Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for August 2023

decapeptyl

Hi, I was on decapeptyl for over a year… having monthly injections Just wondering if anyone else has had this? I suffered with horrendous joint pain, hot...

Hi, I was on decapeptyl for over a year… having monthly injections Just wonderi...

Pixie1987

•9 months ago

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Sever hip/ back pain endo and cyst

Following emergency surgery 18 months ago for a burst ovarian abscess I am not waiting for surgery for endo as I have a couple of cysts which are staying out...

Following emergency surgery 18 months ago for a burst ovarian abscess I am not w...

Mastiffmum1980

•9 months ago

1 Reply

link between endo and high thyroid antibodies?

hi, does anyone have any experience of having high thyroid antibodies and has this impacted how severe your endo symptoms are ?

hi, does anyone have any experience of having high thyroid antibodies and has th...

H4PP1

•9 months ago

4 Replies

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Pain, fatigue

Hi, just wondering if anyone gets pain near the chest area, between belly button and breast bone and if that could be endo pains, I don't know how to describe...

Hi, just wondering if anyone gets pain near the chest area, between belly button...

Clay90

•9 months ago

6 Replies

Dealing with flares

Hi all, I've had endometriosis for about 10+ years, got diagnosed quite young(18) after 4 years of back and forth. I have had 3 laparoscopys and have been on...

Hi all, I've had endometriosis for about 10+ years, got diagnosed quite young(18...

Chifie

•9 months ago

3 Replies

repeat surgery?

hello! Just wondering if anyone has had repeat surgery to treat their endo? I had my first one in 2021 and then started IVF so pregnancy stopped my periods and...

hello! Just wondering if anyone has had repeat surgery to treat their endo? I ha...

ZiggyandBC

•9 months ago

3 Replies

Ectopic Pregnancy & Endo

so this isn’t really a question, more of an awareness post - I have endometriosis and had investigative surgery in June last year, where they found a lot of...

so this isn’t really a question, more of an awareness post - I have endometriosi...

B4196

•9 months ago

3 Replies

IUD and bradycardia

hi my daughter in law (26yr) had an IUD placed in early June. She now has bradycardia and suffered a terrible fainting episode. Hospital said she has vagal...

hi my daughter in law (26yr) had an IUD placed in early June. She now has brady...

Mneutz

•9 months ago

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Partner leaving

Hi all, just a abit if guidance needed, I went threw medically induced menopause last year for endo stage 4, which we all no brings your moods high and low, so...

Hi all, just a abit if guidance needed, I went threw medically induced menopause...

Stage4endogirl

•9 months ago

2 Replies

post hysterectomy issues?

I’ve just had a total hysterectomy because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never...

I’ve just had a total hysterectomy because I had cancer. The surgeons assistant ...

Kazzacupcake

•9 months ago

3 Replies

Feeling Lost and Frustrated

Hi all, Long time reader of the forum but first time poster. I was wondering if anyone had been in a similar situation and could provide any advice. My...

Hi all, Long time reader of the forum but first time poster. I was wondering i...

jadielane92

•9 months ago

10 Replies

bloating

I experience bloating but I haven’t noticed any distension except very rarely? Is this normal for endo because I see a lot of people getting “ endo belly/...

I experience bloating but I haven’t noticed any distension except very rarely? I...

Luna-rat

•9 months ago

1 Reply

Fluid and Cyst in Endometrial Canal

Hi Everyone, I hope that you might be able to help me and maybe put my mind at ease. I went for an Ultrasound last week, and the doctor saw that I have...

Hi Everyone, I hope that you might be able to help me and maybe put my mind a...

Snad

•9 months ago

1 Reply

Blue badge question

Hello fellow endo sufferers, I was wondering if any of you know if we are entitled to any help/support in any way. Including blue badge? I have sever endo...

Hello fellow endo sufferers, I was wondering if any of you know if we are enti...

KlP28

•9 months ago

6 Replies

Lap appointment- scared and changed my mind on mirena coil??

Hi lovely ladies, I finally have my lap appointment next week. I am scared, hoping I might get some answers but worried they won’t find anything and I will be...

Hi lovely ladies, I finally have my lap appointment next week. I am scared, hopi...

SJ0514

•9 months ago

3 Replies

what to do...

I am currently on a waiting list for a laparoscopy which could be years on end... I have been experiencing this pain for 6 years now :(( The NHS have made me...

I am currently on a waiting list for a laparoscopy which could be years on end.....

PurpleDragonfruit

•9 months ago

3 Replies

pre lap care (long post)

I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on a 2 year wait list for laparoscopy surgery after 8 nearly 9 years of waiting...

I haven’t had my endometriosis confirmed by lap yet, I’m awaiting mri and I’m on...

Luna-rat

•9 months ago

5 Replies

Hot flushed Post GNRH analogues

Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune...

Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having in...

Awwy

•9 months ago

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Endo history lesson!!!!

On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was...

On a bored afternoon today, i thought i'd look up when Endo was first diagnosed....

valgal76

•9 months ago

1 Reply

Appointment at Endo Clinic - should I attend

Hi everyone. Hope you are all feeling as well as possible. Feeling like a fraud at the moment. I have been waiting well over a year for my first appointment...

Hi everyone. Hope you are all feeling as well as possible. Feeling like a frau...

Sandygirl6697

•9 months ago

24 Replies

How long off work is needed? Laparoscopy booked in

hi there. I am due to have my first laparoscopy on 20th September. I’m nervous about how long I will need off work and also loss of pay. Can someone...

hi there. I am due to have my first laparoscopy on 20th September. I’m nervous...

Rosiehannah1

•9 months ago

8 Replies

finally being heard!!

Been struggling with my Endometriosis since 2016. Was told for years it was just a bad period, then after many ultrasound scans, pelvic examinations & surgery...

Been struggling with my Endometriosis since 2016. Was told for years it was just...

LLC88

•9 months ago

1 Reply

Lindle Facebook group

Hi everyone, someone told me there is a Facebook group by "Lindle" full of experiences of surgeries and doctors, but I can't find any Lindle here, nor the...

Hi everyone, someone told me there is a Facebook group by "Lindle" full of exper...

Alidian

•9 months ago

2 Replies

Still looking for a specialist

Hi to everyone, it is the second time I write in this group. Sorry to bother. After a very unsuccessful surgery with a very poor skilled surgeon (sadly I didn...

Hi to everyone, it is the second time I write in this group. Sorry to bother. Af...

Alidian

•9 months ago

2 Replies

2 mirena coils for Adenomyosis?

I had my laparoscopy last week. They couldn't find endo but did say I had a globular uterus, which is indicative of Adenomyosis. I'm not surprised as all the...

I had my laparoscopy last week. They couldn't find endo but did say I had a glob...

Mindfullness4791

•9 months ago

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Feeling like a failure as a women

44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was brilliant fir about 18 months, I was actually living life after suffering with...

44 years old, had hysterectomy at 39 kept cervix and ovaries, everything was bri...

Nubian28

•9 months ago

2 Replies

MiniPill and Bleeding

Hi, I just wondered if anyone else has experienced this or can advise on what to do? It is suspected that I have endometriosis, to try help improve things for...

Hi, I just wondered if anyone else has experienced this or can advise on what t...

Amy_P_1996

•9 months ago

17 Replies

MiniPill and Bleeding

Hi, I just wondered if anyone else has experienced this or can advise on what to do? It is suspected that I have endometriosis, to try help improve things for...

Hi, I just wondered if anyone else has experienced this or can advise on what t...

Amy_P_1996

•9 months ago

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Endo/cyst on the kidney after MRI - could this happen to you?

Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test...

Hi ladies! The results came in for the first MRI (still waiting for the results ...

Endosufferer1

•9 months ago

6 Replies

Ovarian mass

Just diagnosed with a multiocular cystic structure in the right ovary extending to 7.0 x 5.6 cm. The anterior most component is made of several small size and...

Just diagnosed with a multiocular cystic structure in the right ovary extending ...

Ova104

•9 months ago

17 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2023

decapeptyl

Sever hip/ back pain endo and cyst

link between endo and high thyroid antibodies?

Pain, fatigue

Dealing with flares

repeat surgery?

Ectopic Pregnancy & Endo

IUD and bradycardia

Partner leaving

post hysterectomy issues?

Feeling Lost and Frustrated

bloating

Fluid and Cyst in Endometrial Canal

Blue badge question

Lap appointment- scared and changed my mind on mirena coil??

what to do...

pre lap care (long post)

Hot flushed Post GNRH analogues

Endo history lesson!!!!

Appointment at Endo Clinic - should I attend

How long off work is needed? Laparoscopy booked in

finally being heard!!

Lindle Facebook group

Still looking for a specialist

2 mirena coils for Adenomyosis?

Feeling like a failure as a women

MiniPill and Bleeding

MiniPill and Bleeding

Endo/cyst on the kidney after MRI - could this happen to you?

Ovarian mass

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