Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,730 members • 15,473 posts

All posts for June 2021

Dopamine Agonist Official Withdrawal Advice (from Dr Earley??)

Just found this "detox" advice on a RLS Facebook page I was looking through. It's the first time I've ever seen a formal sheet explaining what will happen...

Just found this "detox" advice on a RLS Facebook page I was looking through. It'...

Joolsg

•3 years ago

56 Replies

Do I have restless leg syndrome?. Thanks.

Hi there. I am not sure if you can help. For a couple of months I am not able to sleep with my legs touching as it is too uncomfortable. There is a burning...

Hi there. I am not sure if you can help. For a couple of months I am not able to...

Gavinsamraj21

•3 years ago

2 Replies

Daily Mail on RLS

Recognition of this horrible condition finally published in the main UK press! Without doubt a Dr Spinks mentioned in the double page spread article will...

Recognition of this horrible condition finally published in the main UK press! W...

m1946

•3 years ago

11 Replies

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How often can I receive another Iron infusion?

Received my first iron infusion in Nov. 2020. Started to work at the end of Feb. 2021. Was able to wean off to a half patch of neupro a day by end of March....

Received my first iron infusion in Nov. 2020. Started to work at the end of Feb...

JPB5

•3 years ago

7 Replies

Taurine Supplement for RLS

If I use Taurine powder instead of Taurine capsule, will it have the same effect?Anyone knows ? I'm confused about this, I would be very grateful if you could...

If I use Taurine powder instead of Taurine capsule, will it have the same effect...

eternalshadow

•3 years ago

26 Replies

Has anyone had whole body vibrations when reducing gabapentin?

I have edema which is a known side effect in some people taking more than 1200 mg of gabapentin. I have been taking 1400 mg and have successfully reduced that...

I have edema which is a known side effect in some people taking more than 1200 m...

SueJohnson

•3 years ago

1 Reply

Medical Cannabis

Hi, I have reponded to several private messages recently re the above, so just in case it`s of interest to a wider audience, I`m coming to the end of a two...

Hi, I have reponded to several private messages recently re the above, so just...

Bumble34

•3 years ago

14 Replies

Coffee good, coffee bad...

As for others here, I find a strong espresso almost instantly relieves RLS in the middle of the night. On the other hand, too much coffee during the day...

As for others here, I find a strong espresso almost instantly relieves RLS in t...

Tharg

•3 years ago

10 Replies

Is this RLS?

I’m currently 30 weeks pregnant and for the past 8 weeks I have been suffering with a constant dull/heavy ache in my legs (mainly calves and ankles) sometimes...

I’m currently 30 weeks pregnant and for the past 8 weeks I have been suffering w...

megan1295

•3 years ago

15 Replies

Skullcap for RLS

I have been having solid results using skullcap (American or Chinese and up to 3 grams nightly) in addition to 100 MG of tramadol. I have idiopathic RLS and...

I have been having solid results using skullcap (American or Chinese and up to 3...

Rosyrestless1

•3 years ago

12 Replies

Out with the old and in with the new

I'd been on pramipaxole for many many years before it became less effective. My gp suggested Rotigotine which seemed to be the answer, however after just a...

I'd been on pramipaxole for many many years before it became less effective. My...

Pennydreadful66

•3 years ago

18 Replies

HELP FOR RESTLESS LEGS SYNDROME

I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in...

I have RLS so bad that I walk all night and get a couple of hours of sleep eve...

Josana13

•3 years ago

24 Replies

Neupro withdrawal syndrome

I've been taking Neupro 1mg patches daily for about 2.5 years for RLS. It managed my RSL symptoms effectively. Three months ago I had some issues getting a...

I've been taking Neupro 1mg patches daily for about 2.5 years for RLS. It manage...

Discopage

•3 years ago

50 Replies

RLS = Sleep Deprivation

As many folk have either not heard of RLS or do not understand the impact of it on our lives, I was thinking that a better way to describe it was to equate it...

As many folk have either not heard of RLS or do not understand the impact of it ...

RLSofManyYears

•3 years ago

31 Replies

Temgesic dosage

I'm taking one Temgesic 200 mcg sublingual tablet a night. I wondered what dose other people who've been able to get this marvellous drug are on. I asked the...

I'm taking one Temgesic 200 mcg sublingual tablet a night. I wondered what dose ...

rkatt

•3 years ago

26 Replies

RLS education letters

I've finished my RLS letter, using the template provided by Jools, and am about to send out. But who to, specifically? It's important the letters go to the...

I've finished my RLS letter, using the template provided by Jools, and am about ...

rkatt

•3 years ago

6 Replies

RLS is a Sleep Wrecking Nightmare - Daily Mail - 8 June 2021

https://www.dailymail.co.uk/health/article-9661719/Restless-legs-syndrome-sleep-wrecking-nightmare.html

https://www.dailymail.co.uk/health/article-9661719/Restless-legs-syndrome-sleep-...

Kaarina

Administrator•3 years ago

33 Replies

Crohn's meds to avoid?

I take Pregabalin for PLMD and I am having a Crohn's flare. I may take medicine to try and get out of this and don't know the medications I should avoid and...

I take Pregabalin for PLMD and I am having a Crohn's flare. I may take medicine...

wantokporo

•3 years ago

2 Replies

Epilepsy

I have been diagnosed with "Absence" Epilepsy and have been prescribed medication. Are any of you forum members aware whether Epilepsy medication has an effect...

I have been diagnosed with "Absence" Epilepsy and have been prescribed medicatio...

Peter-caribe

•3 years ago

4 Replies

Mucuna Pruriens

Has anyone found Mucuna Pruriens to be helpful?

ConstantInsomnia54

•3 years ago

1 Reply

Getting worse

How many mg can you safely take of roprinarol in a day.its driving me mad at the moment.

How many mg can you safely take of roprinarol in a day.its driving me mad at the...

Baildon28

•3 years ago

16 Replies

Jennie

Tried 75mg but had to put it up to 150. But very switched off in the morning and worry about driving.

Tried 75mg but had to put it up to 150. But very switched off in the morning and...

Jen70

•3 years ago

2 Replies

Still awaiting a solution

I posted on here approx 3 months ago re. a letter I sent to my g.p who took 6weeks to respond even though I tried to get over to her how absolutely desperate I...

I posted on here approx 3 months ago re. a letter I sent to my g.p who took 6wee...

bedith6

•3 years ago

28 Replies

Is there any scenario under which someone should consider taking a DA as a remedy for RLS?

Hello All, many thanks for your contributions to this fantastic site and answers I have had to personal questions. Having recently joined the ranks of RLS...

Hello All, many thanks for your contributions to this fantastic site and answers...

Covenant1962

•3 years ago

51 Replies

MS and RLS

An article in May/June issue of New Pathways MS magazine confirms that 25% of people with MS also have RLS and are also likely to have higher EDSS...

An article in May/June issue of New Pathways MS magazine confirms that 25% of p...

Joolsg

•3 years ago

1 Reply

A Few Personal Observations Which Might Be Helpful To Some

As a 50 year veteran of RLS, I would like to offer some further observations (I posted once before) which I hope might be helpful to some people. I suffer...

As a 50 year veteran of RLS, I would like to offer some further observations (...

Wairahi

•3 years ago

7 Replies

Dialysis

hi my partner is on dialysis he has high hemoglobin and extremmly bad RLS.does anyone else know if blood thinners can cause RLS ?

hi my partner is on dialysis he has high hemoglobin and extremmly bad RLS.does a...

murano

•3 years ago

5 Replies

Neurontin

Hello i started to take neurontin for neurological pain ...today is 4 day ..first day was one 300 mg ,second day 1 tbl morning one evning and 3 day 3X1 300 mg...

Hello i started to take neurontin for neurological pain ...today is 4 day ..firs...

Nina252

•3 years ago

2 Replies

Symptom question

Hi, I was wondering if anyone’s RLS seems to be worse when wearing shorts or when your legs are kind of exposed for a while? I really can’t tell if it’s in my...

Hi, I was wondering if anyone’s RLS seems to be worse when wearing shorts or whe...

Jademarie1

•3 years ago

4 Replies

Red light Therapy for rls

I am 75 and have had quite bad rls for about ten years. For three weeks I have continued to take high dose magnesium (600 mg) plus shining my Beurer IL 50...

I am 75 and have had quite bad rls for about ten years. For three weeks I have c...

Bluebboat

•3 years ago

12 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2021

Dopamine Agonist Official Withdrawal Advice (from Dr Earley??)

Do I have restless leg syndrome?. Thanks.

Daily Mail on RLS

How often can I receive another Iron infusion?

Taurine Supplement for RLS

Has anyone had whole body vibrations when reducing gabapentin?

Medical Cannabis

Coffee good, coffee bad...

Is this RLS?

Skullcap for RLS

Out with the old and in with the new

HELP FOR RESTLESS LEGS SYNDROME

Neupro withdrawal syndrome

RLS = Sleep Deprivation

Temgesic dosage

RLS education letters

RLS is a Sleep Wrecking Nightmare - Daily Mail - 8 June 2021

Crohn's meds to avoid?

Epilepsy

Mucuna Pruriens

Getting worse

Jennie

Still awaiting a solution

Is there any scenario under which someone should consider taking a DA as a remedy for RLS?

MS and RLS

A Few Personal Observations Which Might Be Helpful To Some

Dialysis

Neurontin

Symptom question

Red light Therapy for rls

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