Brave Bold Cancer Thrivers, I am ER+, HER2 negative and I, finally after four months, have an oncologist I just love (she's so thorough with everything and very kind and caring), and my treatment is working! I am on Ibrance and letrozole and in only 2 months majority of the tumors have shrunk in half. The lesions on my liver disappeared completely. The only thing is one tumor, in the right lung, hasn't changed yet hasn't grown. but it's so early on this drug combo that the oncologist is doing a wait and see. The other small tumors in the lungs are diminishing. No bone mets. The other sites like near my left ovary and my right adrenal gland also shrunk in half. I am amazed that the tumors shrunk so quickly even had lesions disappear completely. My cancer is a fast growing where within a month and a half my tumors grew up to over 6 cm like under my armpit and 5 cm in my collar bone and over 4 cm in my right lung. I mean between a PET scan in September and CT scan in November I had progression. I didn't start letrozole until November 16th and Ibrance on December 13th. So just two cycles of Ibrance. I had genetic testing and have no mutations at all. I want this combo to work for a long time. And I am on full dose of the Ibrance. I am so happy ๐. I just wanted to say my news. Thank you for reading!!
Tumors Shrinking! : Brave Bold Cancer... - SHARE Metastatic ...
Tumors Shrinking!
So happy to read your good news ๐ long may it continue to work for you. I know for some on here have got to NED on this combo.Best of luck with your treatment and enjoy your weekend celebrate ๐ฅณ xxx ๐ค
Thank you!! ๐ I would love to get to NED too, hopefully someday!! I am enjoying the news despite the fact I have a sinus infection from a cold, my whole family caught a cold. My neutrophils are low like 1.7 so not surprised at the sinus infection. But since it's shrinking the tumors, I am so not worried about my nose ๐ฝ. Lol ๐คฃ
That is wonderful news. I love this chat room .. there is HOPE . All of you give me hope โฆ.. I am on Ibrance and Exemestane since Feb 2022โฆ n have been stable. No metastasizing . I hope I can stay on this โฆ n i wish n pray for you as well.
Wonderful news! Hoping it works for many years to come!
So happy for you! Iโm on Ibrance and Letrozole too. Been working for 3 1/2 years so far and hopefully for many more years. And remember, even stable is good!
Thank you for your reply! ๐ I hope to have a long time on them. Yes stable is good, I will take it โบ๏ธ!
Brilliant news & long may it continue. My neutrophils come in around 1 on Ibrance & Fulvestrant, so 1.7 sounds good to me. That's near the bottom end of the normal range. Speedy recovery from your cold.
Do you feel like tiredness from the low neutrophils? I been feeling tiredness, as long as I keep moving I'm ok but sitting down I find myself falling asleep, nodding off.
I'm not overly tired. I'm retired so luckily don't have to push myself too hard. Most mbc meds seem to have fatigue as a side effects. I couldn't tolerate Ribociclib or Abermiclib at all... I felt so unwell, like I was wearing a lead overcoat, couldn't eat. Palbociclib no problem, but only on 75 mg because of the neutrophils effect. Risk of infection is my main concern. Hopefully we may hear of some magic remedy to boost the neutrophils. Long may you respond well to your meds.
Happy for you! I had 5 years progression free on that comb - l expect you to that and more.
Great news!!
Congratulations! Hope you get over your sinusitis quickly.
Wishing you all the best with your ongoing treatment!
amazing news! I love hearing it as I worked for pfizer oncology! I long may it continue!
Bettybuckets, the oncologist I had before said that she doesn't see the drug working for not even a year. My son heard her say this to a new nurse she was training. My son came to me upset and said he didn't like my oncologist and I certainly agreed with him. I knew from the lovely thrivers here that many of you have had awesome results with this drug. I certainly don't need or want such a Debbie downer as my oncologist. So I got a new oncologist one that is kind, caring and upbeat and positive about my cancer treatment. It makes a difference who's in your life including your medical care team when you are dealing with life and death issues.
That is such great news! Hope you continue to have good results with this protocol. I have been on it since November of 2020 and so far, so good. Sending hugs and prayers.
so happy for you! Iโve been on Ibrance & Arimidex for 2 and a half year now. It took a year before my tests were clear of any cancer, but it did happen. I still get tested every 3 months with a blood test and a CT scan every 6 months. Iโm so glad you have a great oncologist: itโs half the battle. Iโm sending you lots of good vibes for your healing.
Huge news. I'm so happy for you.be patient I have such a good feeling. They always just want us to be stable but to have that much shrinkage is SOO HUGE!!YOU found the right combo. So exciting. Be patient with the other. To have that much shrinkage in amsuch a short amount of time is really profound . Blessings friend
Colacancer, thank you for your blessings, I know that much shrinkage in a very short amount of time blew me away! I was a little stunned. I was not expecting that and I expected it just enough to be stable. After it was just two months! I know God is looking out for all of us, he works through miracles as well as doctors and modern medicine. God bless you.
That is awesome news. Any it continue ๐. I have been on those meds for 41/2 years . Always stable but no shrinkage. A bit of progression in my spine now. Had 5 rounds of radiation and now waiting to have scans on the 19th.
whoo hoo!!! Congratulations ๐ Iโm on this combo too, 3 years and counting on many more โค๏ธ
That is so awesome! God is always good! Im glad that you also found a great oncologist.
Iโm also on that combo for 15 months now and scans are good, no evidence of disease!
God bless us all!๐โค๏ธ
such awesome news. This makes us hopeful and mentally stronger . And this site saves my sanity, love it and everyone on here so much! Take care and enjoy this moment- hugs, Elizabeth
Have been on these for 18 months now. All stable, but no shrikage (except for the first 2 months - but I think that is the Xgeva effect). A lot of fiddling with dosage due to low Neturofils, but feel Ok now. Still worried before each 3-monthly scan (next on the 20th), but physically they got it right in the end. Also have high hopes to stay on this for a bit longer.
Good luck!
So glad to hear you are doing good I started Letrozole before sugery in 2022 and started Zometa infusion after sugery. Didn't know i was to get the infusion every 6months I'm to start back on the infusion in April. May God bless us all on this Cancer journey. Stay positive. Love you lots ๐
This is great news! So glad the Ibrance is working so well for you, monkeygirl62!! Keep on keepinโ on!