Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,503 members • 52,450 posts

All posts for January 2023

Hospital letter saying I may be offered surgery at other hospital

Hi Apologies in advance for long post. I had surgery at the endometriosis centre in Aberdeen for stage 4 recto-vaginal endo in 2019. This is not my local NHS...

Hi Apologies in advance for long post. I had surgery at the endometriosis centr...

ferns80

•1 year ago

2 Replies

CA125 45

Hi, I'm still on my journey for diagnosis, have received my pelvic ultrasound back which had nothing abnormal about it. My blood test came back with CA125 at...

Hi, I'm still on my journey for diagnosis, have received my pelvic ultrasound b...

hobbitty

•1 year ago

2 Replies

Living with endo

Hi guys i was diognosised in 2009 with endremetosis have had 4 laporoscopys had the depo for 5 years which i feel also affected me i came off middle of last...

Hi guys i was diognosised in 2009 with endremetosis have had 4 laporoscopys had ...

Lauraeliza77

•1 year ago

2 Replies

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booking private Pelvic MRI

I am terrified the NHS said no to MRI for endo as my he believes it is psychological and all in my head. I am terrified that I will get this scan and...

I am terrified the NHS said no to MRI for endo as my he believes it is psycholog...

Littlebug77

•1 year ago

17 Replies

pelvic pain post op

hello, I was just wondering if anyone suffered with really horrible pelvic pain after surgery. They removed a cyst from my right ovary during excision...

hello, I was just wondering if anyone suffered with really horrible pelvic pa...

Ecclesiastical

•1 year ago

1 Reply

anyone feel the same?

I have severe pain on day of my period since I was 9 years old. My pain grew worse over the years and now it’s so bad that I need morphine when I have my...

I have severe pain on day of my period since I was 9 years old. My pain grew wor...

Hazel_Eyes

•1 year ago

3 Replies

36 days and still no period...

Hi all, I'm 36 days into my cycle but still no period! This is the first time this has ever happened to me before; I'm ususally regular (26-28 days,...

Hi all, I'm 36 days into my cycle but still no period! This is the first time...

Beautyintheordinary

•1 year ago

2 Replies

New research post

Read this in Guardian. Looks like a small USA study......

Awwy

•1 year ago

6 Replies

Does this sound like endometriotis

Hi everyone, I just joined today so apologies if I’m doing it wrong or post anything in too much detail! For a few years now I have been suffering with the...

Hi everyone, I just joined today so apologies if I’m doing it wrong or post anyt...

Roo18

•1 year ago

3 Replies

Changing coils?!

Hi everyone, I have recently been diagnosed with endometriosis and a cyst on my ovary. I am currently on the copper coil (I have had no issues with this), and...

Hi everyone, I have recently been diagnosed with endometriosis and a cyst on my ...

stargirl556

•1 year ago

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Anyone with the same experience?

hi all, I have been having severe pain during periods since I was 9. My pain is so severe that I need morphine on the first day of my period. I recently got...

hi all, I have been having severe pain during periods since I was 9. My pain i...

Hazel_Eyes

•1 year ago

2 Replies

Between endometriosis and trying

I have been diagnosed with endometriosis for five years. I had two laporoscapies, one in 2017 and the second in 2020. I got married in May, and thinking that...

I have been diagnosed with endometriosis for five years. I had two laporoscapies...

joypa

•1 year ago

2 Replies

coil advise

hey me again, i had my endo review and honestly it didn’t go how i thought. so they have said to go in the coil or have surgery, which i was told i was...

hey me again, i had my endo review and honestly it didn’t go how i thought. ...

ashleytt

•1 year ago

3 Replies

finding support

Hi everyone, I wondered if I was the only one that feels this way… I’ve only recently been given a preliminary diagnosis for endometriosis at the beginning...

Hi everyone, I wondered if I was the only one that feels this way… I’ve only ...

ThisOnesForMe

•1 year ago

4 Replies

Jobs that work for you?

This is my first post, I'm feeling really low and have finally decided to reach out for help. I wanted to ask how you manage to work? I struggle to function...

This is my first post, I'm feeling really low and have finally decided to reach ...

OrangeOctopus

•1 year ago

4 Replies

Whats the wait for laproscopy in your areas currently? Experiences of having a laproscopy privately - any advice

Hi Everyone, this is the first post I've made so I'll try to explain myself as best I can... I'll give you a brief history... I've had chronic pelvic pain and...

Hi Everyone, this is the first post I've made so I'll try to explain myself as b...

HT267

•1 year ago

25 Replies

should I get laparoscopy?

I have a 4 cm cyst on my left ovary and have been ttc for more than 2 years with no luck! Ivf cycle failed. Should I get cyst removed? Will this improve my...

I have a 4 cm cyst on my left ovary and have been ttc for more than 2 years with...

Ash1417

•1 year ago

10 Replies

Endo with no period

I take the contraceptive pill and have no periods but every month a few weeks before what would be my period week, I get very emotional, pain in my ovaries (I...

I take the contraceptive pill and have no periods but every month a few weeks be...

Katiahead

•1 year ago

9 Replies

Restless legs

Hi All Does anyone else get restless legs with their endo? I'm on a 6 week wait for a gp appointment to discuss this so thought I would check if anyone else...

Hi All Does anyone else get restless legs with their endo? I'm on a 6 week wait...

Katiahead

•1 year ago

5 Replies

Pad problems post laproscopy cysectomy

I have my lap 2 weeks okay and started my period on Wednesday (4 days earlier than I was due on) my consultant said no tampons for my first period but the pads...

I have my lap 2 weeks okay and started my period on Wednesday (4 days earlier th...

laurajane32

•1 year ago

3 Replies

Feeling a little lost and alone...trapped gas and a few questions if anyone can help

Hi everyone, I don't usually write when I feel this bad. I'm sorry that its a negative post. Just feeling very alone, overwhelmed, mixed up and really down...

Hi everyone, I don't usually write when I feel this bad. I'm sorry that its a ...

TinyRoo

•1 year ago

6 Replies

Sick of waiting

I am so sick of waiting i have been on the waiting list since January 2022 for a hysterectomy and have had no news of any dates yet and the average is meant to...

I am so sick of waiting i have been on the waiting list since January 2022 for a...

Hidden

•1 year ago

21 Replies

Do I have endo?

Hi everyone. I went to the hospital today after having experienced extreme cramps and bleeding for about 6 months and my GP referred me for a scan. They told...

Hi everyone. I went to the hospital today after having experienced extreme cramp...

stargirl556

•1 year ago

3 Replies

Smear finding abnormal cells

I did my smear test in august and when I got the results back it said I had abnormal cells and HPV. I was wondering if the abnormal cells would be the endo...

I did my smear test in august and when I got the results back it said I had abno...

AshleySara24

•1 year ago

1 Reply

Blood test results: raised white blood cells, neutrophils and monocytes and low TSH

Hi all, I had a blood test recently and my white blood cells, neutrophils and monocytes are raised. Has anyone experienced this? Is this just part of endo or...

Hi all, I had a blood test recently and my white blood cells, neutrophils and m...

ELK24

•1 year ago

1 Reply

A long post - How medication was ruining my life, not making me better! Reassurance for anyone concerned about stopping medication.

Hi ladies. A very Happy New Year to you all! I am hoping that 2023 treats you all with improved health and a wealth of happiness. I have seen a lot of posts...

Hi ladies. A very Happy New Year to you all! I am hoping that 2023 treats you al...

Hidden

•1 year ago

7 Replies

unsure of what to do next

Hello everyone, After some advice from you lovely ladies , really unsure and a bit worried, so a bit of a back story … sorry long winded I know. I was...

Hello everyone, After some advice from you lovely ladies , really unsure and ...

Yupithurts

•1 year ago

6 Replies

Endometriosis and Smear Tests

Hi guys. Quick question - I’ve been invited for a cervical smear test. I had my laparoscopy about 8months ago. I was just wondering if it’s ok to have a...

Hi guys. Quick question - I’ve been invited for a cervical smear test. I had my...

R_elep

•1 year ago

15 Replies

Should I go on Prostap/Zoladex?!

Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due...

Hi, A very complex question, I know, but one that’s been eating me up since I h...

Louisehart1995

•1 year ago

8 Replies

In support of our southern Endo Warriors and their friends and families... LONDON WINTER WALK!

Families are welcome, there’s a free winter bobble hat & neck buff, rest stops with snacks, with a special medal and hot food at the finish. Whether it’s to...

Families are welcome, there’s a free winter bobble hat & neck buff, rest stops w...

TogetherWeAreStrong

Endometriosis UK•1 year ago

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2023

Hospital letter saying I may be offered surgery at other hospital

CA125 45

Living with endo

booking private Pelvic MRI

pelvic pain post op

anyone feel the same?

36 days and still no period...

New research post

Does this sound like endometriotis

Changing coils?!

Anyone with the same experience?

Between endometriosis and trying

coil advise

finding support

Jobs that work for you?

Whats the wait for laproscopy in your areas currently? Experiences of having a laproscopy privately - any advice

should I get laparoscopy?

Endo with no period

Restless legs

Pad problems post laproscopy cysectomy

Feeling a little lost and alone...trapped gas and a few questions if anyone can help

Sick of waiting

Do I have endo?

Smear finding abnormal cells

Blood test results: raised white blood cells, neutrophils and monocytes and low TSH

A long post - How medication was ruining my life, not making me better! Reassurance for anyone concerned about stopping medication.

unsure of what to do next

Endometriosis and Smear Tests

Should I go on Prostap/Zoladex?!

In support of our southern Endo Warriors and their friends and families... LONDON WINTER WALK!

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