Phantom Smells: Hi All I'm just... - Fibromyalgia Acti...

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Phantom Smells

Sleepyhead_ profile image
39 Replies

Hi All

I'm just wondering if there is anyone who has phantom smells, tonight & many other times i can smell a faint gas smell i know its not as I had a gas check end of December all clear and I also smelt it when my gas had been of for a bit, It drives me crazy not knowing what it is and unsettles me does anyone else have similar experiences?

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Sleepyhead_ profile image
Sleepyhead_
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39 Replies
glochessum profile image
glochessum

your not alone. I get phantom smells but mine is like someone’s smoking. We don’t smoke and neither does our neighbours. I’ve even had it in Tesco while shopping. It’s not constantly, just appears at random.

Sleepyhead_ profile image
Sleepyhead_ in reply to glochessum

I sometimes get the smoke smell and cleaning products sometimes pufume and it baffles me everytime but smelling gas worries me the most.

Judygarland1 profile image
Judygarland1 in reply to glochessum

Omg I get this. I’m obsessed with my house smelling nice but every now and then it smells like someone has been smoking, or at least I think it does. I’ve asked my friends if they can smell it and they just look at me like I’m crazy. None of my friends or family smoke so there’s no reason it would smell. I get lots of other random smells at odd times but the cigarette smoke is one I smell the most and only in my front room.

oldwomaninpain profile image
oldwomaninpain

Yes! Mine is a smell of burning which worries me 'cos my late uncle told me he had the same smell just before he had a heart attack. So, of course, I panic that a heart attack looms for me - especially when I have chest, rib and back pains at the same time as the 'smell'. However, I am still here but I still worry every time!

Sleepyhead_ profile image
Sleepyhead_ in reply to oldwomaninpain

I'm right there with you on the worry front.

Alsithee4 profile image
Alsithee4

Me too, but mine smells of burning fire, like on bonfire night. My family thought I was going nuts at first, no-one else could smell it!!! It comes and goes, sometimes months apart.I visited the GP about something else and just asked about this, he asked if I'd had covid? He explained that its sometimes an after effect from covid 🤔

Sleepyhead_ profile image
Sleepyhead_ in reply to Alsithee4

Oh right I'll have to look into that.

Bue2 profile image
Bue2

Yes, mine is usually smelling smoke, nobody else can smell it, it comes and goes

Sleepyhead_ profile image
Sleepyhead_ in reply to Bue2

Sometimes I smell smoke or burning.

Downtime profile image
Downtime

I’ve had this in the past . Smelled smoke for months, really strongly. It just went away. I do get migraines and I thought it was related to that as although I don’t get bad headaches any more I get lots of auras which cause weird smells and sensations.

Sleepyhead_ profile image
Sleepyhead_ in reply to Downtime

Yehr I have a really bad headache and dizziness at the same time also.

Purplelife123 profile image
Purplelife123

yes! Like someone is smoking. We don’t smoke when it first started I was going round the house sniffing trying tofind where it was coming from. It comes and goes but yet another strange symptom with no explanation.

Sleepyhead_ profile image
Sleepyhead_ in reply to Purplelife123

The comes and goes seems to be a common there.

Pamg profile image
Pamg

I smell cigarettes I live on my own and I don’t smoke. I have also moved and I still smell it!

Sleepyhead_ profile image
Sleepyhead_ in reply to Pamg

Occasionally I do smell smoke or burning.

milupa profile image
milupa

I have experienced phantom smells for years, and added some new ones (whilst also losing my sense of smell) post Covid.

I‘ve had the suspicion that something is going on with my teeth that might be causing this but several dentists just denied that possibility.

I am now being seen by a holistic dentist who did some specific blood tests as well as taking swabs of the gumline to test for bacteria.

I have been treating against those bacteria (10 different types) with a custom made oil mix and had a badly infected tooth extracted three days ago.

Phantom smells have already disappeared by about 60%, I am so relieved.

I hope you find your root cause!

Sleepyhead_ profile image
Sleepyhead_ in reply to milupa

Well what I noticed is the smell is while eating or just after.

Anniebl24 profile image
Anniebl24

mine was exhaust fumes, and was related to covid.

Sleepyhead_ profile image
Sleepyhead_ in reply to Anniebl24

Someone else mentioned this so I must look into it.

MrsMouseSJ profile image
MrsMouseSJ

Hello Sleepyhead, I am glad to read you and others experience this, too. Well, not glad for you! But at least I now know I am not alone in this. I have had phantom smells for some years, pre-dating the covid era, and at times it drives me potty. Some days, usually later morning or late afternoon, I get an onset of a very, very mature cheese combined with something even more foul/rotten smell. It wafts on and off for several hours. Occasionally I get cigar smoke - certainly no smokers around here - or, as a special treat, something pleasant, perhaps a floral or even exotic perfume smell. I've smelt summer jasmine in full flower in the depths of winter.

I guess it's my fibromyalgia combined with my FND ( Functional Neurological Disorder). Reading this post and replies has got me thinking: perhaps I might try nasal irrigation as an experiment next time the foul smell arises. Just to see if there is any effect.

Best wishes.

Sleepyhead_ profile image
Sleepyhead_ in reply to MrsMouseSJ

Not heard of nasal irrigation i will have to look into it and possibly try it also.

Purplelife123 profile image
Purplelife123 in reply to MrsMouseSJ

Wow that’s a lot to cope with. Not to make light of anything but I wish I could get the jasmine instead of the smoke that would be a nice change. 😀

Labradoodlelove profile image
Labradoodlelove

Gosh I’m so glad to hear this as I’ve been experiencing this and really thought I was going mad, I keep asking my husband if he can smell anything, mines a sort of sweet smell. I also get a lot of mouth ulcers that come and go!

Sleepyhead_ profile image
Sleepyhead_ in reply to Labradoodlelove

I get perfumes smells gas smells bleach burning just odd and ill be honest at times rather frustrating.

Fybrohurt profile image
Fybrohurt

Hi all, I thought I was going mad...yes I smell fire smoke...thank goodness its not just me.

Sleepyhead_ profile image
Sleepyhead_ in reply to Fybrohurt

Fire smoke sometimes.

Bacaloca profile image
Bacaloca

Yes, me too. I smell people smoking cigarettes a lot, and neither of us smokes. I often smell pipe tobacco, but I find that comforting; it reminds me of my youngest daughter's granddad, who always looked out for me.

Sleepyhead_ profile image
Sleepyhead_ in reply to Bacaloca

Ah thats sweet sort of nostalgic for you.

Flowerc profile image
Flowerc in reply to Bacaloca

it may also be your daughters grandad around you in spirit this is how they show us they are around it relates to some of the comments on this thread I think not everything is fibro related it happens to me as well

Midori profile image
Midori

Might be a thought to tell your Doctor about it.

Cheers, Midori

Sleepyhead_ profile image
Sleepyhead_ in reply to Midori

Will be doing not that it will make much difference.

Sleepyhead_ profile image
Sleepyhead_ in reply to Midori

Went to the doctors she didnt say anything about it.

Piddlysmam profile image
Piddlysmam

I keep smelling burning rubber or burning hair. There are other random things that no one else seems to be able to smell. I'm glad it's not just me. 🤗

Sleepyhead_ profile image
Sleepyhead_ in reply to Piddlysmam

Seems there's a lot of us experiencing the same to similar things, which strongly suggests its the fibro causing it.

Oscarpops profile image
Oscarpops

Hi I get them, it was one of the deciding factors in my diagnosis. I had over sensitivity to some smells and sounds ( espcially high pitched ones) . I often smell rotton cabbage or off meat when there is none, it makes me feel nauseous. I can snell other people sweat when others can't and I've had the gas smell a lot recently in my mum's house which I'm currently emptying. I hear high pitched noises too sometimes that many others don't hear...like my dogs whistle and some alarms . My GP says its because senses can be over sensitive just like the nerves etc can for pain.

Piddlysmam profile image
Piddlysmam in reply to Oscarpops

I get the hearing thing too. It's really weird.

KimiJay profile image
KimiJay

This 'might' be something to do with our survival mechanisms. I'm no expert in that but I know I have a far better sense of smell than my hubs and that is why I smelt the start of a fire in the kitchen when he was running the oven on heat clean and he had left an oven cloth hanging on the door which had fallen off in flames. No harm done I may say!

Trust yourself that this ability will work for you if you ever seriously need it. It's an unwelcome gift to you right now but perhaps someone in your family also has it too. -My mum had the trait and my sister was supersensitive, and to touch as well as smell.

Something that you might therefore, actually, enjoy is an essential oil diffuser which is a safer way to burn oils. I have a plug in one with a wide base from Amazon and put in a few drops of something like lavender or sandalwood oil in water inside it to encourage sleep or at least relaxation. I don't use it a lot in daytime but when I do there is wonderful calming melissa (lemon balm) and some people really go for ylang ylang which is very strong. Nice at night with that stuff diffusing on on my right side and soft sleep music or sea sounds going on on the left.

VS1955 profile image
VS1955

Hi ! Yes, I'm another person who gets random smoking smells. Really weird, I was convinced I had a smoking ghost....haha... it comes and goes, not had it for a while though.

Sleepyhead_ profile image
Sleepyhead_ in reply to VS1955

It is strange, I can't even explain the smell ive been smelling of recent.

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