Ankylosing Spondylitis? Negative bloods

[Jennyjenjen01]

Hello! I have been trying to get a diagnosis for my pain condition for around 7 years now. It's daily, I get pain and stiffness in my lower back in the mornings but gets worse leading up to ovulation up to my period where I get lower abdominal pain which radiates to the back and what feels like up the bottom. I have IBD too (positive faecal calprotectin). I've been told endometriosis or possibly fibromyalgia. Laparoscopy was negative.

I do have Adenomyosis however and get large ovarian cysts. A CT scan recently showed "severe degeneration of the pelvis".

My GP thought I could have Ankylosing Spondylitis and ran bloods but they were all negative. I was hoping to get somewhere and finally get help for this but I'm feeling so stuck, relying on oramorph and pregabalin and trying to maintain a full time job.

Does anyone have any experience with negative bloods but a diagnosis of ankylosing Spondylitis?

Thank you for reading ❤️

[Smoggie1]

My sister has a faulty gene and when she gets ill it does not always show up that she has that condition or inflammation.she had to have a special blood test.. that's how they found out.because I have similar symptoms to my sister and also another of my sister's who had polymyralgia .I got tested as I have fibromyalgia and other health issues.i had to travel to Norwich as not done locally

.HLA b27. Was name of blood test

.mine came back normal.. I think it's to test for As gene and she carries it and was told her kids have one in two chance if carrying it too.shes 75 and has got worse and developed more conditions but they cannot seem to agree on what she has with some of issues due to this problem

[skit]

Hi I empathise with your issues. My reply is regarding the use of pregabelin. Under supervision you can have the dosage increased for short periods of time. Post some surgery I needed more painkillers . I am now slowly reducing the amount back to normal. It is worth asking the GP.

Gentle hugs

[golly123]

Have you been referred to a rheumatologist? It might be worth seeing one. My son has AS. He's on biological for this. He was initially put on naproxen. I have all sorts of spinal issues (osteo-arthritis, osteopenia, osteoporosis). I'm currently on duloxetine. Pregabalin made me gain a huge amount of weight. Exercise is key really to keep as mobile as possible.