Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,792 members•8,415 posts

All posts for March 2024

How is your gut health?

I have been reading a lot lately regarding gut health and how it can help medications be more effective, slow progression etc. I listened to this podcast...

I have been reading a lot lately regarding gut health and how it can help medica...

ba5083

•8 months ago

10 Replies

NGS Test/Next-Generation Sequencing Important to have done.

Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given...

Hello friends. I just wanted to make sure that if you are able to have this test...

Hopeful4Cure

•8 months ago

26 Replies

Has anyone been taking Verzenio for more than 2 years?

I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in November 2020. I had a mastectomy, chemo and radiatin and my scans showed no...

I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in No...

alwayslearningmore

•8 months ago

3 Replies

Want to take advantage of all our features? Just log in!

Hi! I'm new and excited to meet others and learn about your journey

Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010....

Good afternoon. I'm new to the group. I already posted an item, but thought I s...

Sueforshare

•8 months ago

18 Replies

Docs who prescribe mebendazole and metformin

HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious,...

HI! I am currently taking letrozole for metastatic breast cancer. I am also do...

Sueforshare

•8 months ago

50 Replies

Truqip

Hi ladies, Has anyone been put on this drug? I am starting in 2 weeks and it's like piqray but less side effects. It came out 2 years ago and fda...

Hi ladies, Has anyone been put on this drug? I am starting in 2 weeks and i...

Mcangel11

•8 months ago

10 Replies

not so great Petscan

Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I was really hoping for all good results. Unfortunately, it was a mixed bag. My...

Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I ...

jltorcz

•8 months ago

20 Replies

Pleur x catheter

Update:- good news: l don't need pericardial effusion window surgery. - l did get a pleur x catheter placed last Friday. The procedure went well. I've had 2...

Update:- good news: l don't need pericardial effusion window surgery. - l did ge...

NPmary

•8 months ago

25 Replies

Anyone else had BC change from E+ to triple negative?

I've never heard of anyone having this happen so I'm just wondering if anyone else has had it happen. I have lobular bc that was diagnosed at stage IV 20...

I've never heard of anyone having this happen so I'm just wondering if anyone el...

PJBinMI

•8 months ago

9 Replies

exciting clinical trial

My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and...

My very long time (20 years!) MBC changed from E+ to triple negative a few month...

PJBinMI

•8 months ago

15 Replies

Whiplash like pain

Has anyone ever gotten whiplash pain in their neck and back for no reason. I slept sitting up in a recliner for a few days because I was congested, but I’ve...

Has anyone ever gotten whiplash pain in their neck and back for no reason. I sle...

CTGirl1962

•8 months ago

14 Replies

Letrozole dosage ?

For those of you who have been on Letrozole for 3, 4, 5+ years, are you still on the 2.5 dosage? Or did your dosage get lowered?

For those of you who have been on Letrozole for 3, 4, 5+ years, are you still on...

Greatday2

•8 months ago

17 Replies

Pretty in Pink-How Lucky am I?

I am so grateful for 3 close friends from my USA high schoolwho flew 24 hrs to visit me for a few weeks in New Zealand! We joined 50K others at last nights...

I am so grateful for 3 close friends from my USA high schoolwho flew 24 hrs to v...

Bettybuckets

•8 months ago

34 Replies

Tumors Shrinking!

Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and...

Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four m...

monkeygirl62

•8 months ago

60 Replies

kyphoplasty

good morning! just had kyphoplasty to t11, t12 and l1. Any advice!

lynzer

•8 months ago

4 Replies

lynparza / olaparib

hi everyone- my dad had progression to chest wall and his hip on ibrance after about 14 months on it so he switched to lynparza/ Olaparib for MBC in October...

hi everyone- my dad had progression to chest wall and his hip on ibrance after...

Jenniferp2122

•8 months ago

3 Replies

Thoughts?

Hello all my fellow warriors!! I just got off of a video appointment with my doctor. We discussed a few things. I brought up Verzenio in combination with...

Hello all my fellow warriors!! I just got off of a video appointment with my doc...

CTGirl1962

•8 months ago

35 Replies

Zometa side effects

Hello, My new oncologist prefers Zometa to Xgeva so I had my first infusion of this on Monday. Yesterday, Wednesday, was horrible, aches, bone pain, nausea,...

Hello, My new oncologist prefers Zometa to Xgeva so I had my first infusion of ...

Iwasborntodothis

•8 months ago

77 Replies

Heterogeneous Metastases?

I was first diagnosed Stage3 in Aug. 2014, ER+PR+Her2-. Found metastases in bones and lymph nodes in Dec. 2023, bioposied one node, same biomarkers. I was put...

I was first diagnosed Stage3 in Aug. 2014, ER+PR+Her2-. Found metastases in bone...

Faith999

•8 months ago

22 Replies

Atelectasis?

I have seen several people refer to this here, but didn't know what it was. My PET/CT scan on Friday showed some mildly alarming things -- bone met in spine is...

I have seen several people refer to this here, but didn't know what it was. My P...

TammyCross

•8 months ago

11 Replies

Halaven (Erubulin)

has anyone been on this drug ?

worldtravel75

•8 months ago

5 Replies

SCS Thearapy for pain

Has anyone had this? I have been on Fentynal for two months now and it does not relieve the pain in my fractured vertebrae. Now the dr wants to put this in my...

Has anyone had this? I have been on Fentynal for two months now and it does not ...

Sharon0122

•8 months ago

8 Replies

pleurx catheter

I am getting one put in today. Any helpful hints would be great. Not very happy having a tube coming out of my body that I have to care for on top of...

I am getting one put in today. Any helpful hints would be great. Not very happy ...

worldtravel75

•8 months ago

3 Replies

Anyone? 😁

LOL I’m popping on here, again, for your honest opinion and advice. I have been OFF all forms of treatment since the beginning of January (when I was told...

LOL I’m popping on here, again, for your honest opinion and advice. I have be...

CTGirl1962

•8 months ago

44 Replies

Oserdu

Anybody taking this treatment? I am about to start after Ibrance/Faslodex.

Elle713

•8 months ago

12 Replies

Exercise for Cancer

I see a lot of symptoms that perhaps I can help. I have been on Kisquali for 1.5 years with no symptoms other than feeling tired by day 21. However, it is my...

I see a lot of symptoms that perhaps I can help. I have been on Kisquali for 1.5...

kickaliz

•8 months ago

10 Replies

10 weeks Nz

I took a tumble off of my bike I’m Ok! https://www.relive.cc/view/vWqBm7wVEQ6

Bettybuckets

•8 months ago

24 Replies

week 3 Kisqali

Anyone feel really crappy into week 3 of Kisqali?

jltorcz

•8 months ago

10 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2024

How is your gut health?

NGS Test/Next-Generation Sequencing Important to have done.

Has anyone been taking Verzenio for more than 2 years?

Hi! I'm new and excited to meet others and learn about your journey

Docs who prescribe mebendazole and metformin

Truqip

not so great Petscan

Pleur x catheter

Anyone else had BC change from E+ to triple negative?

exciting clinical trial

Whiplash like pain

Letrozole dosage ?

Pretty in Pink-How Lucky am I?

Tumors Shrinking!

kyphoplasty

lynparza / olaparib

Thoughts?

Zometa side effects

Heterogeneous Metastases?

Atelectasis?

Halaven (Erubulin)

SCS Thearapy for pain

pleurx catheter

Anyone? 😁

Oserdu

Exercise for Cancer

10 weeks Nz

week 3 Kisqali

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive