Bladder symptoms with Endo

[allym92]

Has anyone suffered with bladder pain or symptoms? Do you have any advice on how to ease the pain / symptoms? I'm currently getting bladder instillations but the last 5 months I've suffered chronically with these symptoms and it's totally killing my quality of life

[Moon_maiden]

Hi

You have checked there’s no infection with GP?

Once I had Endo removed bladder issues did improve.

[allym92 in reply to Moon_maiden]

Hey! Ohhhh yeah they thoroughly checked haha. I got like 7 urine tests in 2 months or something outragious!! They did a scope and did see "damage" on the lining of the bladder hence the instillations, but my physio is concerned that even if the damage is fixed it'll still hurt cause it was also confirmed during surgery that there is a spot of endo on the bladder. They removed it but via ablation and that was almost 3 years ago now so I think it has grown back!

[Moon_maiden in reply to allym92]

It could well have done, hopefully not. When did you last have an MRI? Might be useful to check everything.

[allym92 in reply to Moon_maiden]

Last June! But Ive had the experience before that my scan was "clear" but then I got surgery a month later and they found a bunch of endo :') honestly not sure Ireland's scanning equipment is good enough to spot endo a lot of the time!

[Moon_maiden in reply to allym92]

Most scanners are the same, we have a tricky disease 🤦‍♀️🙄

[allym92]

We really do

[Ldn6]

Hello, did you ever get a diagnosis? I'm 3 years post exision surgery (mostly on my bowel) and now getting severe pain when my bladder fills. All urology tests are normal; same situation as before that no endo shows on MRI or ultrasound (but was found previously in surgery). Interested to know if it turned out to be endo on your bladder or any solutions? Thank you.