Pain, fatigue

[Clay90]

Hi, just wondering if anyone gets pain near the chest area, between belly button and breast bone and if that could be endo pains, I don't know how to describe it but the pain can be very strong and last days or hours at a time.

Also I feel like my symptoms are getting worse. I get random waves of extreme fatigue which I didn't used to get (could fall asleep sitting up on couch) , feel nauseous/headaches all the time, faint, sometimes pain when I eat etc and just generally always feeling ill. Is it worth speaking to docs as I'm on a waiting list to be seen at an endo specialist hosp but that could take a year. I just feel like docs/hosp are useless when I'm not having physical symptoms they can see. I've been before last year and been told it's not an emergency and could be anxiety and ibs 🙄Thanks

[1Poppy1234]

I have pains like a tight band around my breast bone too on and off takes your breath a bit. I have Adenomyosis too I'm waiting for a biopsy and hystoscopy they've tried twice without anaesthetic but now waiting for a general and mirena replacement too. Nothing helps with the pain does it. I'm bleeding lightly but continuously despite having the decapeptyl jabs.

[Moon_maiden]

Hi

I get that, all across the diaphragm but I’ve been told no Endo. I find the angina spray can help as it opens up the blood vessels.

I’m seeing gastro face to face this afternoon, see what he says. (That’ll be fun as I’ve accused him of gaslighting me this year 🤣🤣)

I’ve also had gallbladder removed which reduced some of it.

[Moon_maiden]

PS

Ask your GP to make it more urgent, you might get seen quicker

[Avourneen]

It could be diaphramic endo, it is a waste of time seeing a GP you will need to see and endo specialist. bUt it could be something much less serious I have really bad stage 4 endo and had this problem and it turned out I had a small hernia in this area , but gallstones or problems with the pancreas can cause this. Gallstones are more common if you have endo making too estrogen for a long time can cause them.

I'd suggest go to a GP and ask to see a gastroenterologist tey can pita tube down and see if it is just something with the stomach. If it's not gallstones, pancreas, hernia etc then itcould be endo in the diaphragm.

Diaphramic endo is quite unusual so it probably isn't that and it usually causes pains in the back/shoulders/breating problems. Get the more likely causes checked out first. Don't be fobbed off the GP will probably say it is GERD without looking into the causes so you will need to insist on a referral. good luck.

[Clay90]

Thank you all for responding

[Hayleyyg123]

I’ve never heard of anyone having this as well! I get the worst pained above my belly button and between my breast bones. I have a lap 2.5 years ago and removal of and I lower down but they found nothing higher up where the actual pain is. I have nausea more often than not as always feel generally unwell. It’s draining. I am due to see the endo specialist in oct and will be bringing up the pain again. Would love to know if you find any answers