Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,319 members•16,383 posts

All posts for June 2023

Peaceful nights at last!

I started posting on this forum 2 years ago but it is many months since I last posted so I wanted to tell you what is proving to be a happy ending to my long...

I started posting on this forum 2 years ago but it is many months since I last p...

Skysgal

•1 year ago

32 Replies

Need clarification please

As I reduce my Requip dosage, and continue my OTC meds which seem to be helping, could I stabilize enough to tolerate infrequent breakthroughs at the lower...

As I reduce my Requip dosage, and continue my OTC meds which seem to be helping,...

BarnGir1

•1 year ago

6 Replies

Pramipexole relief

My doctor has just prescribed quinine as a relief from Pramipexole which I have been on for over 20 years. I was so taken aback I couldn't argue with her, but...

My doctor has just prescribed quinine as a relief from Pramipexole which I have ...

Carowind

•1 year ago

30 Replies

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Ropinirole reduction

Hi fellow sufferers, I have had rls for almost 25 years, began during my second pregnancy. I have been switching from Ropinirole and Pramipexole for the...

Hi fellow sufferers, I have had rls for almost 25 years, began during my second...

21years

•1 year ago

26 Replies

Crohn's flare up and RLS

I'm having a bad Crohn's flare up right now. All of my medication for RLS has stopped working. Oxycodone , iron, magnesium , non of it is helping. RLS has...

I'm having a bad Crohn's flare up right now. All of my medication for RLS has s...

pennygates

•1 year ago

9 Replies

Low iron

I’ve been struggling with my RLS more than usual lately and asked my doctor to test my iron levels. They came back low 5. I take ferrous fumarate as I have...

I’ve been struggling with my RLS more than usual lately and asked my doctor to t...

Heather-rose

•1 year ago

5 Replies

alternative to Sytron Liquid Iron

hi, I have just collected my prescription from the doctors and they have no Sytron in stock. No have any of the local chemists. There seems to be a shortage....

hi, I have just collected my prescription from the doctors and they have no Syt...

RestlessMe

•1 year ago

3 Replies

Taking Gabapentin and Ropinirole

Question- following Sue’s excellent advice (which I originally debated- I was wrong!!!), my doctor, who knew little about RLS and now has plainly read the Mayo...

Question- following Sue’s excellent advice (which I originally debated- I was wr...

Strike26

•1 year ago

11 Replies

i need all your help!

i have posted a few times and have had excellent support from so many of you. I have finally got off pramipexole, over six months. I managed to get pregabalin...

i have posted a few times and have had excellent support from so many of you. I ...

Jukebox55

•1 year ago

3 Replies

RLS-related difficulty in work

I'm trying to reach out to those with RLS-related difficulty working. My growing concern is body fatigue.

I'm trying to reach out to those with RLS-related difficulty working. My growi...

Elouis

•1 year ago

4 Replies

2 year old Toddler with RLS

Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle...

Hi there! Came here out of desperation. My soon to be 2 year old has had terribl...

OrangeDino

•1 year ago

36 Replies

Gabapentin or not?

Hello everyone. I have been on Gabapentin for 5/6 weeks now, taking 4 x 300 mgs per day. My sleep pattern has been very disturbed. I followed Sue’s advice and...

Hello everyone. I have been on Gabapentin for 5/6 weeks now, taking 4 x 300 mgs ...

Lineker

•1 year ago

7 Replies

A wonderful GP

I started seeing a new GP who started work in my local GP practice just before covid and she has been Marvellous, she's from South Africa and really listens...

I started seeing a new GP who started work in my local GP practice just before c...

Loopylegs

•1 year ago

9 Replies

Neurologist and dr won't renew script for buprenorphine

My neurologist and dr won't give me a script for buprenorphine for my restless legs as they want me off opioid. I said that buprenorphine works, the...

My neurologist and dr won't give me a script for buprenorphine for my restless l...

Hidden

•1 year ago

25 Replies

RLS for 30 years

Hi Judy here from Australia. I have had RLS for 30 years or more. I think my mother did too but it wasn’t diagnosed. My daughter has had it since being...

Hi Judy here from Australia. I have had RLS for 30 years or more. I think my mot...

Magna7789

•1 year ago

6 Replies

Goodbye Sifrol

I have been only taking half of .125mg sifrol for the last 4 weeks so tonight plan not to take any…..finally!….I have found that codeine was helping less and...

I have been only taking half of .125mg sifrol for the last 4 weeks so tonight pl...

Retiredlady

•1 year ago

10 Replies

HELP PLEASE

HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropinirole and am now down to 1.5 mg. from the original 4 mg. per day. I was in...

HELP PLEASE -Following your advice, Sue Johnson I have been reducing my Ropiniro...

milly-22

•1 year ago

14 Replies

A Sad Story

Joanna Morland, has asked us to share her mother's sad story which can by viewed by clicking on the link below....

Joanna Morland, has asked us to share her mother's sad story which can by viewed...

Kaarina

Administrator•1 year ago

9 Replies

Methadone adjustment/Horizant

Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. After years on pregabalin more or less successfully treating my PLMD, it...

Just started methadone 1.5 mL. I have a lot of trouble with drug side effects. ...

wantokporo

•1 year ago

9 Replies

my story

I live in the US and have had RLS and peripheral neuropathy for a number of years and controlled it using tramadol. My doctor took me off of it because of...

I live in the US and have had RLS and peripheral neuropathy for a number of year...

Hidden

•1 year ago

11 Replies

what non-medications can I use at night to try to stop the RLS

What non-medications can I use when I have RLS at night. I have RLS only in my left ankle/foot and have peripheral neuropathy in my legs and feet. I do the...

What non-medications can I use when I have RLS at night. I have RLS only in my ...

Hidden

•1 year ago

20 Replies

Buprenorphine and nausea

I will be switching from methadone to buprenorphine. How common is nausea as a side effect? Does it go away over time? My doctor gave me 60 anti-nausea...

I will be switching from methadone to buprenorphine. How common is nausea as a ...

ratfancy

•1 year ago

17 Replies

Gapalentin dosage

HelloIt's been a while since I have needed any help/advice on Restless Legs thankfully. As advised by Sue Im no longer on Repinole, thank you and now on 600mg...

HelloIt's been a while since I have needed any help/advice on Restless Legs than...

Hive

•1 year ago

3 Replies

Blood Test results

Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum...

Hi Having finally got broadband working again I was able to check my blood test...

Rameau

•1 year ago

5 Replies

Iron levels normal

If my iron levels are within range is there any chance taking an iron supplement would be beneficial? I know too much is dangerous. Sorry if answer is...

If my iron levels are within range is there any chance taking an iron supplement...

Testthis

•1 year ago

4 Replies

OTC meds

Now that I have started cutting back on Ropinerole, I am using three over the counter meds. My first week was not as difficult as I expected but I know it will...

Now that I have started cutting back on Ropinerole, I am using three over the co...

BarnGir1

•1 year ago

4 Replies

Wedding update

So the dreaded day. It took us 6.5 hrs to do a 4 hr journey as had to keep stopping for husband to walk RLS off. No sleep on night before wedding even with...

So the dreaded day. It took us 6.5 hrs to do a 4 hr journey as had to keep stopp...

Ephemera

•1 year ago

7 Replies

Temgesic/Buprenorphine

Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine...

Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphin...

Joolsg

•1 year ago

7 Replies

Pregabalin

I take 250 mg Pregabalin at night and 60 mg codeine I can just about manage my rls although I never get any sleep with them unti the early hours of the morning...

I take 250 mg Pregabalin at night and 60 mg codeine I can just about manage my r...

Hoochybaby

•1 year ago

5 Replies

No luck

Not looking good guys on getting the buprenorphine here in Ireland, my doctor prescribed it for me but the pharmacist just rang me to say that its not...

Not looking good guys on getting the buprenorphine here in Ireland, my doctor p...

Loopylegs

•1 year ago

10 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2023

Peaceful nights at last!

Need clarification please

Pramipexole relief

Ropinirole reduction

Crohn's flare up and RLS

Low iron

alternative to Sytron Liquid Iron

Taking Gabapentin and Ropinirole

i need all your help!

RLS-related difficulty in work

2 year old Toddler with RLS

Gabapentin or not?

A wonderful GP

Neurologist and dr won't renew script for buprenorphine

RLS for 30 years

Goodbye Sifrol

HELP PLEASE

A Sad Story

Methadone adjustment/Horizant

my story

what non-medications can I use at night to try to stop the RLS

Buprenorphine and nausea

Gapalentin dosage

Blood Test results

Iron levels normal

OTC meds

Wedding update

Temgesic/Buprenorphine

Pregabalin

No luck

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