Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,435 members • 15,102 posts

All posts for September 2020

Recommendation for a neurologist in London

Hello all - I am 38 years old. I have been having symptoms , intermittently, for over a year now (might be earlier, but were mild and infrequent to pay...

Hello all - I am 38 years old. I have been having symptoms , intermittently, for...

MrNigam

•4 years ago

7 Replies

Pregabalin

Hi, I recently changed medication from. Pramipexole which was augmenting to Pregabalin. I have worked my dosage up from the initial 25mg per night to 150mg....

Hi, I recently changed medication from. Pramipexole which was augmenting to Preg...

Hidden

•4 years ago

22 Replies

How can I upload a pdf please

Hi I’m trying to post Dr Bs article about opioid use in RLS. It’s in pdf. Can anyone tell me how to or whether its possible please?

Hi I’m trying to post Dr Bs article about opioid use in RLS. It’s in pdf. Can a...

puzzler1

•4 years ago

11 Replies

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Does anyone else have severe leg spasms with their RLS?

Untreated I used to have a complete spasm of both legs and basically entire body every 13seconds you could set a clock by it. Mirapex was a miracle drug or so...

Untreated I used to have a complete spasm of both legs and basically entire body...

Marky1017

•4 years ago

19 Replies

No results from ferritin infusion

My ferritin level was 41; after 4 months of every-other-day oral iron bisglycinate, it went to only 64. Then came an iron infusion. That was two months and...

My ferritin level was 41; after 4 months of every-other-day oral iron bisglycin...

grandpianoman

•4 years ago

7 Replies

Here's Dr Buchfuhrer's response to Temgesic use

I asked Dr B if he had any evidence or studies to support Mrs P's request to have Temgesic prescribed for refactory RLS in the UK. I'll try to add the pdf he...

I asked Dr B if he had any evidence or studies to support Mrs P's request to hav...

puzzler1

•4 years ago

14 Replies

Temgesic - letter to the Consultant - raising the profile

If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write...

If you take a look at my post 'Thought for the Day' you'll understand the contex...

puzzler1

•4 years ago

9 Replies

Buprenorphine/Subutex

Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is working with me on the withdrawal from pramipexole. The quick background on my RLS...

Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is wor...

erinjee

•4 years ago

30 Replies

Has anyone tried Low Dose Naltrexone (LDN) for RLS?

Hi, I'm fairly new to the forum and have suffered with RLS for 50 years - but it has become a lot worse in the last 5 years. I have read with interest lots of...

Hi, I'm fairly new to the forum and have suffered with RLS for 50 years - but it...

dido241

•4 years ago

9 Replies

What works for me

I was diagnosed with RLS over 10 years ago. I'd been to a session at work to learn about relaxing from the feet to the head. It was indeed, relaxing....

I was diagnosed with RLS over 10 years ago. I'd been to a session at work to lea...

Lindy14

•4 years ago

4 Replies

Thought for the Day - Part 2

Further to my earlier post, I don't want to give the impression that we're doing this to show up or expose the doctor; the idea is to give our doctors the...

Further to my earlier post, I don't want to give the impression that we're doing...

puzzler1

•4 years ago

1 Reply

Thank you

good morning everyone ! Thank you so very much for all your replies . I was having a bad day yesterday after some awful nights of RLS. Of course all the...

good morning everyone ! Thank you so very much for all your replies . I was hav...

Esme2007

•4 years ago

2 Replies

Gabapentin

Does anyone have any experience with Gabapentin? My neurologist has given me a first dose of 300 mg 3X daily, also to slowly build off the pramipexol that I...

Does anyone have any experience with Gabapentin? My neurologist has given me a f...

nutville

•4 years ago

13 Replies

Thought for the Day - raising our profile

I’ve been looking through a lot of current and old posts about the sufferings caused by RLS so I can use examples to include in my evidence to send to my...

I’ve been looking through a lot of current and old posts about the sufferings ca...

puzzler1

•4 years ago

19 Replies

RLS and Tempur Mattress

Has anyone with. Tempur mattress considered this could aggravate RLS? I ask this as these mattresses can be very hot, and particularly in the recent...

Has anyone with. Tempur mattress considered this could aggravate RLS? I ask th...

leadingwren

•4 years ago

2 Replies

One More Thing

Is it possible that your RLS meds could bring on the symptoms?? There have been times when I felt fine, took my meds before bed and within 20 minutes started...

Is it possible that your RLS meds could bring on the symptoms?? There have been...

Woody4

•4 years ago

3 Replies

Knowledgeable Dr??

Seems most on here are from the U.K. and share info on Dr’s that are knowledgeable about RLS. By chance does anyone know of a Dr in the Ohio Valley, USA??...

Seems most on here are from the U.K. and share info on Dr’s that are knowledgeab...

Woody4

•4 years ago

Be the first to reply

Any midnight treatments/ tricks to help sleep when Codeine hasn't worked and stem the attack?

I'm 28, Male and have been living with it for 10 years, on/ off and manageable in earlier life, it's progressively getting worse, especially recently as I've...

I'm 28, Male and have been living with it for 10 years, on/ off and manageable i...

Dabbskebabs

•4 years ago

11 Replies

Hi I wonder if anyone can help? I seem to have symptoms of RLS but these are confined to my left foot only? Twitching ankle/foot burning.

Is this RLS?

Cakefreak

•4 years ago

4 Replies

Lyrica - side effects

Hi I’ve just been reading some of the recent posts about medication for RLS. I can honestly say the only thing that worked for myself was co codomol a 60 mg...

Hi I’ve just been reading some of the recent posts about medication for RLS. I c...

Esme2007

•4 years ago

19 Replies

Smoking and Fluoxetine

After stopping the Fluoxetine and quitting smoking my restless legs have gone completely. Think the smoking has played a big part of the problem for many years...

After stopping the Fluoxetine and quitting smoking my restless legs have gone co...

Bengal5

•4 years ago

3 Replies

Weaning off of Requip

How do most people wean themselves off of Requip XL?

RidiculousLegs

•4 years ago

5 Replies

American RLS study

Currently the American RLS Foundation are carrying out a survey which is quite in depth re RLS ... always worth adding your experience to this. They include...

Currently the American RLS Foundation are carrying out a survey which is quite i...

HilsK

•4 years ago

9 Replies

Pramipexole.

I have been prescribed Pramipexole for my RLS. After taking gabapenten for 2 weeks with absolutely no improvement I am hoping for a small miracle with this...

I have been prescribed Pramipexole for my RLS. After taking gabapenten for 2 we...

Joannebbk

•4 years ago

23 Replies

How to transfer links to articles?

How do I post articles? links are provided for social media, like twitter ,Facebook etc, but I can't seem to upload onto health unlocked.

How do I post articles? links are provided for social media, like twitter ,Faceb...

Jenny583

•4 years ago

4 Replies

Big Thank you

I have spent a considerable amount of time reading some of the posts on this forum and I am amazed at the support and knowledge given by its members....

I have spent a considerable amount of time reading some of the posts on this for...

riaward

•4 years ago

8 Replies

Intermittent fasting and RLS?

Good evening everyone, my wife was talking about I fasting encouraging the regeneration of cells and that got me wondering if it has helped anybody with their...

Good evening everyone, my wife was talking about I fasting encouraging the regen...

YodaDog

•4 years ago

11 Replies

Temgesic attempt (UK)

Following encouraging posts by Shumbah and Jules 1953 I contacted my doctor. She said Temgesic is controlled in the UK, so she'll have to get the say-so from...

Following encouraging posts by Shumbah and Jules 1953 I contacted my doctor. She...

rkatt

•4 years ago

4 Replies

GENTLE IRON SUPPLEMENT

I had been taking Slow Fe ()45mg of iron) every other day for 4 weeks and it completely relieved my RLS symptoms. However, I developed diarrhea and had to stop...

I had been taking Slow Fe ()45mg of iron) every other day for 4 weeks and it com...

BAB97TIE

•4 years ago

7 Replies

Trazodone for RLS?

Hi my fellow sufferers :-( . I've been doing a lot of research online, and today I found something interesting. I've been taking Lexapro for my depression for...

Hi my fellow sufferers :-( . I've been doing a lot of research online, and toda...

Micafe

•4 years ago

31 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for September 2020

Recommendation for a neurologist in London

Pregabalin

How can I upload a pdf please

Does anyone else have severe leg spasms with their RLS?

No results from ferritin infusion

Here's Dr Buchfuhrer's response to Temgesic use

Temgesic - letter to the Consultant - raising the profile

Buprenorphine/Subutex

Has anyone tried Low Dose Naltrexone (LDN) for RLS?

What works for me

Thought for the Day - Part 2

Thank you

Gabapentin

Thought for the Day - raising our profile

RLS and Tempur Mattress

One More Thing

Knowledgeable Dr??

Any midnight treatments/ tricks to help sleep when Codeine hasn't worked and stem the attack?

Hi I wonder if anyone can help? I seem to have symptoms of RLS but these are confined to my left foot only? Twitching ankle/foot burning.

Lyrica - side effects

Smoking and Fluoxetine

Weaning off of Requip

American RLS study

Pramipexole.

How to transfer links to articles?

Big Thank you

Intermittent fasting and RLS?

Temgesic attempt (UK)

GENTLE IRON SUPPLEMENT

Trazodone for RLS?

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