Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,012 members • 52,268 posts

All posts for January 2023

At my wits end and no idea what I'm supposed to do

Happy New year all. I'm living in Ireland and officially diagnosed with stage 4 endometriosis on bladder and rectum since 2018. I'm a qualified QQI Level 5...

Happy New year all. I'm living in Ireland and officially diagnosed with stage 4 ...

Escapologygirl

•1 year ago

23 Replies

painful bowel and urination

does anyone experience painful/severe bowel movements or peeing after it has occurred. due to medication I am always backed up on prunes and laxatives or have...

does anyone experience painful/severe bowel movements or peeing after it has occ...

Littlebug77

•1 year ago

4 Replies

Employment

Hi all. I'm really at my wits end at the moment. I was diagnosed 2 years ago, received ablation surgery then and the last few months have been horrible and...

Hi all. I'm really at my wits end at the moment. I was diagnosed 2 years ago, re...

RebeccaDawn

•1 year ago

1 Reply

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Want to come off zodalex

I have been on zodalex for seven months when it was originally meant to be three and although they have said I can be on it until my operation a lot of people...

I have been on zodalex for seven months when it was originally meant to be three...

Hidden

•1 year ago

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Top tips for RECOVERY

Hello all, I’m due to have a partial hysterectomy and bowel resection in mid Feb. I know that so many factors can affect how long it takes to recover, but...

Hello all, I’m due to have a partial hysterectomy and bowel resection in mid ...

PaintToughTed

•1 year ago

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How can I check if I'm already on the waiting list for surgery?

Question in the title really. I recieved a summary letter from the hospital stating I will be put on the waiting list for the surgery but how can I actually...

Question in the title really. I recieved a summary letter from the hospital stat...

zytajones

•1 year ago

4 Replies

Feeling miserable

I’ve just recovered from a serious two month flare up after a miscarriage and now I’ve dislocated my knee 😫 (on NYE). I’ve already had surgery on the other...

I’ve just recovered from a serious two month flare up after a miscarriage and no...

Tropic

•1 year ago

2 Replies

Pain & Endo

I have been diagnosed with mild - moderate endometriosis 2 years ago and recently I think my symptoms have gotten worse. Can I ask what are the common...

I have been diagnosed with mild - moderate endometriosis 2 years ago and recentl...

Kneesocks22

•1 year ago

7 Replies

weight issues😭

hey, i’m really suffering with not being able to lose any weight st all - nothing seems to be working for me, in the past 5 years i’ve tried from, slim...

hey, i’m really suffering with not being able to lose any weight st all - no...

ashleytt

•1 year ago

4 Replies

Diagnostic lap with excision and ureteric stent - what to expect

Hi everyone. I am due to have a lap on Monday - my MRI previously showed endo on my bowel, bladder, uterolsacral ligaments and other places, so they will be...

Hi everyone. I am due to have a lap on Monday - my MRI previously showed endo on...

StrictlyEndo

•1 year ago

1 Reply

Haemaglobin raised is this a side effect of zodalex?

My haemaglobin was raised on the last blood test, the drs want me to do another test in two to three weeks I normally when I have periods have relatively low...

My haemaglobin was raised on the last blood test, the drs want me to do another ...

Hidden

•1 year ago

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Gynea referral wait time?

Quick question ladies: how long did you wait for your first gynea appointment? Thank you in advance 💜

Quick question ladies: how long did you wait for your first gynea appointment? ...

Heartof3

•1 year ago

9 Replies

Zoladex Misfire

Hi, Has anyone ever experienced a misfire? So I had my injection on 28th Dec and have been feeling so bad since, I have fainted 3 times in less than 2 weeks!...

Hi, Has anyone ever experienced a misfire? So I had my injection on 28th Dec an...

TJ2021

•1 year ago

9 Replies

Pregnancy & endometriosis

Hey everyone, I found out that I am pregnant a few days ago which I am over the moon at (I was told I would find it difficult as i had an ovarian cyst removal...

Hey everyone, I found out that I am pregnant a few days ago which I am over the ...

Booknerd1598

•1 year ago

3 Replies

How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?

Hi, How soon after coming off injection can I expect to get a period? Also wondering at what point did you stop HRT ?

Hi, How soon after coming off injection can I expect to get a period? Also won...

Amber83

•1 year ago

8 Replies

Reaction to surgical glue, laparoscopy

I’m a week post lap, and I have small itchy spots at the edge of the surgical glue circles. It’s been 7 days so I doubt it’s an allergic reaction but it’s...

I’m a week post lap, and I have small itchy spots at the edge of the surgical gl...

Luna-24

•1 year ago

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Endo specialist waiting times at Guildford

Just wondering if anyone was reffered to Guildford hospital endo specialist and how long did you have to wait for first appointment with specialist?

Just wondering if anyone was reffered to Guildford hospital endo specialist and ...

me94

•1 year ago

2 Replies

Has anyone had a prolapse? I feel so fed up, it's never ending

Hi ladies, 3 years ago I had a prolapse repair. I am currently waiting for a hysterectomy to stop my Adenomyosis pain. Now I have another prolapse. I can...

Hi ladies, 3 years ago I had a prolapse repair. I am currently waiting for a ...

Heartof3

•1 year ago

8 Replies

What now?

So I had my post surgery appointment with my specialist a few weeks ago, I've been trying to digest what he said...but honestly I feel so deflated and like I'm...

So I had my post surgery appointment with my specialist a few weeks ago, I've be...

CryBaby91

•1 year ago

17 Replies

Pelvic Scar Tissue and Adhesion but Negative Lap?

Hi all, I had my first lap yesterday and the staff were amazing. Luckily I don't have that dreaded shoulder pain! My surgeon came in while I was still very...

Hi all, I had my first lap yesterday and the staff were amazing. Luckily I don'...

MadameToad

•1 year ago

4 Replies

Worried about spontaneous bleeding while on Zoladex

I’ve been on Zoladex since October and up until this month I have been pain free! I had my last injection 2 weeks ago and a couple of days ago I started...

I’ve been on Zoladex since October and up until this month I have been pain free...

Hfm89

•1 year ago

9 Replies

Still not on Lap waiting list, could a MRI (private or NHS) help confirm endometriosis?

Hi everyone, I was told nearly a year ago after 10+ years of advocating for a lap that I would finally be put on the waiting list. I have just found out the...

Hi everyone, I was told nearly a year ago after 10+ years of advocating for a l...

MoominBabe92

•1 year ago

4 Replies

Nonexistent Periods

I had a GNRH injection in July and still haven’t had a period, is this normal? I did have my endometriosis surgery in late November, but expected my periods to...

I had a GNRH injection in July and still haven’t had a period, is this normal? I...

Aardvarks

•1 year ago

2 Replies

Anaemia

Has anyone with Endo also been diagnosed as anaemic? Wondering whether it's linked due to the blood loss or a separate issue all together!

Has anyone with Endo also been diagnosed as anaemic? Wondering whether it's link...

Theodora2016

•1 year ago

14 Replies

Sciatica and endometriosis? Also, what is that lump?!

Hello everyone! This is going to be a long post, so apologies for that! I'm after some information and advice re possible endometriosis and sciatica so I'll...

Hello everyone! This is going to be a long post, so apologies for that! I'm afte...

Tealandgold

•1 year ago

10 Replies

Superficial Endometriosis- conflicting advice!

Happy New Year Everyone! Advice needed if anyone also has superficial endometriosis? I have had conflicting advice. End of September I had a clear MRI...

Happy New Year Everyone! Advice needed if anyone also has superficial endomet...

Circe3

•1 year ago

4 Replies

HRT Help.

Anyone going through Chemical Menopause due to Endometriosis? I’ve not yet started HRT but feel I need to!!! Any advice welcome from a sweaty, hot flushing...

Anyone going through Chemical Menopause due to Endometriosis? I’ve not yet start...

Marshkat

•1 year ago

5 Replies

IUD removal with general anaesthetic

Hi! I have been living with suspected endometriosis since I was 14. Flooding, heavy periods and intense stomach and back pain have plagued my life. In 2020 I...

Hi! I have been living with suspected endometriosis since I was 14. Flooding, h...

MoominBabe92

•1 year ago

5 Replies

feeling deflated- chronic pain

Hello to all my fellow endo warriors! Just having a bad day feeling really low and depressed about dealing with chronic pain every single day despite being...

Hello to all my fellow endo warriors! Just having a bad day feeling really lo...

SK2021

•1 year ago

2 Replies

Can you relate?

I’ve just signed up and written my bio, and wondered if there were ppl here that can relate? I’ll copy and paste it below :) From when I started my period...

I’ve just signed up and written my bio, and wondered if there were ppl here that...

BrightonDawnTreader

•1 year ago

14 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2023

At my wits end and no idea what I'm supposed to do

painful bowel and urination

Employment

Want to come off zodalex

Top tips for RECOVERY

How can I check if I'm already on the waiting list for surgery?

Feeling miserable

Pain & Endo

weight issues😭

Diagnostic lap with excision and ureteric stent - what to expect

Haemaglobin raised is this a side effect of zodalex?

Gynea referral wait time?

Zoladex Misfire

Pregnancy & endometriosis

How soon after stopping Zoladex, prostap etc did you get your period ? And how soon after stopping did you stop using HRT?

Reaction to surgical glue, laparoscopy

Endo specialist waiting times at Guildford

Has anyone had a prolapse? I feel so fed up, it's never ending

What now?

Pelvic Scar Tissue and Adhesion but Negative Lap?

Worried about spontaneous bleeding while on Zoladex

Still not on Lap waiting list, could a MRI (private or NHS) help confirm endometriosis?

Nonexistent Periods

Anaemia

Sciatica and endometriosis? Also, what is that lump?!

Superficial Endometriosis- conflicting advice!

HRT Help.

IUD removal with general anaesthetic

feeling deflated- chronic pain

Can you relate?

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