Fibromyalgia causing breathlessness?

[eightieslass]

I had covid pneumonia in 2021 and suffer with long covid. But since getting covid my fibromyalgia flare ups are alot worse.I have breathlessness and chest pain regularly but have had tests on my lungs and all is good. Is anyone else suffering with anything like this?

[Sas210319]

Hi there what tests have you had done on your lungs? I had multiple chest Xrays which they said were clear until I kept going back to my GPS because of chronic coughing with phlegm daily and breathlessness to which they then sent me to a lung specialist who has done a CT scan and they have now found I've got bronchiectasis.. I am 27 and suffer badly with chronic coughing since covid excruciating chest pains and pains in my upper central back area.. I'd advice you ask your GP to refer you to a lung specialist. All the best of luck 😊 x

[Yassytina FMA UK Volunteer]

Sorry to read the impact this has had on your health , I would go back to your doctor and say you don’t feel your improving and see what other tests could be done for you in perhaps moving you forward. Take care .

[Judithdalston]

yes, I have fibromyalgia with nearly 3 years of Long Covid. My fibro pain/fatigue/brain fog has got worse ( I had thought that would have been difficult to believe) 24/7, but new symptoms were raised BP and HR, and obvious breathlessness. I am on 5 BP drugs, which have hardly made any difference, and attended a 5 week LC Breathing Clinic similarly useless. I have had negative ( as in nothing seen) on 2 chest rays, 2 ECGs,1 echocardiogram, testing for sleep apnoea, a phone appointment with a cardiologist and awaiting yet another appointment with a breathing consultant…. My Gp admitted she was ‘not interested in LC’ and this seems to reflect the NHS where I live. I got an asthmatic inhaler… no good, and I started DIY supplementation with nattokinase 3 months ago. Do you know YouTube videos by Gez Medinger and his Handbook with Prof Danny Altmann, might be of some help?

[DavidCB]

yes I found that this is a large part of long covid and I have to push the GP to refer me to the long covid clinic, my X-ray was normal, I’ve now been put on a long covid trial. My fibromyalgia got worse after long Covid and never returned to normal since, hence my pushing. I’ve another post where I’ve spoken about my experience.

[Sleepyhead_]

Hi there yes on a daily basis and I've noticed there is no pattern its all sporadic when I feel shortness of breath - great that your tests were clear 🦋