Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,435 members • 15,103 posts

All posts for August 2018

Writing to Dic Carlson...

Hey, Dic Carlson, What did you find out with the special doctor you went to see, after your camping trip? It has been a long time since I have been on here,...

Hey, Dic Carlson, What did you find out with the special doctor you went to see...

lauraflora

•6 years ago

4 Replies

Doctor visit a bit disappointing

Just back from doctors. Would not give me an iron supplement as my level at 68was normal. I showed her the article that said that this is not normal for RLS...

Just back from doctors. Would not give me an iron supplement as my level at 68wa...

Courtney-smythe1963

•6 years ago

17 Replies

Short sleep, awake, snack then much better sleep

Morning All I hope you can give me some advice or confirm my action. I have been having RLS for many years now but for the past 10 days I have had a lot of...

Morning All I hope you can give me some advice or confirm my action. I have be...

SimonMorriss

•6 years ago

5 Replies

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Hi Restless" Leggers", New here and Happy to have found you.!

I have dealt with RLS for many years. It always seemed to be an annoyance and I found ways to deal with it without medication, as many of you have. Three years...

I have dealt with RLS for many years. It always seemed to be an annoyance and I ...

rukidding

•6 years ago

3 Replies

Restiflex foot wraps

I have been reading about these and wondered if anyone had tried them. Scientific evidence is scant, only anecdotal evidence says that they have “transformed...

I have been reading about these and wondered if anyone had tried them. Scientifi...

Courtney-smythe1963

•6 years ago

4 Replies

Positive support only

I am new to RLS and came onto this website for some support. Does anyone have anything positive to offer as reading the posts has sent me into a spiral of...

I am new to RLS and came onto this website for some support. Does anyone have an...

Courtney-smythe1963

•6 years ago

68 Replies

Leg cramps

As I start to write I realised I should have searched for relevant previous comments rather than waste other people’s time. Anyway I have started. 4.30 this...

As I start to write I realised I should have searched for relevant previous comm...

martino

•6 years ago

24 Replies

Cost of lyrica

Just found out that lyrica will cost me over $300 a month with my insurance. Can’t afford that. Don’t know where to turn this next two weeks before my...

Just found out that lyrica will cost me over $300 a month with my insurance. Ca...

Yakester

•6 years ago

14 Replies

Antidepressants

Are there antidepressants that do not exacerbate rls? I’m reaching crisis point with anxiety and depression.

Are there antidepressants that do not exacerbate rls? I’m reaching crisis point...

Yakester

•6 years ago

7 Replies

RLS and magnesium

I was suffering from RLS for about 5 yrs and only an year or so this I understood as syndrome. After trying several.. I tried magnesium and it worked. I...

I was suffering from RLS for about 5 yrs and only an year or so this I understoo...

P257

•6 years ago

3 Replies

2018 RLS-UK Christmas card

We are delighted to announce that the 2018 RLS-UK Christmas card is now available to purchase. Yes, it's August (just-about) but we have already had enquiries...

We are delighted to announce that the 2018 RLS-UK Christmas card is now availabl...

Daragh

•6 years ago

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Neupro and ropinorole

Have been on ropinorole for about 10 years and they were quite effective on 3mg dosage but recently I've had some really bad days and nights so my doctor has...

Have been on ropinorole for about 10 years and they were quite effective on 3mg ...

Crazy1921

•6 years ago

2 Replies

Out of the blue

Up until a few months ago I was taking gabapentin and barely having a symptom. Now I am up half or all night pacing. I can't even stay in the bed for 5...

Up until a few months ago I was taking gabapentin and barely having a symptom. N...

marsha2306

•6 years ago

39 Replies

Lyrica

I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate...

I have read some of your posts about Lyrica and am not feeling very positive abo...

Yakester

•6 years ago

33 Replies

Potassium Citrate and RLS

I have been experimenting with potassium citrate following a report of an experiment where 68 patients out of a sample of 68 (ie 100%) were free of the...

I have been experimenting with potassium citrate following a report of an experi...

Graham3196

•6 years ago

10 Replies

Opioids

I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4...

I have been off pramipexole for close to two weeks. Then my (new) neurologist s...

Yakester

•6 years ago

9 Replies

Restless legs, medication, OCD

My father has rls and currently uses Rotigotine Transdermal Patch. He has used other oral medications with the same active ingredient. It is causing him to...

My father has rls and currently uses Rotigotine Transdermal Patch. He has used ...

killerunicorn

•6 years ago

2 Replies

Cannibus Oil

Has anyone tried cannabis oil to treat RLS? Interested in any success or not so successful stories

Has anyone tried cannabis oil to treat RLS? Interested in any success or not so ...

Pipsee22

•6 years ago

3 Replies

Back from Ireland...experiment

While in Ireland my RLS was almost non existent. It was so nice. But I have to admit to doing some drug experiments. I am currently on 5mg methadone and...

While in Ireland my RLS was almost non existent. It was so nice. But I have to a...

Jrskyhook32

•6 years ago

2 Replies

medicine to counteract sleepiness?

I remember a few months ago reading a post about a medicine that helps counteract when suffering sleepiness either from RLS causing us to lose sleep at night...

I remember a few months ago reading a post about a medicine that helps counterac...

LanaCSR

•6 years ago

11 Replies

Zoloft

I have been prescribed Zoloft for depression. Does anyone know if this would effect my rls?

I have been prescribed Zoloft for depression. Does anyone know if this would ef...

Ikeeptrying

•6 years ago

10 Replies

Withdrawal update

Hello So I’m in week 2 of withdrawal from ropinorole I am now on 5mg (it was 6) reducing 0.5 a week. I spread it out over the day but always leave 2mg for...

Hello So I’m in week 2 of withdrawal from ropinorole I am now on 5mg (it was 6...

Lucyjane29

•6 years ago

9 Replies

How were your experiences coming off DAs?

Hi all, I've had RLS since about 10 years. I've taken Pramipexole for it nightly for about 6 years of those. I was up to 0.54mg per night, having to increase...

Hi all, I've had RLS since about 10 years. I've taken Pramipexole for it nightly...

Wonko_TheSane

•6 years ago

5 Replies

Casey a.

Had RLS from 10yrs to 20yrs subsided till I was 70yrs. Terrible, doc put me on sinemet fine for 12mths then augmentation, changed to pramipexol 18 yrs ago...

Had RLS from 10yrs to 20yrs subsided till I was 70yrs. Terrible, doc put me on ...

Kcay

•6 years ago

4 Replies

Want to meet other people who live with RLS?

There's still time to confirm your attendance at our 2018 Annual General Meeting, which will take place next Saturday (1st September) in London. Our AGM...

There's still time to confirm your attendance at our 2018 Annual General Meeting...

Daragh

•6 years ago

1 Reply

GABAPENTIN.

Came off Ropinerole and started Gabapentin 300mg per day starting with 100mg per night. I only took for 3 nights as I had horrible jerky legs all night long....

Came off Ropinerole and started Gabapentin 300mg per day starting with 100mg pe...

chris_elly30

•6 years ago

16 Replies

RLS

Hi everyone I take Pramipexole and that is the only one that works for me. I have the odd day when nothing works but most days as long as I start taking them...

Hi everyone I take Pramipexole and that is the only one that works for me. I hav...

moysie

•6 years ago

5 Replies

Has anyone tried chiropractic care for RLS?

I ask because I came upon this: What should I do if I have restless leg syndrome but don’t want to take medication? Don’t worry, you’re in luck! Your local...

I ask because I came upon this: What should I do if I have restless leg syndrome...

BoldMove

•6 years ago

25 Replies

How much oxy?

How much oxy can I take in an evening? I am a friggin’ mess. Crying, walking, rocking. I can’t even just stand due to RLS symptoms!! Must walk. I am at...

How much oxy can I take in an evening? I am a friggin’ mess. Crying, walking,...

Yakester

•6 years ago

6 Replies

Re : Dopamine agonists .. help .. plz ! 😱

Hi fellow rls sufferers .. Very desperate at this point … I tried Ropinirole (Requip) for my pretty bad rls .. Kind’a masked rls .. but had horrible side...

Hi fellow rls sufferers .. Very desperate at this point … I tried Ropinirole (R...

Svengolly

•6 years ago

16 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2018

Writing to Dic Carlson...

Doctor visit a bit disappointing

Short sleep, awake, snack then much better sleep

Hi Restless" Leggers", New here and Happy to have found you.!

Restiflex foot wraps

Positive support only

Leg cramps

Cost of lyrica

Antidepressants

RLS and magnesium

2018 RLS-UK Christmas card

Neupro and ropinorole

Out of the blue

Lyrica

Potassium Citrate and RLS

Opioids

Restless legs, medication, OCD

Cannibus Oil

Back from Ireland...experiment

medicine to counteract sleepiness?

Zoloft

Withdrawal update

How were your experiences coming off DAs?

Casey a.

Want to meet other people who live with RLS?

GABAPENTIN.

RLS

Has anyone tried chiropractic care for RLS?

How much oxy?

Re : Dopamine agonists .. help .. plz ! 😱

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