Got the Covid: I got Fibro after have... - Fibromyalgia Acti...

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Got the Covid

dinahdabble profile image
dinahdabble
โ€ข22 Replies

I got Fibro after have Lymes for 10 years undiagnosed. I got the lymes treated in the end but was told to keep well away from Covid. Now I've got the Covid.

If I do get through all this (I'm in the first week) tell the truth, is it likely to make the fibro worse, cause if so, I need to plan ahead for what might happen with regards to a carer or whatever.

Thank you,

My spirits are always up, I was born upside down for some reason. ๐Ÿ˜๐Ÿ‘

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dinahdabble
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LisaSnow profile image
LisaSnowFMA UK Volunteer

Don't assume COVID will make your fibromyalgia worse because what you believe is what will happen to you. The truth is the current COVID variant leads to much milder symptoms. Also if you have had immunization for it, your chance of full recovery is really good. Take extra good care of yourself during recovery and best wishes for a return to the healthiest you.

dinahdabble profile image
dinahdabbleโ€ข in reply toLisaSnow

๐Ÿ‘

dinahdabble profile image
dinahdabbleโ€ข in reply toLisaSnow

Hello, the last message didn't fully appear, sorry. Thank you for that, I am greatful for your quick response, and reasured.

dinahdabble profile image
dinahdabbleโ€ข in reply toLisaSnow

Yes, it seems to be the milder one which is such a relief. I'm keeping positive about the fibro after it is gone. It hasn't been any where near as bad as I expected.

Thank you Lisa.

Elizahl profile image
Elizahl

Sorry to hear you are unwell. Unfortunately covid is unpredictable it affects everyone differently and with different variants it's a case of wait and see. I have had it 3 times forstb2 were bad especially the first 3rd time I didn't even realise I had it at first and wasn't to bad at all. That would of been only a few weeks ago so hopefully you got the milder version. The delta left me with long covid and I've not been right since its 3 years next month but I am here I am alive and glad of it and look to the bright side it may have m3ssed up my studies which I had to give up but I am still here for my kids and they need me. I Hooe you make a speedy recovery just pace yourself and take it easy let it pass โ˜บ

dinahdabble profile image
dinahdabbleโ€ข in reply toElizahl

Thank you for that, I think the point that it affects people differently is very important. I am not getting enough rest at the moment because my husband is bouncing about going "Oh this is nothing" but I'm really feeling ill, and my chores are getting me down, I'm going to put a stop to that and have rest times. Take care too. It sounds like you have a lot to deal with.

Elizahl profile image
Elizahlโ€ข in reply todinahdabble

That is it little and often is the way to go rather than pushing yourself you can and you will get through this it is just another stumbling block along the road take care of yourself the house will be there when you are ready and if the husband is bouncing about let him pick up the slack ๐Ÿคญ

Welshcatlady profile image
Welshcatlady

I shouldn't worry about the Covid, it effects people differently, I had it and didn't even know I did, I had what I thought was a head cold but did a test as we were going to see my sister-in-law who is in her eighties, and it was positive. This was in February 2022. I was concerned because I have COPD and had to shield myself at the beginning of Covid. As it turned out I had no side effects or any problems with my Fibro or COPD. I had had all my jabs so I'm guessing they helped. As others have said the variant isn't so bad anymore, so just look after yourself while recovering.

dinahdabble profile image
dinahdabbleโ€ข in reply toWelshcatlady

Thank you for that, it is all helping to get it into perspective and stop the worries.

dinahdabble profile image
dinahdabbleโ€ข in reply toWelshcatlady

Just noticed your name. I am a Northern Irish Cat Lady. It is lovely to meet another Cat Lady. They mostly sleep on my bed that has a purple fluffy blanket on top, and they are helping with the covid and the Fibro with their gentle warming. The vet said that it was near impossible for them to get it, and that they would most likely only get a very mild cold if they did, so she said to have them on the bed as they will benefit more from the comfort.

Welshcatlady profile image
Welshcatladyโ€ข in reply todinahdabble

That's lovely having them on your bed to keep you comfy and warm. Cats are great company. I don't have any at the moment, the last place I lived I wasn't allowed pets, but I can have them now, the only thing stopping me is we like to go away on holidays and short breaks, so I don't think it would be fair to put them in a cattery often, or even to let a neighbour feed them. So when our travelling days are over which will be in the next few years I think as we both have so many medical conditions the travel insurance is so high, then we will have cats! Hope you are feeling better today. x

dinahdabble profile image
dinahdabbleโ€ข in reply toWelshcatlady

Yes, you are doing the right thing. We are well and truely anchord to this place with the cats. I wouldn't be able to ask neighbours or the like, and I have no family here who could look after them. I imagine you miss having them though. It will certainly be a great settling down thing when you get a cat.

Welshcatlady profile image
Welshcatlady

๐Ÿ˜ป๐Ÿ˜ป๐Ÿ˜ป

Broadfield profile image
Broadfield

I have Fibro and ME. I'm currently into my third week of Covid and have been very poorly, although still positive I'm on the mend. My pain in the first week was criminal and I'm sure I was overdosing on paracetamol!!!! But I have got through it, still on more paracetamol than usual but the pains are easing so I'm not expecting it to continue to this degree and expect to be back to my normal self by at least week five or six. At the moment I'm having a poor day followed by a fair day so the fair day's should increase to be good day's. Or at least that's my hope. Get as much fresh air as you can, I've had windows open and sat in the fresh air when able, I'm sure it's helped, with my spirit if nothing else๐Ÿ˜Š๐Ÿ˜Š

dinahdabble profile image
dinahdabbleโ€ข in reply toBroadfield

Hello, and thank you for the message Broadfield. It sounds like you have had to put up with a lot, and it is good to think about time scales for getting better. Thank you for taking the time to give me a bench mark regarding time scale. I very much hope you will be better by week five, I will try for week five myself.

I am getting the impression that it is a thing were you can get stuck on a plateau, especially if you overdo it. I've found myself doing silly things like not resting when I should, wanting to get back into my normal jobs, saying "no, no, I haven't got a real fever, it's just pain, just the fibro" and mad, silly, stupid stuff that will do me no good at all and never did.

I'm glad fresh air is good and that it helps. Fresh air is quite ubiquitous here, because we are half way up a mountain, looking out to sea facing north. Sometimes I forget that most people have to put up with traffic fumes and poorly ventilated buildings, but I used to get bad asthma from traffic fumes when I lived in the city suburbs. The symptoms could get as bad as my Covid is now. There are days here when it is good enough weather to sit outside, but it's usually rather too bracing for me, better indoors with the window open a little bit.

Anyway, good luck over the next few weeks

Dinah๐Ÿ‘

Broadfield profile image
Broadfieldโ€ข in reply todinahdabble

Hi Dinah, I am also on the coast but it's the south west so not bracing, just heavy, sticky and cloudy๐Ÿ˜‚Today I am negative so if I get another one tomorrow I can go and visit my newest grandson who is almost 3weeks now, I have only seen him through the window, the other two boys give me kisses through the glass.๐Ÿ˜

Today I have energy so I have washed the kitchen floor( long overdue) . Yesterday I did the cupboard doors the day before the work tops. Like you I try so hard not to over do it but after 27years of this some days I say what the heck, I'll sleep it off tomorrow๐Ÿ˜‚

My mother has asthma but she finds the town better for her as the country pollen takes her breath away, she can't even have fresh flowers in her room!!!

Keep positive and enjoy the little things, I bet your view is amazing. Went to the Lake District with my brother in the Spring so we could reminisce over our youth, the scenery is always stunning there. Used to live in Carlisle, my brother worked in Keswick. Happy days๐Ÿ˜๐Ÿ˜

dinahdabble profile image
dinahdabbleโ€ข in reply toBroadfield

I hope you get a negative test tomorrow. You must be so looking to meet the new grandson. Seeing through the glass is one thing, holding the wee chap in your arms is quite another. Have a great time when ever it happens.

Yes, the pollen thing can be awful if that is the allergy. My poor, poor daughter in law suffers horribly if she comes here because of the gorse and the heather. Nothing stops the gorse and heather taking it in turns flowering when ever they like, so we can never plan a true out of season visit.

The view is of the Paps of Dura, Islay, Iona and Elsa Craig. Often they are covered with snow, while we remain green and cheerful, but we have the worst of the midges to contend with through the summer. We get tasted if we try to do anything outside.

Cookie72 profile image
Cookie72

hi how are u feeling now, any relief on your Covid, Iโ€™ve had it twice, second time was the worst and Iโ€™ve had all injections, but I guess if I hadnโ€™t of had them things could have been so much worse , wishing you better soon gentle hugs x

dinahdabble profile image
dinahdabbleโ€ข in reply toCookie72

I'm doing OK Cookie. I'm getting it in waves when I overdo it mostly, and my back and ribs are hurting a lot more, but I am generally relieved it is not as bad as I expected. I had to re-write this message as I think I didn't click the button or something the first time. I guess I am more foggy than normal, but fog is something I can live with, already being a true master of the art of fogginess. ๐Ÿ™„ Thank you for the hugs.๐Ÿ˜€

klr31 profile image
klr31

Maybe take some vitamin D to help your recovery.

dinahdabble profile image
dinahdabbleโ€ข in reply toklr31

Yes, I have been stocked up with Vitamin tablets including D particularly which my son left for me in the drive way. I know Vitamin D is very good, and very commonly lacking if a person can't get outside much. It's not been the best year for sunshine since June ended, but I've been trying to grab any bit of Ultra Violet I can.โ˜บ๏ธ

๐Ÿ‘

dinahdabble profile image
dinahdabble

Oh dear, I was being very positive, honestly, but two days after I tested negative I went down with complications, got pancreatitis, swelling of organs a, blockage and a bile duct leak. I am better now after a spell in hospital.

Non of these things were due in any part to fibro, however, but it is very possible that they were due to the Covid acting on my immune system after 10 years of Lyme disease (which also caused the fibro in the first place). So just in case you have immune problems (or possible ones) watch out for severe pain in your abdomen on the upper left hand side, about a couple of days after you are tested. It wouldn't be like fibro pain, it is too specific, involves a lot of burping etc. and often a blockage, so passing stools would stop. Not at all like fibro, you will easily know the difference even if some symptoms overlap.

Best to let everyone know what to look for, as there is sparse information given for people with immune problems generally, and your not necessarily diagnosed immune compromised before it turns out that the Covid suggests that you are.

Anyway, the hospital knew exactly what to do once I got there, the staff were excellent, and I have made a good recovery, if a little sore around the middle. The fibro is understandably blurred into post Covid fatigue, but I am happy with it progressing now.๐Ÿ™‚๐Ÿ™‚๐Ÿ™‚

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