Urology appointment - Flexible Cystoscopy - Endometriosis UK

Endometriosis UK

70,705 members52,147 posts

Urology appointment - Flexible Cystoscopy

ThinkitsEndo profile image
8 Replies

Hi all

Has anyone been referred to urology for a flexi cystoscopy that turned out fine?

I have been having symptoms since November and eventually the GP said it could be Endometriosis and put me on the mini pill and iron tablets (also have mild anemia). However after follow up urine test, I have been urgently referred to urology due to +++ blood in urine.

Scared because the referral says suspected cancer.

Did anyone have to do this where it came back ok? Would love to hear your experience as I have to wait 2 weeks for my appointment and can’t deal with the anxiety

Written by
ThinkitsEndo profile image
ThinkitsEndo
To view profiles and participate in discussions please or .
Read more about...
8 Replies
XLozX profile image
XLozX

I'm in a similar situation at the moment, any update from yourself?

ThinkitsEndo profile image
ThinkitsEndo in reply to XLozX

My appointment is tomorrow morning, I’ll let you know once I know more.

XLozX profile image
XLozX in reply to ThinkitsEndo

Ok, Good luck x

ThinkitsEndo profile image
ThinkitsEndo in reply to XLozX

Hiya.

Went well today! It was quite quick once they started and I asked to look at the screen.

Thankfully my bladder is all clear but I am being scheduled in for a CT scan just to make sure Kidneys are also ok. The urologist said it’s to rule out everything thing else before discharging me to the Gynae.

AMS_1 profile image
AMS_1

That is Spooky! I am in the same situation in terms of blood in urine on 2 occasions and low ferretin levels. The doc referred me and told me to expect a letter. 2 weeks cancer pathway. I was slightly concerned. He rang today to say report back from urology and long story short highly unlikely to be anything of concern but will have an ultrasound because of the iron levels. Only real way to check is through a cystoscopy but the waiting list is 12 months on the nhs and its up to me as the risks are very low. He said potentially after all that it could come back normal and more likely to be related to diabetes or heart issues. I also have endometriosis and googled it and quite common.So sounds like it's all precautionary to rule it out but in my case and due to pressure on nhs not a high risk percentage wise.

Hope that helps.

AMS_1 profile image
AMS_1 in reply to AMS_1

Good luck tomoz x

ThinkitsEndo profile image
ThinkitsEndo in reply to AMS_1

12 months is crazy long, I was told the same when I first got referred to a GYN.

Thank you for responding. Weird to say but it does help to hear others on the same boat where it turned out ok. Will see how it goes tomorrow x

AMS_1 profile image
AMS_1 in reply to ThinkitsEndo

Wishing you the best xx

You may also like...

Cystoscopy

Hi Has anyone had a Cystoscopy, having this on Friday very nervous. He gave me option of being...

Interstitial Cystitis - Rigid Cystoscopy

I have a rigid cystoscopy tomorrow under general anaesthetic to investigate possible interstitial...

Horrendous flexible sigmoidoscopy

all, a colleague had had one and said it had been fine. I was therfore not prepared for the...

Cystoscopy and laparoscopy the following day?!

I finally have a date for my lap, and then I got a date through the post for a cystoscopy the day...

Post Cystoscopy Excruciating pain and swelling.

see my gp. Has anyone else had this swelling? I usually have bloating with my endometriosis but...