Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,446 members • 15,122 posts

All posts for March 2022

Dipyridomole - my experience

So my neurologist agreed to let me give dipyridomole a try. I started on 50 mg twice a day for a week, and worked my way up to 150mg twice a day. I'm finding...

So my neurologist agreed to let me give dipyridomole a try. I started on 50 mg ...

BAK524

•2 years ago

8 Replies

Nerve decompression surgery?

I'd be interested in hearing what forum members think about this. Dr. Anderson is a podiatrist who claims to have a 90% success rate relieving RLS by...

I'd be interested in hearing what forum members think about this. Dr. Anderson ...

BAK524

•2 years ago

16 Replies

Gralise/ gabapentin will cause augmentation?

I have had RLS since I was a child and is has periodically made my life unbearable. After having been through augmentation many times, I was assured this was a...

I have had RLS since I was a child and is has periodically made my life unbearab...

Camry2020

•2 years ago

11 Replies

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withdrawal

At Drs this morning after up all night with jerky legs no pramipexole only 2 . 50mg tramadol tablets not working been on it since January ,put on 1 0.05...

At Drs this morning after up all night with jerky legs no pramipexole only 2 . ...

auldreekie18

•2 years ago

4 Replies

Program on BBC 2 about sleep

https://www.bbc.com/mediacentre/2021/michael-mosley-how-to-sleep-well/ This might be interesting for the people living in the UK.

https://www.bbc.com/mediacentre/2021/michael-mosley-how-to-sleep-well/ This migh...

Moonwalker1967

•2 years ago

7 Replies

Ferritin

Hello. My ferritin level is 123. It was 160 in 2017. What is the best supplement to use to increase my ferritin level? Thanks.

Hello. My ferritin level is 123. It was 160 in 2017. What is the best supplement...

Inkosikazi

•2 years ago

3 Replies

Taking the leap

Sue Johnson (and anybody who cares to comment), I still haven't jumped in with both feet on quitting pramipexole. I've been on it for 15 or 20 years. So far,...

Sue Johnson (and anybody who cares to comment), I still haven't jumped in with b...

Hooked77

•2 years ago

28 Replies

RLS codeine

I have never experienced such a dramatic sensation in my body but I do keep RLS at bay with dihydrocodeine before bedtime and one in the night if I start...

I have never experienced such a dramatic sensation in my body but I do keep RLS ...

Daisy2408

•2 years ago

3 Replies

RLS and deteriorating walking

Hi folks, I have been taking gabapentin (600mg mid evening) with pretty good effect for several months. I am also being investigated for walking difficulties...

Hi folks, I have been taking gabapentin (600mg mid evening) with pretty good eff...

Catscratchman

•2 years ago

4 Replies

Not sure if I understand augmenting

Can someone explain augmenting from a med for rls. I understand having a med stop working for rls and things getting worse. I just want to know if I am...

Can someone explain augmenting from a med for rls. I understand having a med st...

ESRDRLS

•2 years ago

7 Replies

Alarming episode

Am on Gabapentin 400mg which works only 50%; also suffer from insomnia independently of RLS. . My doc prescribes me occasional Zolpidem when she takes pity on...

Am on Gabapentin 400mg which works only 50%; also suffer from insomnia independe...

michou

•2 years ago

8 Replies

Help with Neurologist

Can anyone recommend a neurologist in Scotland who is up to date with modern thinking re RLS ( I am prepared to go private). I have been on Ropinerole for...

Can anyone recommend a neurologist in Scotland who is up to date with modern thi...

Scottie99

•2 years ago

6 Replies

Temporary cure?

I know this is a bit of a drastic take but 4 months ago I broke my ankle in 2 places, plaster for 6 weeks then crutches…I have had no rls episodes...

I know this is a bit of a drastic take but 4 months ago I broke my ankle in 2 pl...

Dotsicle

•2 years ago

18 Replies

Tramadol Tolerance

I have had severe RLS for over 10 years, was initially on dopamine agonists (until I augmented!) and been on Tramadol (100mg/day) plus Gabapentin (1200mg/day)...

I have had severe RLS for over 10 years, was initially on dopamine agonists (unt...

John_naylor

•2 years ago

19 Replies

Running & restless legs

Hello, just wondering what people’s experience of jogging & RLS is? I have been running for about a year & a half. I am 60. Normal BMI. Don’t smoke or drink. I...

Hello, just wondering what people’s experience of jogging & RLS is? I have been ...

Nightwalker6

•2 years ago

17 Replies

Foot tickler.

This might help some people. I'm neither recommending nor opposing. Just passing on.😉...

This might help some people. I'm neither recommending nor opposing. Just passing...

Madlegs1

•2 years ago

3 Replies

Horizant and weight gain

Have any of you gained weight on Horizant? Thank you for your response. The statistics looks grim: Time on Horizant when people have Weight gain *: < 1 month:...

Have any of you gained weight on Horizant? Thank you for your response. The stat...

TeddiJ

•2 years ago

10 Replies

Low dose opioids & side effects

Hi, I am new to this forum. I am in Australia. I have suffered from RLS for many years. I was on a DA for about 10 years, but eventually came up against...

Hi, I am new to this forum. I am in Australia. I have suffered from RLS for many...

Nightwalker6

•2 years ago

110 Replies

Magnesium and RLS

I am a 74 y/o male in Toronto Canada and have had RLS for several years. One topic I am pursuing right now is magnesium . I am reading "The Magnesium Miracle"...

I am a 74 y/o male in Toronto Canada and have had RLS for several years. One top...

Celloguy

•2 years ago

16 Replies

Suggestions for first neurologist appt

I have been in .5mg Mirapex since sept.Gp started me at that high dose! After being on it a few months it didn’t seem to be working very well anymore and...

I have been in .5mg Mirapex since sept.Gp started me at that high dose! After ...

Canterberry

•2 years ago

49 Replies

Gabapentin and PLMD, SLEEP

I have been taking Gabapentin for about three months now, hoping that it will help me sleep. At first, it worked really well; now I am waking up four hours...

I have been taking Gabapentin for about three months now, hoping that it will he...

Maximus01

•2 years ago

21 Replies

Recent Iron test values and next steps

Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg several months ago. I started with daily and soon switched to alternate days....

Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg...

PoorRichard

•2 years ago

14 Replies

Hypnosis

Has anyone tried hypnosis? My RL started after a head injury. I think it affected my nervous system and brain, causing my restless leg problems. DR...

Has anyone tried hypnosis? My RL started after a head injury. I think it affec...

C82021

•2 years ago

5 Replies

Weight Gain with RLS Medication

Is anyone experiencing weight gain with dopamine antagonists meds?

Cyclechick69

•2 years ago

7 Replies

pramipexole

Hi Elsie like you coming off .0880mg pramipexole I cut down from top dose to lowest dose now take 2 tramadol 50mg and 1 low dose pramipexole and find it works...

Hi Elsie like you coming off .0880mg pramipexole I cut down from top dose to low...

auldreekie18

•2 years ago

2 Replies

Augmentation & Tramadol? What next

Not sure what to do now. I came off 0.5mg Ropinirole about 4 years ago and found 100mg of Tramadol was sufficient to give me on most nights 8 hours sleep. But...

Not sure what to do now. I came off 0.5mg Ropinirole about 4 years ago and found...

m1946

•2 years ago

11 Replies

Auditory stimulation and sleep

I read somewhere that there is nascent research into auditory stimlation to reduce RLS symptoms. I think I found this out myself, as I always sleep with an...

I read somewhere that there is nascent research into auditory stimlation to redu...

Hidden

•2 years ago

9 Replies

Why is RLS affecting my arms for the first time now that I’m off pramipexole?

I finally weaned off pramipexole 19 days ago and for the past three nights not only have my legs been jumping nineteen to the dozen as they’ve always done,...

I finally weaned off pramipexole 19 days ago and for the past three nights not...

rlsagain

•2 years ago

9 Replies

What should I try next?

I have been on the lowest dose of Pramipexole for many years now my legs are fidgety most nights within an hour or so of taking it. I tried taking paracetamol...

I have been on the lowest dose of Pramipexole for many years now my legs are fi...

Elsie77

•2 years ago

24 Replies

Weighloss?

Just checking to see if others are experiencing a small albeit constant weight loss on Ropinerol? I also take Topamax for chronic migraine. Have been taken...

Just checking to see if others are experiencing a small albeit constant weight l...

Mulle74

•2 years ago

7 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for March 2022

Dipyridomole - my experience

Nerve decompression surgery?

Gralise/ gabapentin will cause augmentation?

withdrawal

Program on BBC 2 about sleep

Ferritin

Taking the leap

RLS codeine

RLS and deteriorating walking

Not sure if I understand augmenting

Alarming episode

Help with Neurologist

Temporary cure?

Tramadol Tolerance

Running & restless legs

Foot tickler.

Horizant and weight gain

Low dose opioids & side effects

Magnesium and RLS

Suggestions for first neurologist appt

Gabapentin and PLMD, SLEEP

Recent Iron test values and next steps

Hypnosis

Weight Gain with RLS Medication

pramipexole

Augmentation & Tramadol? What next

Auditory stimulation and sleep

Why is RLS affecting my arms for the first time now that I’m off pramipexole?

What should I try next?

Weighloss?

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