The post new pip form : Hi Hope... - Fibromyalgia Acti...

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The post new pip form

Scoo1961 profile image
15 Replies

Hi

Hope everything is okay 👍

just wondering has any one had the text to say pip

Is in the post ?

also has anyone had a phone pip assessment ?

Thank you 😊

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Scoo1961 profile image
Scoo1961
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15 Replies
FindingMyself60 profile image
FindingMyself60

I had a text message last week to say my review is due and form should be in the post which I should receive in the next two weeks. Not received the form yet and will call them next week if I haven’t received the for. As the message said I would receive the form in the next two weeks. My PIP renewal is due in May 2024.

Reebee70 profile image
Reebee70

Yes, I have had an assessment quite a while back on 2019, It did make me feel a little uncomfortable. Make sure you have all your document's to backup your case. Now, I have an appeal coming up because of my Fibromyalgia,Lipo-Lymperhoedema and headaches that I keep getting which have left me with Tinnitus. The last report stated I am not in chronic pain or suffer with fatigue.

It a harsh world we live in I hope your assessment goes well:)

Scoo1961 profile image
Scoo1961 in reply toReebee70

Hi 👋

Thank you for your help :)

I await forms ?

Worried but will have to see ??

All the best with your appeal

You will win it 😊

Reebee70 profile image
Reebee70

I wish, I had your confidence thank you. The reason, behind all of my problem's is that I still continue to fight back. Because, I still continue to work despite my pain levels think this my downfall in a lot of way's. 😊

ArtfulLyricist profile image
ArtfulLyricist

I had a telephone assessment and was told the assessor was a nurse. She seemed friendly and understanding and then missed out our misrepresented almost everything I said. I'm currently going through paperwork for a Mandatory Reconsideration as they took £453/calendar month away from me on the basis of her report and the decision maker's interpretation of it.

If they don't reverse the decision I face bankruptcy or similar because other mental health conditions have seen me be irresponsible with credit cards and I can't pay anything back anymore.

I stupidly didn't record the assessment, which is something I strongly advise everybody to do and then you can refer to things that you said and show they were misrepresented.

Good luck. Be strong, forthright and firm in all you say and explain in as much detail as you can how badly you are affected.

Toni

ellilu58 profile image
ellilu58 in reply toArtfulLyricist

Toni...this happened to me on my last review. Nurse totally either lied about me or then completely wrote the wrong things on her form. When I did my MR, I 'appendixed' everything that she had lied/said wrong and gave the evidence - as in medical records. Also, I wrote a letter of complaint to the DWP the same time that I sent in my MR. About two weeks later, I got a call from the Complaints Dept, and they apologised profusely and said I was staying on what I'd been on. So....COMPLAIN too. It's all so stressful which makes our conditions worse. Take care and good luck!

Elli x

ArtfulLyricist profile image
ArtfulLyricist in reply toellilu58

Thanks for the advice ellilu58.

R-OD profile image
R-OD

I have recently had a telephone assessment and have sent in a mandatory reconsideration request! My assessor didn’t misrepresent things I said but did leave things out and discounted so much evidence based on assumptions. Such as no pain clinic involvement, no mental health input no asthma specialist input. Most of the report was copied and pasted under each descriptor, so her report was very repetitive and badly written. Also no cognitive impairment, despite recent diagnosis of ADHD and a report from a medical officer for ill health retirement saying he had witnessed my difficulties saying certain words. I also had a report from a Respiratory Professor stating my asthma is life long and negatively impacts my daily activities but this was discounted because apparently she didn’t hear me wheezing! Best of all I could hold my mobile phone for the whole of the assessment showing I had good grip! My phone was on speaker the entire time next to me!! Also I could name and spell all my medication, well yes because I had the list in front of me as I was advised to do in my letter, I had forgotten my rescue meds and couldn’t remember the name but that wasn’t on the form. There were so many contradictions in her report it was easy to challenge it (in my professional life there was no way I would have signed off that report) I have now received a text to say I should hear within 8 weeks so watch this space. The best advise I can give you is get professional help and get someone to do the assessment with you, as because I did the assessment on my own some of my evidence regarding anxiety and mental health was discounted!!

Scoo1961 profile image
Scoo1961 in reply toR-OD

Hi

Thank you for your information .

I will ask for a home visit

See what happens

My husband will be in

The system is a terrible one I think 🤔

All the best :)

Gardeners131208 profile image
Gardeners131208

No I didn’t even know that they did that! When did you get the text?

Scoo1961 profile image
Scoo1961

Hi

They text me telling me the PiP renewal was starting from the date and I would receive the paperwork ?

Nothing has arrived :(

Still Waiting !

I bet they will stop my money ?

I will ring near the middle if the week

All the best :)

Blearyeyed profile image
Blearyeyed in reply toScoo1961

Do you have a phone number to ring to ask where the form is? It is worth doing so or getting someone to do it for you.I have recently just been awarded PIP after the long phone interview and a second short phone call which I believe was to see if they could catch me out from the final assessor whom organised the payments.

Make sure you tell them that you are reading a copy of the answers you are giving from your firm before answering every question. Take time over your answers and ask them to repeat questions. Give details , even if they are embarrassing or seem small. Don't underestimate your needs or problems.

I got PIP enhanced rate for needs and standard rate mobility. I also have Type 2 Ehlers Danlos, Chronic Migraine Syndrome and Dysautonomia.

My husband filled out the form for me noting that I needed his help.

I was very specific about what I could and could not do.

I followed the guidelines of what they award points for from the Citizens Advice Bureau.

I used the appropriate key words which they are not allowed to ignore.

For example ( key words are in speech marks) : I cannot use an oven or microwave because I have a "risk" of going dizzy , fainting or losing coordination which means it is "unsafe " for me to do this. I have had " accidents" before with hot food because of losing grip on plates or pans so it is " unsafe" for me to carry filled pans. I have a "high risk" of burning myself . It is " dangerous" for me to cook because I get no warning of when these symptoms will effect me.

My husband looks after and organises my medication because it is "unsafe" for me to do so , as I forget to take my medications without being reminded and there is also a" high risk" that I could take more medication at times because I have brain fog and forget I have taken my medications. I cannot look after my own medications because of the "danger " that I could make mistakes that would cause me " harm".

I had a print out of my medical history and current medications from the surgery records.

I sent copies of my letters from the hospital for all of my conditions as evidence and was able to name my diagnosing and current doctor/consultants.

I listed any referrals I was waiting for including things like Occupational Health and Physiotherapy.

Hope you get some news soon , take care , Bee

Fibrofog profile image
Fibrofog

I had a pip phone assessment and they took my mobility money away. The ironic thing is the person was in bed, she was pregnant and got told to stay in bed.

Also my esa was by phone appointment which I haven't heard yet, and I'm getting nervous.

All the best for yours

Scoo1961 profile image
Scoo1961 in reply toFibrofog

Hi

It sounds like the phone assents are not good ?

The nurse or doc on the line is not doing a correct

Job :( .

I will ask for a home visit .

See who I’m taking to ?

I will also record what is said and not say !!

The system seems to be against disabled people :(

Sad to say

I hope you get your ESA

All the best :)

Fibrofog profile image
Fibrofog in reply toScoo1961

Thank you

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