Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,319 members•16,383 posts

All posts for October 2019

My RLS seems to be under control with these pads!

I read about these NCAP pads about 3 days ago, seemed intrigued, ordered them and tried it last night with quite a bit of success, and that is saying a lot...

I read about these NCAP pads about 3 days ago, seemed intrigued, ordered them an...

LanaCSR

•5 years ago

44 Replies

RLS and Hemochromatosis

I have had RLS since I was approx 8 years old (I am not 80). Caused insomnia my entire life. Just last year it was discovered I had hemochromatosis with a...

I have had RLS since I was approx 8 years old (I am not 80). Caused insomnia my...

hscarangella

•5 years ago

12 Replies

RLS

Docs And. Consultants say there is no cure, we just have to manage it. People W who don’t have it just don’t realise what it’s like. I’m on ropinirole...

Docs And. Consultants say there is no cure, we just have to manage it. People ...

Sweetdancer

•5 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Tried everything and have found relief

I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and...

I am 68 years old and have had RLS for at least 25 years. I have tried everythin...

MATTIELUKE

•5 years ago

24 Replies

JOR

Hi, my wife wants me to try acupuncture. I am sure someone out there has tried it. Does it work or will I be wasting my money as I suspect.

Hi, my wife wants me to try acupuncture. I am sure someone out there has tried i...

JoeR

•5 years ago

25 Replies

What do you do for anxiety?

Dear RLS friends: I have a mild case of RLS, but am suffering almost unbearable levels of anxiety both because of insomnia and not knowing when the legs will...

Dear RLS friends: I have a mild case of RLS, but am suffering almost unbearable ...

Zoreneedssleep

•5 years ago

11 Replies

suffer of RLS most of my life

Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up...

Long before requip became the go-to drug for RLS I started out with tramadol 50 ...

fred6113

•5 years ago

2 Replies

Peripheral neuropathy.

Many people coming here complain of symptoms which are on the verge of rls, but simply don't sound right. The alternative is, in many cases, peripheral...

Many people coming here complain of symptoms which are on the verge of rls, but ...

Madlegs1

•5 years ago

12 Replies

Waking up

Does anyone wake up in the middle of the night with RLS? I do and my doctor told me that is not part of RLS

Does anyone wake up in the middle of the night with RLS? I do and my doctor tol...

1234kids

•5 years ago

11 Replies

Life after pramipraxole

I got off pramipaxiole a little less than a month ago. Withdrawal was hell but worth it. My life has greatly improved. I am working on a a very low sugar and...

I got off pramipaxiole a little less than a month ago. Withdrawal was hell but w...

senders

•5 years ago

8 Replies

Pacing, walking, rocking

I have had the worst 4 days/nights for a long time, cannot sit still, cannot stand still, CANNOT lay still. Really fed up!

I have had the worst 4 days/nights for a long time, cannot sit still, cannot sta...

Tamaroy

•5 years ago

7 Replies

Leads in Switzerland

I recently moved from the US to Switzerland and I would like to find an English speaking doctor with knowledge/experience of RLS. I am living in the canton of...

I recently moved from the US to Switzerland and I would like to find an English ...

YodaDog

•5 years ago

2 Replies

Dr Winkleman appointment booked

Thanks to everyone who has been helping me out I truly appreciate your support Appointment booked in Boston late Thursday afternoon 7 th 🙂with Dr Winkleman...

Thanks to everyone who has been helping me out I truly appreciate your support ...

Shumbah

•5 years ago

4 Replies

Gabapentin

My consultant has put me on Gabapentin after trying all the usual stuff (Ropinirole, Pramipexole). Has anyone any experience of using this medication?

My consultant has put me on Gabapentin after trying all the usual stuff (Ropini...

JonathanW65

•5 years ago

28 Replies

New member

Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every...

Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life....

Tilly73

•5 years ago

16 Replies

Question about stopping pramipexole

I was so hoping that at this point (day 6 with no pramipexole) I would be able to say, "I did it!" but such is not the case. I started the process few weeks...

I was so hoping that at this point (day 6 with no pramipexole) I would be able t...

Sumoucat

•5 years ago

5 Replies

Sleeping Meds

Are there any sleeping medications that don't increase RLS symptoms? I have tried CBD and Melatonin but neither have helped. Over the counter meds and...

Are there any sleeping medications that don't increase RLS symptoms? I have tr...

mantel

•5 years ago

13 Replies

If you are sending Christmas cards this year, you can help us at the same time.

If you send Christmas cards please choose ours this year. Take a look. ;) https://www.rls-uk.org/products A packet of ten cellophane-wrapped cards with...

If you send Christmas cards please choose ours this year. Take a look. ;) https...

Kaarina

Administrator•5 years ago

Be the first to reply

Anyone got a hacksaw?

My left leg is driving me batty tonight! Anyone else up with rls tonight? X

CatherineLindsay

•5 years ago

9 Replies

First do me no harm

Just thought I would put this out there This movie is based on a true story it is absolutely horrific and gut wrenching treatment by medical profession of a...

Just thought I would put this out there This movie is based on a true story it...

Shumbah

•5 years ago

8 Replies

Looking for New Doctor

Does anyone on here know of a good RLS neurologist in the SW Pennsylvania area or in Pittsburgh?

Does anyone on here know of a good RLS neurologist in the SW Pennsylvania area o...

wcp2008

•5 years ago

4 Replies

Dr Winkleman Dr Buchfuhrer

Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping...

Hi Restless Team Just wondering what the difference in care is between the 2 ...

Shumbah

•5 years ago

21 Replies

Has anyone had any success returning to using a DA after a few years break ?

Hi there For 15 years I had great success in using 1/2 mg of Ropinerol every night and then it stopped working. After reading about augmentation on here I...

Hi there For 15 years I had great success in using 1/2 mg of Ropinerol every ni...

mantel

•5 years ago

21 Replies

Ha anyone tried the new drug Belbuca?

My Doctor prescribed this drug to help my restless legs. It really helps but it costs $400.00 a month. I can only afford one more month of this.

My Doctor prescribed this drug to help my restless legs. It really helps but it...

Marvene1942

•5 years ago

4 Replies

Desperate

Buckle up for a long one. My mum is 57 and has suffered with RLS since she was a child but it got really bad when she was around 30 and pregnant. I think it...

Buckle up for a long one. My mum is 57 and has suffered with RLS since she was a...

adeleoliver

•5 years ago

9 Replies

Ropinirole vs Pramipexole

Guys - I've previously been on pramipexole and hated the way it made me feel during the day, I had tiredness, brain fog and difficultly from it (2x0.088MG). I...

Guys - I've previously been on pramipexole and hated the way it made me feel dur...

gentoorax

•5 years ago

15 Replies

How many Dopamine meds have you had

I have had Pramapixole Requip Xl Ropineral and the patch , Pregablin Gabapentin Tramodol and Amatriptyline

I have had Pramapixole Requip Xl Ropineral and the patch , Pregablin Gabapent...

beady3

•5 years ago

10 Replies

RLS is ruining my life....

I’m new to this site! I’m 70 years old and my RLS has been worsening over many years. I’m sure well I have to say is nothing you all haven’t heard or felt...

I’m new to this site! I’m 70 years old and my RLS has been worsening over many y...

Bks429

•5 years ago

45 Replies

Some helpful tips!

Go to healthline.com rls for some really good tips on treatments for RLS. Good luck!

Go to healthline.com rls for some really good tips on treatments for RLS. Good l...

Wanman4

•5 years ago

1 Reply

Pramepixel

Thanks for all your emails, I am going to stay with the patch

beady3

•5 years ago

1 Reply

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for October 2019

My RLS seems to be under control with these pads!

RLS and Hemochromatosis

RLS

Tried everything and have found relief

JOR

What do you do for anxiety?

suffer of RLS most of my life

Peripheral neuropathy.

Waking up

Life after pramipraxole

Pacing, walking, rocking

Leads in Switzerland

Dr Winkleman appointment booked

Gabapentin

New member

Question about stopping pramipexole

Sleeping Meds

If you are sending Christmas cards this year, you can help us at the same time.

Anyone got a hacksaw?

First do me no harm

Looking for New Doctor

Dr Winkleman Dr Buchfuhrer

Has anyone had any success returning to using a DA after a few years break ?

Ha anyone tried the new drug Belbuca?

Desperate

Ropinirole vs Pramipexole

How many Dopamine meds have you had

RLS is ruining my life....

Some helpful tips!

Pramepixel

Search posts

Pinned Posts

Latest poll

Which country do you live in?

Topics

Archive