Truqip

[Mcangel11]

Hi ladies, Has anyone been put on this drug? I am starting in 2 weeks and it's like piqray but less side effects. It came out 2 years ago and fda approved. I also have a mutation. Nervous about this drug and wanted any input? Thank you!!

[Chewysmom]

Hi , I have been on it for 6 weeks so far great , this is my second line after kisqali and faslodex. Tumor markers are dropping for first time since diagnosis. You should join the truqap Facebook page . We’re small group but growing fast. Hope you do well on this medication 🩷

[Warrior77 in reply to Chewysmom]

I am starting this drug soon as well. 4th drug in one year. Fingers crossed for this one. I have the mutation for this so I am cautiously optimistic.

[Trissh]

I am on a similar drug for PIK3CA mutation in clinical trial called Inavolisib. Hyperglycemia is a side effect so I have been prescribed metformin. Other side effects are minimal.

[JustmeMary]

I’ve been on it since January. My oncologist started me on Pikray but had a horrible reaction after 10 days. Truqap is sooooo much easier. Best of luck to you!

[Adele_Julia]

I’ve been on Piqray quite successfully for 14 months before progression. I’m now on Enhertu. Curious if you can use Truqap after Piqray?

[Ardie1970 in reply to Adele_Julia]

Hey girl! I haven’t been in here in a while. I am now on Enhertu as well. I just started. Onc has said Truqip will be next for me and I did Piqray too! Hope you are doing well!

[Adele_Julia in reply to Ardie1970]

Fantastic !!

[lmcnally]

I just started this drug on Monday and so far so good. Been taking Zyrtec and Benadryl to avoid the rash. So far no side effects I’ve noticed but I know it can be cumulative. I was on piqray 4 years ago and had to stop because of a horrible rash. This is my 7th line of treatment

[Bonnie1942]

I have been taking Truqap for 3 weeks For me the side effects started this week with diarrhea at night.

[Rbeth]

TRUQAP was approved by the FDA November 17 2023. A really new drug. I have two mutations that it covers.

I was first on 200 mg at the end of January. I had massive diarrhea around the clock. In my three days off I had diarrhea too. I changed to 3 days a week with little change in my diarrhea so they took me off truquap for 2 weeks to heal. My bowels went back to normal.

Yesterday I started on 160 TRUQAP 4 days on 3 days off. On my first day, today I had one diarrhea event.

I need to drink lots of fluids. I wear a thick panty liner as I am 73 and this makes me feel more comfortable.

For your sore bottom: witch hazel on a cotton ball works best for me. I use Lidicaine cream for my pain. My intestines get sore so I am on Oxy and Pregabalin twice daily. I had a gastrojujunostomy six years ago.

Check out banana flakes per my nutritionist up to 3 times a day. I mix it with juice or yogurt for diarrhea I purchased it from Amazon and it comes in individual packets and has a mild banana taste

I have blood tests weekly and have had to have IV fluids from diarrhea on occasion

There are not many cancer patients with the mutations. You can contact me at [e-mail]

Best to all you warriors. Reenie. Rochester NY