Endo/cyst on the kidney after MRI - could this happen to you?

[Endosufferer1]

Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead to kidney failure (but it is said to be rare). Did anyone of you check their kidney health? Did they find endo near or on your kidney (cysts or lesions)?

I do drink a lot of water and follow specific diets for endo. My kidney where you've got the cyst sometimes hurt after a short walk and if it's not the kidney it's the ovary on the same side!

Any advice about specific diets/plants for cysts on kidneys would be appreciated and anything else you can share with me. 🙏💓

[Coral07]

Hi I’m so sorry your going through this is sounds like hell💔I myself don’t have endo on my kidney but I’ve been doing a lot of research on it as I’m having similar pain, it’s said to be very rare but when you look there is quite afew cases of it! There is the worlds leading endo surgeon on tick tok called Dr Camrann Nezhat MD and he speaks alot on renal endo deffo have a look at his page you will get alot from him!! Sending my love you to❤️‍🩹🤍🤍🤍

[Endosufferer1 in reply to Coral07]

Thank you!!! I will 💖💖😃😃

[K2023]

Hi, I have recently had surgery due to Deep infiltrating Endo.A significant Mass had obstructed my left kidney ureter by the time I had the MTD operation it had spread to the right ureter.Crazy to say I’m now on another waiting list for a check up scan to see how the left kidney is as it was always swollen before the operation .Through my journey over the last two years ,the urologists aren’t that clued up on endometriosis so they pass the book to Gynaecologist who then passes you back to urology.Throughout the waiting time I had a lot of scans CT MRIs and nucleus scans ,the nucleus’gave a clear view of wether the kidney is functioning or obtaining any damage As for diets I just drank plenty of water stopped drinking alcohol and ate a balanced diet to keep any strain of the kidneys.I always had pain inthe flank area and left groin I used to get pins and needles inthe whole area ,pain under left rib I used to think my kidney was being squashed because that’s what it felt like.Have they done kidney function test on you ? And any scans with Urology department ?

[Endosufferer1 in reply to K2023]

Hi! Thanks for your reply! No, they've done nothing regarding the kidneys. Have booked an appointment with an urologist regarding this matter. Same symptoms as you!

[megiiva]

Hi , as seeing your stories wanted to share mine. I have same simptoms re kidneys like you,deep psin constant and move down to the bladder Urolosaid is not the kidneys as nothing showed on the Ultrascan and the urine test apart from blood in my urine. Because of that I will be having cystoscopy in the beginning of October fingers crossed. R3: gynecologist who done my Endometriosis operation back in April ( stage 4) ordered MRI in the pelvic area to see...again to me looks like the kidneys but the urologist said that even do the psin is there if nothing showed on the scan and the urine the is not from there naybe a herve He said and obviously that's why I have gone to the gynecologist. Confused too but waiting on this coming procedures to find out. If the Endometriosis has returned so soon...push for more tests if you can. Xx

[Endosufferer1 in reply to megiiva]

👍 keep me updated💞