Please give me some information

[Soraya_masoomi]

Hello.I have no idea about this community.

Could you help me please?

What should I do and what can I do about my illness?

I am refugee and I got my visa about one month.

What's the first step that I can do about my disabilities?

[Dinkie]

Please could you elaborate, in what way do you mean what should you do about your disabilities? Have you just been diagnosed with fibro or have you had it for some time? Have you managed to register with a GP as I would think that would be your first port of call to ensure you have access to medication should you need it.

We are a helpful community here and will try and guide you but we may need a little more information to get you on the right track.

[Soraya_masoomi in reply to Dinkie]

Thank you for your attention.I have Fibromyalgia since 2018.

First time it diagnosed in my home country Iran but in the UK the Rheumatologist proved it one year ago and referred me to the pain clinic and I am in the waiting list for any treatment.

GP and Rheumatologist prescribed some medication such a pain killer and a pill for sleep that they didn't work for me.

I have alot pain in my whole body.

My muscles are so tight.

I can send you more details if you need.

Thank you so much

[Dinkie in reply to Soraya_masoomi]

You could ask for CBT to help. Unfortunately waiting lists are long for the pain clinic. Many folk cannot tolerate prescription medication so rely on hot water bottles, tens machines, chiropractor, epsom salt baths, gentle exercise such as tai chi or even just a stroll in a local park, biofreeze gel etc are all helpful. Maybe ask for a referral to one of the fibro clinics, these are usually one off appointments and you would see different specialists who put together a plan and forward it to your GP. I attended one at Guys and St Thomas's hospital but there are plenty of others dotted around the country.

[Soraya_masoomi in reply to Dinkie]

Excuse me, what is CBT?Where is Fibro clinic in Glasgow?do you know?

Sorry, my English language isn't good.

[Lima6MCT in reply to Soraya_masoomi]

As far as I am aware, there isn't one in Glasgow or anywhere else in Scotland for that matter. Apart from some accupuncture, CBT was the last form of treatment offered to me. I gave up on the amitryptaline/anti-depressants years ago as they only made me feel worse.

[Soraya_masoomi in reply to Lima6MCT]

Are you living in Glasgow?

[Lima6MCT in reply to Soraya_masoomi]

No, I live on the East Coast, not been to Glasgow in years.

[Soraya_masoomi in reply to Lima6MCT]

Good luck 🍀🤞🏻☺️

[Dinkie]

CBT is Cognitive behavioural therapy (CBT) is a type of talking therapy. Sometimes you can self refer to your local service and sometimes it needs a GP referral. I am not sure as you are in Scotland what provisions the health service make there. Maybe have a look at the websites of the local hospitals and see what they offer. Or there maybe a local fibro support group you could access for guidance on local services.

[Soraya_masoomi in reply to Dinkie]

Thank you so much for your explanation.

[DoubleMalibu]

You say you were first diagnosed in your home country of Iran, what kind of support and help were you receiving in Iran for fibromyalgia?

Did the treatment help you?

It sounds like you have already spoken to a GP and Rheumatologist in the UK, that’s usual, it’s good they have already guided you on a path of treatment.

Good luck

[Soraya_masoomi in reply to DoubleMalibu]

They prescribed some medication such a perdenisolone that it didn't work.I Iran diagnosed Loupus for me and it seems wrong and in the UK called it Fibromyalgia

[Dinkie in reply to Soraya_masoomi]

Lupus and fibro are completely different. Lupus is an autoimmune condition which will show on blood tests normally. Fibro does not show on blood tests.

[Soraya_masoomi in reply to Dinkie]

Yes I knowIn Iran the Rheumatologist diagnosed Lupus by blood test actually.

But in the UK the specialist said she didn't see any symptoms about lupus in my blood test.

[Debsdelight72]

I'm sorry if this sounds rude or judgy, It is not meant to be, It takes a long time for me to think and not always come out, You say you've got your visa for a month?

I thought there was a clause that says you have to find work within a time span (At least 6 months ) I apologise if I'm mistaken,You don't say whereabouts in the country you are? Scotland's benefit system are different and Ireland too,

Forgive me for asking, Are you getting benefits already? Or are you being supported by anyone? I would suggest you make an appointment with your local Department of works and pension,( Not sure if its the Job centre & DWP are together anymore) and ask them to help you, where you are staying someone will point you in the right direction,

I hope you get the advice you are after soon, Good luck and take care

[Soraya_masoomi in reply to Debsdelight72]

Yes, I've got my visa for a month.I'm on the benefit of Home office a little bit.

What is the DWP?and how it helps me?

[Debsdelight72 in reply to Soraya_masoomi]

DEPARTMENT of WORKS and PENSIONS, They deal with everyone on a individual basis and they assess what benefits you can claim if any, And NHS treatment you would be entitled to,

[Soraya_masoomi in reply to Debsdelight72]

How I can contact with them?Could you give me some information please?

[Debsdelight72 in reply to Soraya_masoomi]

Google your nearest office and you can also contact and make an appointment with the Citizen Advice Bureau, They should help you.

[Soraya_masoomi in reply to Debsdelight72]

Thank you so much

[Yassytina FMA UK Volunteer]

Hello, I see you have a very good replies from our member Dinkie, I’m sure reading posts on the forum you will find it’s helpful. Lots of friendly advice and tips , do you have a bath ?I find with the pain having a warm bath very helpful @even more so before bed , I use Epsom salts and always have a good supply at home , I alternate every other day and use the Radox soak so not too dry out my skin with the epsoms, a lot of big stores sell the Epsom salts .some lovely smells too, I generally look out for promotions on these and the Radox bottles when they are on offer too stock up when I can. You can get some cream like bio freeze too rub in certain painful areas during the day, Boots chemist do their own brand and not so expensive. I always run anything by my pharmacist when using anything especially if people are on any medications x

[Soraya_masoomi in reply to Yassytina]

HelloThank you so much for your helping 🙂

[CheetieCat]

Hi Soraya

You could try some magnesium oil or spray for your tight muscles, doesn't work for everyone though but it's worth trying. I find it really helps, especially my legs, great for cramps and restless legs, but I use it anywhere my muscles are tight and sore. You can buy it online or from most health food shops. I tend to use 'Better You' but there's plenty of other makes out there.

[Soraya_masoomi in reply to CheetieCat]

Oh, thank you so much 😊🙏🏻I will try.