...

Hi, this is my first time back on the forum after a few years break just bimblin...

Wispymisty

•2 months ago

15 Replies

Phantom Smells

Hi All I'm just wondering if there is anyone who has phantom smells, tonight & many other times i can smell a faint gas smell i know its not as I had a gas...

Hi All I'm just wondering if there is anyone who has phantom smells, tonight & m...

Sleepyhead_

•2 months ago

39 Replies

Malar rash?

Hello dear friends 🧡 Here I am again with the same old 🙈2 years on and still getting this rash. It causes very bad headaches,stomach ache,body stiffness...

Hello dear friends 🧡 Here I am again with the same old 🙈2 years on and still g...

Socialbutterfly00

•2 months ago

29 Replies

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Sitting pain not going away. Is it my pudendal nerve or something else?

Hello — if anyone has had experience with this, I’d appreciate some feedback. I have suffered with fibro, pelvic pain, bladder issues, and migraines for...

Hello — if anyone has had experience with this, I’d appreciate some feedback. ...

kellerfly

•4 months ago

3 Replies

Catching a cold when you have fibro - turns out it’s COVID fml

Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who...

Do you find that when you catch a cold you are affected much worse than other pe...

Brigga

•4 months ago

5 Replies

Fybo or cancer

Started having extreme fatigue and it was effecting my driving to the point I was falling asleep at the wheel no matter what I tried, lost about a stone and a...

Started having extreme fatigue and it was effecting my driving to the point I wa...

Heyyaall

•7 months ago

21 Replies

threadworm fibromyalgia link?

Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had...

Morning all, I’ve recently been diagnosed with fibro and even more recently be...

Emmybird2

•8 months ago

17 Replies

Diagnosis

Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of...

Good Morning I have suffered with my condition for over 20 years and have also ...

pixieraine23

•8 months ago

4 Replies

Feel like legs and feet are “Wrapped in Cling Film!”

It’s hard to explain but from the knees down both legs feel very numb and weird when I flex my feet. This has come on progressively and I now realise that I...

It’s hard to explain but from the knees down both legs feel very numb and weird ...

KneesRsore

•8 months ago

9 Replies

Gabapentin or Duloxetine

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bug heard good experience with duloxetine! Any advise would be fab!

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bu...

JoLouise88

•10 months ago

16 Replies

hot flushes

I work in a hospital for a few hours which is great for my fatigue and pain levels. Here’s the kicker I need help I get terrible hot flushes where I can be...

I work in a hospital for a few hours which is great for my fatigue and pain leve...

Bubbles_3

•11 months ago

38 Replies

Trouble breathing

Afternoon all my breathing trouble is getting worse feels like I'm not getting enough air its scarey - also hurts my chest and back when I breathe in but it...

Afternoon all my breathing trouble is getting worse feels like I'm not getting e...

Sleepyhead_

•11 months ago

14 Replies

Fibro & Physio treatments UK

Physiotherapy is uneffective for me. Also a physiotherapist who I visited for sciatica treatment stated it. I asked about hot wax or anything like that and she...

Physiotherapy is uneffective for me. Also a physiotherapist who I visited for sc...

Polly-S

•11 months ago

12 Replies

Newly diagnosed

Recently diagnosed by msk but given no information and no treatment. Suffered since July 2020 after getting covid in March 20 and GP very little help. Had...

Recently diagnosed by msk but given no information and no treatment. Suffered si...

Aka-Ice

•1 year ago

20 Replies

Fibromyalgia causing breathlessness?

I had covid pneumonia in 2021 and suffer with long covid. But since getting covid my fibromyalgia flare ups are alot worse.I have breathlessness and chest pain...

I had covid pneumonia in 2021 and suffer with long covid. But since getting covi...

eightieslass

•1 year ago

5 Replies

Fybro & CBD - homemade cream

I have been diagnosed with FM 3 years ago, just before the first COVID-19 lockdown . As almost everyone here - lots of changes in medication, no real GP...

I have been diagnosed with FM 3 years ago, just before the first COVID-19 lockdo...

Polly-S

•1 year ago

7 Replies

Advice Needed

For years I’ve been suffering from pain in my bones, sleeplessness, depression and sometimes inability to do general things. I’ve seen my GP who has given me...

For years I’ve been suffering from pain in my bones, sleeplessness, depression a...

WelshWitchy

•1 year ago

5 Replies

No energy and motivation

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal and amitryptaline 30mg in the evening for nerve spasms. I spend most of my...

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal...

usbrit

•1 year ago

21 Replies

Weight loss with fibro?

Hi all, had anyone experienced large weight loss with fibro? I can't attribute it to my medication as it started before i was taking the duloxetine.I've now...

Hi all, had anyone experienced large weight loss with fibro? I can't attribute i...

Tassadar

•1 year ago

10 Replies

Fibro flare + teeth grinding

Hi everyone, any helpful advice/solution for severe teeth grinding and clenching? I tried different types of nightguards and botox and the situation didn't...

Hi everyone, any helpful advice/solution for severe teeth grinding and clenching...

Dodo21

•1 year ago

16 Replies

i know this is very tabo but i wanted to know 🤓

Good Morning Everyone, I have tried most drugs now and am currently coming off withdrawals from Duloxetine, which by the way is horrendous!!!!! When i...

Good Morning Everyone, I have tried most drugs now and am currently coming off...

Rosco14

•2 years ago

61 Replies

who diagnoses fibromyalgia? I’m new here 👋

I am currently going through some tests at hospital, I have just had my bloods done and I’m due for a CT scan soon. For so long I’ve been in pain, my lower...

I am currently going through some tests at hospital, I have just had my bloods d...

nicnak86

•2 years ago

3 Replies

Flare-up and Overwhelmed

Hello all, I hope you're having a good day. I 'm currently in the middle of a flare up. I've had plenty of them before this, but I've never had bloating...

Hello all, I hope you're having a good day. I 'm currently in the middle of ...

DemonEyes

•2 years ago

18 Replies

dealing with pain and grief

hello, I’ve had a rough couple of years and I’ve noticed that the past year my flare ups have been getting longer and longer it is also making me feel very...

hello, I’ve had a rough couple of years and I’ve noticed that the past year my f...

Ksxo

•2 years ago

9 Replies

Infared sauna blanket & other alternative therapies.

Hello everyone. I was diagnosed with Lupus SLE in Nov 2020 and also Fibromyalgia in March 2022. Despite taking more and more meds, the fatigue and pain just...

Hello everyone. I was diagnosed with Lupus SLE in Nov 2020 and also Fibromyalgi...

Alexia01

•2 years ago

9 Replies

Feeling unwell with fybro

Morning all I have fybo and rhematiod athritus and suffer from bad virul bugs headaches sleep and am so weak and drained like a flu type type bug which lasts...

Morning all I have fybo and rhematiod athritus and suffer from bad virul bugs he...

Trixybella11

•2 years ago

4 Replies

Pain Management - reconnect2life

Some helpful stuff relating to Pain management, individuals looking for help on these topics may find this link helpful for pain management this was provided...

Some helpful stuff relating to Pain management, individuals looking for help on ...

does-the-NHS-work

•2 years ago

2 Replies

Nerve Pain

Nerve disorder A neurologist specializes in anatomy, function and organic disorders of the nerves and the nervous system. For those who have done their...

Nerve disorder A neurologist specializes in anatomy, function and organic disor...

does-the-NHS-work

•2 years ago

1 Reply

I'm new.

I'm new on here. I have ME/CFS and more recently Fibromyalgia and am trying to inform myself on the condition. I see that the symptoms are the same as ME/CFS...

I'm new on here. I have ME/CFS and more recently Fibromyalgia and am trying to i...

Lypsie56

•2 years ago

8 Replies

Help with Fibromyalgia

Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with...

Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, ...

Fairytale50

•2 years ago

57 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Symptoms|Treatments posts

In need of some help/suggestions please

Phantom Smells

Malar rash?

Sitting pain not going away. Is it my pudendal nerve or something else?

Catching a cold when you have fibro - turns out it’s COVID fml

Fybo or cancer

threadworm fibromyalgia link?

Diagnosis

Feel like legs and feet are “Wrapped in Cling Film!”

Gabapentin or Duloxetine

hot flushes

Trouble breathing

Fibro & Physio treatments UK

Newly diagnosed

Fibromyalgia causing breathlessness?

Fybro & CBD - homemade cream

Advice Needed

No energy and motivation

Weight loss with fibro?

Fibro flare + teeth grinding

i know this is very tabo but i wanted to know 🤓

who diagnoses fibromyalgia? I’m new here 👋

Flare-up and Overwhelmed

dealing with pain and grief

Infared sauna blanket & other alternative therapies.

Feeling unwell with fybro

Pain Management - reconnect2life

Nerve Pain

I'm new.

Help with Fibromyalgia

Search posts

Pinned Posts

Latest poll

What changes would you like to make in 2020 to improve your health and quality of life?

Topics

Archive

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Symptoms|Treatments posts

In need of some help/suggestions please

Phantom Smells

Malar rash?

Sitting pain not going away. Is it my pudendal nerve or something else?

Catching a cold when you have fibro - turns out it’s COVID fml

Fybo or cancer

threadworm fibromyalgia link?

Diagnosis

Feel like legs and feet are “Wrapped in Cling Film!”

Gabapentin or Duloxetine

hot flushes

Trouble breathing

Fibro & Physio treatments UK

Newly diagnosed

Fibromyalgia causing breathlessness?

Fybro & CBD - homemade cream

Advice Needed

No energy and motivation

Weight loss with fibro?

Fibro flare + teeth grinding

i know this is very tabo but i wanted to know 🤓

who diagnoses fibromyalgia? I’m new here 👋

﻿Flare-up and Overwhelmed

dealing with pain and grief

Infared sauna blanket & other alternative therapies.

Feeling unwell with fybro

Pain Management - reconnect2life

Nerve Pain

I'm new.

Help with Fibromyalgia

Search posts

Pinned Posts

Latest poll

What changes would you like to make in 2020 to improve your health and quality of life?

Topics

Archive

Flare-up and Overwhelmed