Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,493 members • 52,981 posts

All posts for March 2019

I'm still in a daze...feeling lost

Hello everyone, I was diagnosed with stage 4 endo and possibly frozen pelvis about 5 months ago. I had what turned out to be an exploratory laparotomy, since...

Hello everyone, I was diagnosed with stage 4 endo and possibly frozen pelvis ab...

J3zzy

•6 years ago

1 Reply

HRT & DEPO PROVERA & Gn-RH what’s the diffrece what’s best?

Hey guys, does anyone have experience with either of these injections or all? Does anyone know the science behind them and how do they affect fertility? What...

Hey guys, does anyone have experience with either of these injections or all? Do...

Hannah0091

•6 years ago

2 Replies

Struggling on painkillers

Hi all, I’ve been diagnosed with endo for a few years now and have been managing the symptoms with different painkillers. At the moment due to work being so...

Hi all, I’ve been diagnosed with endo for a few years now and have been managing...

HannahElsie

•6 years ago

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Can the mirena coil help endo fatigue? Feeling desperate.

Hi ladies, I'm at my wits end. Endo fatigue is taking over my life. I've been signed off work for the past five weeks and can't see an end to the severe...

Hi ladies, I'm at my wits end. Endo fatigue is taking over my life. I've been si...

Z_tz

•6 years ago

3 Replies

Just a chat

Hi ladies I almost feel like a fake as I have only had endo for 2 years and my dr well the one I push to see has been brill and thanks to her I was referred...

Hi ladies I almost feel like a fake as I have only had endo for 2 years and my d...

Megsymoo

•6 years ago

1 Reply

Something other than endo?

Hi all, just looking for a bit of guidance. I was digognosed with having endometriosis last year after having reoccurring right side pelvic pain. After...

Hi all, just looking for a bit of guidance. I was digognosed with having endome...

Abbey5924

•6 years ago

1 Reply

Intercourse after endometriosis OP?

HI, I had my op 4 weeks ago, have any of you ladies tried having sex, was it still painful even after the endometriosis operation. I get the random pains on...

HI, I had my op 4 weeks ago, have any of you ladies tried having sex, was it ...

Nwabz07

•6 years ago

7 Replies

Prostap

Has anyone had nausea on prostap?! Is that common?! How long does it take for the prostap to kick in Cos I was ok the first 6weeks....

Has anyone had nausea on prostap?! Is that common?! How long does it take for th...

Shell83

•6 years ago

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Weird Tingling

Does anyone get tingling? I'm awaiting for a referral for diagnosis and one of my symptoms is my whole lower right side and around my back occasionally tingles...

Does anyone get tingling? I'm awaiting for a referral for diagnosis and one of m...

Aino26

•6 years ago

2 Replies

Itchy stitches post-lap

Has anyone used anything to relieve the dry / itchiness of their stitches post lap? I’m about 9 days after and my tummy is so dry (I think from the bloating),...

Has anyone used anything to relieve the dry / itchiness of their stitches post l...

Ash66

•6 years ago

6 Replies

New to the group

Hi everyone, this is the first ever online forum/group that I've joined, so please be patient with me 🤦‍♀️🤦‍♀️ I've recently been diagnosed with...

Hi everyone, this is the first ever online forum/group that I've joined, so plea...

Maisy2006

•6 years ago

5 Replies

Menopause at 26..

Hey ladies, so I went to my gynaecologist on Thursday, under the impression it would just be a chat that goes no where, and left after having the Decapeptyl...

Hey ladies, so I went to my gynaecologist on Thursday, under the impression it w...

Nicole93x

•6 years ago

5 Replies

1st laproscopy tomorrow... veey nervous

Hi everyone , im having my first lap tomorrow and im feeling anxious , mainly about the GA , they say they wont go ahead with it if you have a cough or cold...

Hi everyone , im having my first lap tomorrow and im feeling anxious , mainly ab...

Lisa0885

•6 years ago

4 Replies

With just a few days to go until our EndoMarches in Llandudno, and Cardiff on Saturday - we're sharing the posters again. Will you be there?

There's still time to register if you would like to join us, full details for both marches here: www.ftww.co.uk/endomarchwales Please help us get the word out...

There's still time to register if you would like to join us, full details for bo...

FTWW_Wales

•6 years ago

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Post Lap Advice

Hi everyone. Hopefully you can help. I had my lap on Friday just past (22nd of March) no endometriosis found or anything found, (I don't think much of that tbf...

Hi everyone. Hopefully you can help. I had my lap on Friday just past (22nd of M...

RhiannonT

•6 years ago

16 Replies

Im so fed up...

Hi, Newbie here- diagnosed with endometriosis 10 years ago- I have had every single Combined contraceptive pill going and they usually offer me 6-12 months...

Hi, Newbie here- diagnosed with endometriosis 10 years ago- I have had every sin...

Painintheabdomen

•6 years ago

25 Replies

One follicle, stage 4 endometriosis, going for egg collection

So I'm feeling really nervous. I 've started my injections over a week ago and had my scan today and was told they can only see one follicle. My amh is really...

So I'm feeling really nervous. I 've started my injections over a week ago and h...

Pink23-8

•6 years ago

1 Reply

1 month to go

Hi everyone. I posted a while back how I thought I had Endometriosis. I’m 22 and since starting my periods I have had very painful heavy periods. However I’d...

Hi everyone. I posted a while back how I thought I had Endometriosis. I’m 22 and...

Wanderlust96

•6 years ago

3 Replies

Obturator Nerve endometriosis

Hi! Does anyone have any experience of endometriosis occurring on or around the obturator nerve? My MRI has come back with this as a possibility and I'm two...

Hi! Does anyone have any experience of endometriosis occurring on or around the ...

laf1977

•6 years ago

4 Replies

Partner might leave me for being chronically ill?

Hi there, I'm not sure why I'm writing this post, mainly just to put it out there and see if there are other people who feel this way or who might be in...

Hi there, I'm not sure why I'm writing this post, mainly just to put it out th...

avelvetcrowbar

•6 years ago

4 Replies

Amitriptyline

Has anyone else been given this as a pain killer for hip/back and leg pain?

Katielou1987

•6 years ago

7 Replies

Is retrograde menstrual bleeding permanent?

I was in hospital over a month ago what i believed was my appendix so they give me a laparoscopy and they took my appendix out anyway but i had retrograde...

I was in hospital over a month ago what i believed was my appendix so they give ...

Princess2015

•6 years ago

5 Replies

Any advice for getting rid of acne cause by the Marina Coil?

Hey girls I had the marina coil put it about 2 months ago and still having alot trouble with it, pain is constant, but been told it can take up to 6months....

Hey girls I had the marina coil put it about 2 months ago and still having alot...

Tessie70

•6 years ago

3 Replies

Advice help after laparotomy please!

Hello lovely people! I’ve had laparotomy surgery 21st March to remove endometriosis, reconstruction/ ureteral reimplantation into my bladder. Came home...

Hello lovely people! I’ve had laparotomy surgery 21st March to remove endometri...

Janeylou

•6 years ago

9 Replies

Is this normal after laparoscapy

Hi everyone. So last Thursday I had my diagnostic laparoscopy for suspected endometriosis. The specialist had already told me he had felt endometrial lesions...

Hi everyone. So last Thursday I had my diagnostic laparoscopy for suspected en...

ScaredOfEndo

•6 years ago

4 Replies

Fibroids seen with ultrasound but not hysteroscopy

Has anybody had any experience of this? I'm 51 and was diagnosed with 4 fibroids last November from an internal ultrasound and then the same was confirmed...

Has anybody had any experience of this? I'm 51 and was diagnosed with 4 fibroid...

GemmaZzz

•6 years ago

5 Replies

Can bowel issues arise even if no endo on bowel its self?

I had a laparoscopy yesterday where an endo cyst was removed from one ovary, scar tissue removed from my appendix, and the other ovary was detached from my...

I had a laparoscopy yesterday where an endo cyst was removed from one ovary, sca...

Smiles-are-free

•6 years ago

8 Replies

Groin/Hip pain

Does anyone else with endo suffer from these symptoms? Usually on a day to day basis I’m ok. But often when I spend long days on my feet or walking for a long...

Does anyone else with endo suffer from these symptoms? Usually on a day to day b...

Hidden

•6 years ago

6 Replies

Endo decision

I am looking for some advice or what was like for those who havd experienced it. I have stage 4 endo and had lap done 4 to 5 years ago to remove by a bgse...

I am looking for some advice or what was like for those who havd experienced it....

Bidders15

•6 years ago

3 Replies

Anyone had any problems swallowing solids/liquids whilst on decapeptyl injections?

Hi everyone to treat my severe endometriosis, fibroids and pcos I've been on Decapeptyl 3mg monthly injections for 8 months now and have been really...

Hi everyone to treat my severe endometriosis, fibroids and pcos I've been on De...

Endogirl16

•6 years ago

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2019

I'm still in a daze...feeling lost

HRT & DEPO PROVERA & Gn-RH what’s the diffrece what’s best?

Struggling on painkillers

Can the mirena coil help endo fatigue? Feeling desperate.

Just a chat

Something other than endo?

Intercourse after endometriosis OP?

Prostap

Weird Tingling

Itchy stitches post-lap

New to the group

Menopause at 26..

1st laproscopy tomorrow... veey nervous

With just a few days to go until our EndoMarches in Llandudno, and Cardiff on Saturday - we're sharing the posters again. Will you be there?

Post Lap Advice

Im so fed up...

One follicle, stage 4 endometriosis, going for egg collection

1 month to go

Obturator Nerve endometriosis

Partner might leave me for being chronically ill?

Amitriptyline

Is retrograde menstrual bleeding permanent?

Any advice for getting rid of acne cause by the Marina Coil?

Advice help after laparotomy please!

Is this normal after laparoscapy

Fibroids seen with ultrasound but not hysteroscopy

Can bowel issues arise even if no endo on bowel its self?

Groin/Hip pain

Endo decision

Anyone had any problems swallowing solids/liquids whilst on decapeptyl injections?

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