Does this sound like endometriotis

[Roo18]

Hi everyone, I just joined today so apologies if I’m doing it wrong or post anything in too much detail! For a few years now I have been suffering with the following symptoms.

Deep pain in lower stomach during intercourse

Really painful ovulation

Pain when having a bowel movement. Mainly when I’m on my period but sometimes when I’m not too

Shooting type pains down below and bum Heavy bleeding from behind during a period

Apologises again if too much info🫣 I had an internal scan and received a letter today saying I have something called a endometriotic cyst on my right ovary. I have been referred to a gynaecologist who I see on the 24th. Does this sound like endometriotis? Thank you

[hellybaybee]

could be, go to your doctor. If you’re in the U.K., they will have a process you need to go through - they will probably put you on the pill first, then give you heavy duty pain relief then scans then a laparoscopy. DONT STOP AT THE SCANS, GET THE LAP! They will often try to brush you off at the scan stage but a laparoscopy is the only way to diagnose endometriosis.

[BloomingMarvellous in reply to hellybaybee]

While laps are fabulous in the right hands for diagnosing endo and adenomyosis where scans of the right calibre by fully qualified sonographers at specialist centres are carried out they are now regarded as suitable for diagnosis. Lindle - on here - has a host of information regarding this . It’s an area of controversy because often that level of scanning isn’t available at initial scans but only at a post diagnostic stage ( I know - talk about a ridiculous situation…) . There are those around qualified to do such scans so do your homework and know what you’ve got your hands on.

[Jem33]

It could be.

My best advice is to do as much research about endo as you can before your appointment. Take notes/questions with you and don’t be afraid to take your time and ask them all. Look at all the treatment options others have tried on here as well some of their stories have gobsmacked me but have given me knowledge on what to ask even if they are not suitable options for you at least you are ruling them out and not left questioning ‘will that work for me’.

I was undiagnosed for 11 years told my pain was unexplained and unrelated symptoms to then be dumbfounded at a gynaecologist appointment because they found one cyst at an ultra/transvaginal ultrasound. Turns out I had cysts on both ovaries and they have pulled my ovaries back and fused to my bowel. (Diagnosed through an MRI) I’ve only just started treatment in November ‘22 so don’t have as much experience of this stage as the other ladies but reading what they have to say and doing my own research has given me the tools/knowledge I need for my next appointment.

Stay strong and question everything. Don’t be fobbed off at any stage because I feel like diagnosis/treatment for me earlier might have stopped the extra complications with my bowel and years of this pain. It takes so long to receive a diagnosis for varying factors and it seems it’s hard to diagnose because it displays similar to other conditions but if you bring it up then it can either be confirmed or denied for you.

Good luck! X