Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,350 members•16,447 posts

All posts for September 2019

RSL is making me depressed

Hi after watching the program on rls I realised I wasn't the only one,so when I sit and rest usually about 8 my legs start like electric shocks that build up...

Hi after watching the program on rls I realised I wasn't the only one,so when I ...

Lolabear1

•5 years ago

25 Replies

RLS in the news- MS magazine

My monthly MS magazine, New Pathways has included an article on RLS. This is the first time it’s ever been written about in my magazine!

My monthly MS magazine, New Pathways has included an article on RLS. This is the...

Joolsg

•5 years ago

1 Reply

Please help. Severe nerve pain. In dialysis and rls so bad I have started cutting some of my treatment.

I need help. I thought I have my rls under control for awhile. I am now having severe depression. I was taking requip for some time which I found myself. I am...

I need help. I thought I have my rls under control for awhile. I am now having s...

ESRDRLS

•5 years ago

19 Replies

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Doctors' "expertise"?

Hi Snowdrop, I hate it when these doctors think they know it all! OK, they may have studied all the research for the medicines we take, but they're NOT...

Hi Snowdrop, I hate it when these doctors think they know it all! OK, they may h...

Lindy14

•5 years ago

2 Replies

RLS MEDICATION ADVICE + SHARE OTHERS EXPERIENCE

Had rls for 2 or 3 years now. Refuse to use prescription drugs after reading extreme side effects enclosed in the pack. A friend recently recommended taking...

Had rls for 2 or 3 years now. Refuse to use prescription drugs after reading ext...

Meritus

•5 years ago

10 Replies

Pergolide

I was taking pergolide for Restless Legs for about 15 years plus and it was effective. It was a joy after the misery of years of RLS. However, six years ago...

I was taking pergolide for Restless Legs for about 15 years plus and it was effe...

Snowdrop1947

•5 years ago

13 Replies

Anyone suffer severe nausea after no sleep?

Hi, this may be a silly question as I've always associated no sleep with nausea. Now I've just spent an extended four days and counting with severe nausea and...

Hi, this may be a silly question as I've always associated no sleep with nausea....

restlessstoz

•5 years ago

23 Replies

Levodopa

Any tried this? If so does it work?

Wanman4

•5 years ago

13 Replies

Treatment for a recovering alcoholic

I first want to thank everyone for sharing. I have learned a lot. I have had RLS since my twenties and I am now 68. I took Mirapex for about 7 years before I...

I first want to thank everyone for sharing. I have learned a lot. I have had RLS...

MATTIELUKE

•5 years ago

6 Replies

Dopamine agonist withdrawal

Hello to all, I am looking for advice, support and somewhere to whine. I wrote before as I have got off a daily dose of SR pramipexole .75 mg and 1 tab...

Hello to all, I am looking for advice, support and somewhere to whine. I wrote ...

picol

•5 years ago

16 Replies

Is it RLS

Hi I'm new. I have had the same feelings in my legs since I was 9 years old. Told it was growing pains, 17 told it was housemaids knee. 25 it was arthritis....

Hi I'm new. I have had the same feelings in my legs since I was 9 years old. To...

crazy-chris

•5 years ago

2 Replies

GPS!!

Went to see Gp yesterday to check my feretin levels. He advised taking zinc and Magnesium for RLS. Anyone else take that? If so is it useful?

Went to see Gp yesterday to check my feretin levels. He advised taking zinc and ...

trekking

•5 years ago

11 Replies

Back on the Pramipexole

So I couldn't keep up with the withdrawal symptoms or maybe permanent worsening of the RLS. I have been taking Pramipex 0.125mg now. It's almost been a week...

So I couldn't keep up with the withdrawal symptoms or maybe permanent worsening ...

Heatherlss

•5 years ago

16 Replies

Is it really RLS or a back issue?

I have had RLS for 3 years. But, I also have trouble with my back. My RLS is controlled only when I don’t do anything strenuous. Such as carrying laundry,...

I have had RLS for 3 years. But, I also have trouble with my back. My RLS is con...

Callahan107

•5 years ago

8 Replies

Ropinarole Gabapentin Pregabalin

I have had restless leg syndrome for over 10 years. I augmented recently on ropinarole and are now taking pregabalin instead. Its early days yet but I seem...

I have had restless leg syndrome for over 10 years. I augmented recently on rop...

Blavit

•5 years ago

10 Replies

Even more advise please!

Hi everyone, I’m trying to get off Ropinirole, I have lowered the dose over the last few days which means I am now on 0.25mg. I also started on 25mg of...

Hi everyone, I’m trying to get off Ropinirole, I have lowered the dose over the ...

Scattypatty

•5 years ago

12 Replies

Sleepless nights

My restless legs seem to be all consuming usually they startaround 5.00 in the afternoon,they start sometimes in thegroin area or in my calfs,on a bad night i...

My restless legs seem to be all consuming usually they startaround 5.00 in the a...

frank1942

•5 years ago

5 Replies

Channel 5 programme about Sleep

Hi everyone .Next Wednesday theres a programme -(I think its called secrets of Sleep -not sure though -next time I see a preview I'll remember what the correct...

Hi everyone .Next Wednesday theres a programme -(I think its called secrets of S...

Sara_2611

•5 years ago

7 Replies

RLS, my discovery so far....

Hi I am a Dutch lady and have had an adult life long history of rls. I gave up coffee a few months ago, because of the fatigue it was causing, ok not easy,...

Hi I am a Dutch lady and have had an adult life long history of rls. I gave up ...

Yoke2

•5 years ago

20 Replies

Iron level

I received news from my G.P. today that my ferritin level has gone up from 98 to 130. This has taken about 6 months from when it was 47. I shall continue...

I received news from my G.P. today that my ferritin level has gone up from 98 to...

bedith6

•5 years ago

3 Replies

WHAT AM I DOING?

I have had 11 iron infusions so far , 1 more to go. It has helped so much. I see a Dr. who studied with Dr. Buchfurer on Oct. 14 . In the mean time I am trying...

I have had 11 iron infusions so far , 1 more to go. It has helped so much. I see...

sweetiepye

•5 years ago

27 Replies

Advice

“7 lifestyle changes to improve restless leg syndrome” Having been woken up by what I can only describe as restless body, imagine my surprise when the first...

“7 lifestyle changes to improve restless leg syndrome” Having been woken up by w...

martino

•5 years ago

27 Replies

Neupro helps a little

My sleep study doctor said my main issue affecting my sleep is restless leg. He gave me a sample of Neupro which is a patch. It helped a little bit. Last night...

My sleep study doctor said my main issue affecting my sleep is restless leg. He ...

gage816

•5 years ago

3 Replies

Give as You Live donations from online purchases

If members buy online, please consider using Give as You live to raise money for RLS UK. It’s really easy to sign up and use the app on your computer, laptop...

If members buy online, please consider using Give as You live to raise money for...

Joolsg

•5 years ago

3 Replies

Time for a change

I am a 42 year old woman and I have been dealing with rls for almost 20 years now. I was on requip for about 5 years then noticed it was getting worse so my dr...

I am a 42 year old woman and I have been dealing with rls for almost 20 years no...

Want2sleep

•5 years ago

15 Replies

RLS Awareness Day

I’ve spent today tweeting about RLS as it’s RLS awareness Day. Is there any way we can find famous people who suffer with RLS and ask them to do podcasts for...

I’ve spent today tweeting about RLS as it’s RLS awareness Day. Is there any way ...

Joolsg

•5 years ago

22 Replies

Dreading next road trip 9 hour drive.

I used to be able to be the the car more hours than not. Now it's torture, Evil torture. I can't even enjoy a 30-40 minute ride. My family doesn't get it.i...

I used to be able to be the the car more hours than not. Now it's torture, Evil ...

nopeno1home

•5 years ago

4 Replies

Pramipexole and Travel

I am very paranoid about taking medication abroad, particularly as I am travelling to the Middle East (Qatar). I cannot find anything online which would...

I am very paranoid about taking medication abroad, particularly as I am travelli...

catherinem13

•5 years ago

8 Replies

Autism physical devices

Anyone tried any autism devices? https://www.got-specialkids.com/Sensory-Squeeze-Lounger-p/3982.htm

Anyone tried any autism devices? https://www.got-specialkids.com/Sensory-Squeeze...

ratfancy

•5 years ago

5 Replies

Withdrawal from ropinarole

I have been on ropinarole for 10 years starting at 1mg then moving on to 3mg daily. I think I started argumenting because I couldn't sleep any more. I started...

I have been on ropinarole for 10 years starting at 1mg then moving on to 3mg dai...

Blavit

•5 years ago

6 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for September 2019

RSL is making me depressed

RLS in the news- MS magazine

Please help. Severe nerve pain. In dialysis and rls so bad I have started cutting some of my treatment.

Doctors' "expertise"?

RLS MEDICATION ADVICE + SHARE OTHERS EXPERIENCE

Pergolide

Anyone suffer severe nausea after no sleep?

Levodopa

Treatment for a recovering alcoholic

Dopamine agonist withdrawal

Is it RLS

GPS!!

Back on the Pramipexole

Is it really RLS or a back issue?

Ropinarole Gabapentin Pregabalin

Even more advise please!

Sleepless nights

Channel 5 programme about Sleep

RLS, my discovery so far....

Iron level

WHAT AM I DOING?

Advice

Neupro helps a little

Give as You Live donations from online purchases

Time for a change

RLS Awareness Day

Dreading next road trip 9 hour drive.

Pramipexole and Travel

Autism physical devices

Withdrawal from ropinarole

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