Starting Eribulin

[Jhshl512]

Hello everyone

I’m starting my 7th or 8th (I’ve lost count) line of treatment this Friday. I’ve been MBC for 12 years. I was Mets only to my bones until last week. My pet scan showed a spot on my liver. I am er positive and her2 low. Any advice from my friends would help. I feel like I can’t even cry anymore. Thank you for listening and sharing.

The best

Lori

[Kateds]

please hang in there. I have not been on this journey as long as you. Nine years for me. It is constant and wearing. I have no advice, just empathy and solace. And I pray you find the strength to carry on. I’ve had liver Mets from the outset, and I thought I was done for. Surprisingly, they responded well to treatment. I had many, however if you just have one perhaps you could do one of the many interventions they can do with radiation or even surgery. I would ask my onc about some of those. God go with you and keep your fellow journeymen here in the loop. Your fellow MBC friend,

Kate

[Jhshl512 in reply to Kateds]

Thank you Kate

I did ask my Onc about intervention radiology and her response was they only do that when the liver is the primary sight. I love her but think she is wrong, so I will be doing my own research.

Sorry to hear about your Mets to the liver. It gives me great hope that you have been living with this for nine years!! WOW. It’s amazing to hear how we endure so much but keep going. I so much appreciate your response and support 🙏🏻

[NShaft]

This MBC “journey” ( I hate that word. It is not a journey which to me implies a welcome path to learn something. This isn’t that) is exhausting and I’m sorry to hear about your latest findings. Would you mind sharing what treatments you have endured the last 12 years? It might give some hope to those of us who haven’t been at this as long as you have.

[Jhshl512 in reply to NShaft]

Sure, I will try and remember. 2013 diagnosed mbc. 7 years of just faslodex shots every month. 2020, progression. I did ibrance for 5 months then progression. Xeloda for about 7 months then piqray for 1 month. I couldn’t tolerate that one. The next was Truqap I had a horrible reaction to this one which landed me in the hospital My first iv chemo was Enhertu it was a piece of cake for me but unfortunately only lasted about a year. Next was Afinitor which was a pill. That lasted about 6 months. That one was also easy to tolerate. Then I went on IV Taxol. I did very well on that one too. Unfortunately none of these meds lasted very long . Don’t get me wrong, I’m extremely fortunate for the time I’ve been given but I’m also very tired of this road I’m on. I’m now on to my next line which is called Eribulin. I hope this helps.

[Lindoky in reply to Jhshl512]

Hello can I ask where your Mets were in 2013 when first diagnosed with mbc, I’m doing the faslodex shots as well second month it’s all new for me , 2nd cycle kisqali but been off for a couple weeks due to liver enzymes high , I’m scared and hope that the faslodex is still doing something to help with the cancer even without a cdk4/6 inhibitors

[Dragonfly2]

while I want to congratulate you on your long journey with MBC, I also know how exhausting it is to endure the many drugs and procedures … and the longer you survive, the more damage to your body… sometimes I wonder how long I will want to keep trudging down this path if my family, home or financial situation changes. But please hang in there! Everyday there are exciting break throughs in cancer care and improvement in survival. 🥰🥰🥰

[Jhshl512 in reply to Dragonfly2]

Thank you for you encouraging words. They mean a lot🙏🏻