Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,350 members•16,447 posts

All posts for November 2021

BE careful when adding drugs.

Pramipexol: used it for 20 years and was taking 12 tablets .5mg Down to 1 per night. It is the only medicine I take for RLS. At one time I was taking about 4...

Pramipexol: used it for 20 years and was taking 12 tablets .5mg Down to 1 per ni...

Clarence1936

•3 years ago

1 Reply

getting off a low dose of pramipexole

I was on Permax and Mirapex at .05 mg for rls for about 20 years, before augmentation set in. I reduced the Mirapex slowly, then went off completely for 7...

I was on Permax and Mirapex at .05 mg for rls for about 20 years, before augmen...

Cather

•3 years ago

7 Replies

Help with medication

Hi all I need some advice for my mother who is 78 and has suffered with RLS for as long as I can remember she has been on quinine since 2009 and has been...

Hi all I need some advice for my mother who is 78 and has suffered with RLS for ...

Coza72

•3 years ago

12 Replies

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Clarification needed please Ellfindoe, Joolsg and others

I still struggle with the fact that RLS absolutely responds to Ropinirole, which is a dopamine-receptor agonist, but then we are told no to that, and are...

I still struggle with the fact that RLS absolutely responds to Ropinirole, which...

67Waterman

•3 years ago

22 Replies

Anyone used Vitex (Agnus castus/chasteberry) and did it help or aggravate RLS?

Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I...

Having heavy n prolonged periods so was researching solutions. Came across Vitex...

ejaji

•3 years ago

8 Replies

Getting off Pramipexole (positive story) so far

Hi all, After posting on this forum a couple of months ago, last week I started reducing my pramipexole. I was taking 2x0,125mg for 14 years and then...

Hi all, After posting on this forum a couple of months ago, last week I started ...

DizzyDuxx

•3 years ago

Be the first to reply

Sometimes the bad guys aren't so bad.

https://www.karger.com/Article/Fulltext/495425

Hidden

•3 years ago

Be the first to reply

Apple Cider vinegar tablets.

I have started to take two apple cider vinegar with turmeric, ginger & pepper capsules that I bought for a few pounds in a store and well as a bottle of...

I have started to take two apple cider vinegar with turmeric, ginger & pepper ca...

dahon

•3 years ago

9 Replies

Supplementing Dopamine

If a person has symptoms of a dopamine deficit at any time throughout the day, is there any way to boost or supplement it without rx meds? I have adhd and rls....

If a person has symptoms of a dopamine deficit at any time throughout the day, i...

JLBowman

•3 years ago

7 Replies

Question for Ellfindoe or Joolsg about Gabapentin please

I have written before, but a quick recap. I was on Ropinirole for around 17 years, starting off with 0.12mg nightly (when I have to confess I thought it was...

I have written before, but a quick recap. I was on Ropinirole for around 17 yea...

67Waterman

•3 years ago

43 Replies

Numb Feet

Well I have succeeded in stopping both the Ropinerole slow release and the Sinemet Plus ! I am now on 600mg of Pregabalin and I don’t think it’s helping much...

Well I have succeeded in stopping both the Ropinerole slow release and the Sinem...

Catlady4921

•3 years ago

29 Replies

Neurologist referral

Hi Folks What with the world going to poop I’ve not been around here for a while. I’m in the uk and finally being referred to see a Neurologist as the...

Hi Folks What with the world going to poop I’ve not been around here for a whil...

Hages

•3 years ago

50 Replies

Stretching exercises really help RLS! Please try.

Hiya - I wanted to let everyone know that my physio gave me some exercises to do for RLS (well Restless everything Syndrome...). I've been doing these - plus...

Hiya - I wanted to let everyone know that my physio gave me some exercises to do...

Dizzydisturbed

•3 years ago

34 Replies

Gabapentin and methadone.

I'm currently on 1100 mg of Gabapentin, to no effect at all. I've used Gaba twice before, backing out each time it stopped working so there's probably embedded...

I'm currently on 1100 mg of Gabapentin, to no effect at all. I've used Gaba twic...

dickJones

•3 years ago

25 Replies

Have I got RSL? New to this site

Have I got RSL? Mine is an irresistible sensation that causes me to keep fidgeting my legs in the evening when on the sofa watching tv; It drives my wife mad...

Have I got RSL? Mine is an irresistible sensation that causes me to keep fidgeti...

peterbond

•3 years ago

34 Replies

Could Chinese jujuba help with RLS?

Has anyone tried jujuba for their RLS? Here's an interesting article I found: https://pubmed.ncbi.nlm.nih.gov/14531016/ Another:...

Has anyone tried jujuba for their RLS? Here's an interesting article I found: ht...

BAK524

•3 years ago

5 Replies

UK medication help

Hi everyone, My RLS started when I was pregnant 5 years ago but has reared its ugly head again, affecting both arms too. I'm in the UK and I'm going to see...

Hi everyone, My RLS started when I was pregnant 5 years ago but has reared its ...

sophie19

•3 years ago

34 Replies

Has anyone else had coffee relieve RLS symptoms rather than exacerbate the restlessness?

Caffeine has never increased my restlessness though alcohol and sugar does. Someone on the forum posted that coffee relieved their restlessness so when I...

Caffeine has never increased my restlessness though alcohol and sugar does. Some...

BeachGolfer

•3 years ago

44 Replies

Looking back

I am late 60's & have had RLS for as long as I can remember & started out on Pergolide as I was experiencing minor irritation in the autumn/winter months so...

I am late 60's & have had RLS for as long as I can remember & started out on Pe...

joepublic

•3 years ago

12 Replies

Buprenorphine

Hi I am on a Buprenorphine patch 52.5 dose. I'm coming off Gabapentin and have now stopped Ropinerole. I'm having anxiety attacks and sensations of being...

Hi I am on a Buprenorphine patch 52.5 dose. I'm coming off Gabapentin and have...

Biscuitface

•3 years ago

39 Replies

“Careful is when you get hurt”

In my last post I offered up a problem with the use of DAs, but no solution. My father once told me "never go to your supervisor with a problem unless you also...

In my last post I offered up a problem with the use of DAs, but no solution. My ...

Hidden

•3 years ago

34 Replies

JoeR. Coming of Pramipexole and codeine. Thanks to all and especially Madlegs1, Joolsg and Elffindoe

Thanks for the swift replies, at least I am not going mad. Just to clarify I was on one tablet of Pramipexole 0.52mg at night and 2x30mg of codeine. The...

Thanks for the swift replies, at least I am not going mad. Just to clarify I was...

JoeR

•3 years ago

6 Replies

Omeprozole

Hi again. Hope everyone is having a good weekend and getting some rest. I am, as you know weaning off Roprinirole and have been given some Pregabalin by my...

Hi again. Hope everyone is having a good weekend and getting some rest. I am, ...

cicek

•3 years ago

20 Replies

JoeR. Coming of Pramipexole, RLS, going on Gabapentin Noumed and passing out when I am standing.

What's happening and why. I have had RLS for 40 years and was on Pramipexole 0.52 prolonged-release tablets and 60mg codeine at night which has stopped...

What's happening and why. I have had RLS for 40 years and was on Pramipexole 0.5...

JoeR

•3 years ago

26 Replies

Pregabalin. Is the approach I am taking dangerous in any way?

Recap - Been suffering severe RLS for over two years since stopping pregabalin very abruptly in February 2020 (which I regret) for anxiety. Prior to that had...

Recap - Been suffering severe RLS for over two years since stopping pregabalin v...

Freegaza786

•3 years ago

36 Replies

To Everyone:

This is a thank you to all who informed and encouraged me concerning the bone marrow aspiration I had this morning. I wasn't nervous at all. The procedure...

This is a thank you to all who informed and encouraged me concerning the bone ma...

Hidden

•3 years ago

4 Replies

help with side effects of Belbuca

I switched from oxycodone 5 mg once a day which I have been taking for the past 4 years to Belbuca ( Buprenorphine buccal film) 75 mcg one at bedtime about 6...

I switched from oxycodone 5 mg once a day which I have been taking for the past ...

halperinchen

•3 years ago

10 Replies

Severe rls

My rls is now so severe my insomnia is worse than ever I’m still awake at 3 and 4am. The last time I spoke to my neurologist she suggested Rotigotine patches...

My rls is now so severe my insomnia is worse than ever I’m still awake at 3 and ...

Hoochybaby

•3 years ago

23 Replies

Lumbar Puncture

My MS neurology team want me to switch MS meds ( I now have to as I'm high risk of fatal brain disease) but the new med will require a lumbar puncture. Having...

My MS neurology team want me to switch MS meds ( I now have to as I'm high risk ...

Joolsg

•3 years ago

36 Replies

IThis is Pipps I have no idea why but I keep getting locked out !

I have had to rejoin using my hubby's details. This has happened several times now

I have had to rejoin using my hubby's details. This has happened several times n...

Draughtsman

•3 years ago

12 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for November 2021

BE careful when adding drugs.

getting off a low dose of pramipexole

Help with medication

Clarification needed please Ellfindoe, Joolsg and others

Anyone used Vitex (Agnus castus/chasteberry) and did it help or aggravate RLS?

Getting off Pramipexole (positive story) so far

Sometimes the bad guys aren't so bad.

Apple Cider vinegar tablets.

Supplementing Dopamine

Question for Ellfindoe or Joolsg about Gabapentin please

Numb Feet

Neurologist referral

Stretching exercises really help RLS! Please try.

Gabapentin and methadone.

Have I got RSL? New to this site

Could Chinese jujuba help with RLS?

UK medication help

Has anyone else had coffee relieve RLS symptoms rather than exacerbate the restlessness?

Looking back

Buprenorphine

“Careful is when you get hurt”

JoeR. Coming of Pramipexole and codeine. Thanks to all and especially Madlegs1, Joolsg and Elffindoe

Omeprozole

JoeR. Coming of Pramipexole, RLS, going on Gabapentin Noumed and passing out when I am standing.

Pregabalin. Is the approach I am taking dangerous in any way?

To Everyone:

help with side effects of Belbuca

Severe rls

Lumbar Puncture

IThis is Pipps I have no idea why but I keep getting locked out !

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