Clinical trial at Dana Farber

[SMPG]

I am wondering if any of you here are on the same clinical trial at Dana Farber as I am. There is no name to the medication. I am taking 3 blue capsules in the am and another 3 at night. If you are on this, please share how. you feel on it.

[Merma]

I am not familiar with it, but please keep us posted on how you are doing on it. Sounds interesting.

[SMPG in reply to Merma]

Well, I was on a number of different oral drugs since doing IV chemo frightens me. With other treatments, I was given the minimum dose and so, side effects were minimal to non existent. With this, being a clinical trial I have no choice but take what everyone else is taking which is not the minimum strength. And I get diarrhea, followed by constipation, nausea, vomiting, all necessitating other drugs to take care of and these have their own side effects. Among other things, symptoms of diabetes are present and I was told I may be put on diabetes medication which has diarrhea as a side effect...... I feel a total lack of energy, appetite. Not a happy camper.....

[Merma in reply to SMPG]

Aw, I hope they can mitigate you side effects soon. I’m experiencing some of the same on everolimus, so the dose is being reduced. But it’s true, when you’re on a clinical, you have to go with their protocols.

[Adele_Julia]

there should be a number associated with the drug or a clinical trial number as they must be registered in the clinical trial database to be approved. Ask your oncologist

[SMPG in reply to Adele_Julia]

Yes, there is a number. Are you on a clinical trial?

[Adele_Julia]

not currently but for others to help answer your question, the clinical trial number or number for the drug will help if you post it

[SMPG]

I was curious first if anybody here is on a clinical trial at

Dana Farber and then maybe we can compare notes.....

[Tolife_18]

I’m not on the clinical trial, but you can get information from your informed consent form. There you can find the number of the trial, stage, and whether the medication you get is active or blinded.

Also, if you know the company and which study you’re on, you can find the information on clinical trial.gov

All the best to you!

[Artesa]

What is the clinical trial for? I go to DFCI but am unfamiliar with the trials.

[SMPG]

The clinical trial is for people who were on. other oral drugs that fizzled, became ineffective . I am now on pause with it because I was feeling really tired and lacking energy, having nausea and bitterness with everything I ate. Plus my blood glucose spiked to over 300 in just 2 weeks. Depending on the new glucose test result, they may put me on a reduced dose, 200 instead of 300 mg.