Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,443 members • 15,118 posts

All posts for August 2021

Adding good news

Hi all. I thought I would pop in and share some good news. I have refused to take all the drugs that have been offered to me. But even experimentation with...

Hi all. I thought I would pop in and share some good news. I have refused to tak...

Marlayna

•3 years ago

40 Replies

RLS and the Moderna vaccine

I read in the Summer 2021 issue of Nightwalkers, a publication of the RLS foundation in Austin, TX about 2 women in the Seattle area whose RLS symptoms totally...

I read in the Summer 2021 issue of Nightwalkers, a publication of the RLS founda...

sleepless-in-seattle

•3 years ago

8 Replies

Restless body movements...

I am used to successfully managing restless legs with pacing etc. but last night was suffering from hip and lower body movements, any ideas on how to combat...

I am used to successfully managing restless legs with pacing etc. but last nigh...

WorryFreeMe

•3 years ago

32 Replies

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RLS Article in The Lancet

Lotte, Involuntary Dancer and I wrote an article on the benefits of educating the medical profession on RLS and it has been accepted and published in the...

Lotte, Involuntary Dancer and I wrote an article on the benefits of educating th...

Joolsg

•3 years ago

54 Replies

RLS in hospital bed

I am on a hospital bed and I cannot stand up. I'm going to be here several months, and I have RLS. What do I do?

I am on a hospital bed and I cannot stand up. I'm going to be here several mont...

davidadill

•3 years ago

21 Replies

Living with RLS

I was prescribed Dexedrine for my ADHD and resless legs. only need to take half of my regular script of dexamphetamibe but it worked for me on this I have to...

I was prescribed Dexedrine for my ADHD and resless legs. only need to take half ...

GPJenRoss7

•3 years ago

3 Replies

Manerva Reloaded?

Whoever the person previously a member known as Manerva is, I’m sure they would be amazed at the response to their disappearance. They couldn’t be anything but...

Whoever the person previously a member known as Manerva is, I’m sure they would ...

Elffindoe

•3 years ago

11 Replies

Pramipexole, reducing

Former Minerva, you said you kept taking the pram for several months along with the gabapentin. How low a dose did you get to before you stopped?? Then did...

Former Minerva, you said you kept taking the pram for several months along with ...

Woody4

•3 years ago

7 Replies

Manerva - Please come back

Now that we know you are still a member under a new user name, we know you are reading all the posts that tell how helpful you have been to the community and...

Now that we know you are still a member under a new user name, we know you are r...

SueJohnson

•3 years ago

7 Replies

New doctor new town

Ive moved to Cheltenham and now need to find a doctor surgery. Im so nervous about having to explain RLS all over again and pray they are sympathetic and...

Ive moved to Cheltenham and now need to find a doctor surgery. Im so nervous ab...

Doings

•3 years ago

10 Replies

Long term requip use side effects

Over the past 15 years my requip dose increased to 4mg. After taking 4mg nightly for 6 years, I’ve suddenly began having nighttime side effects including...

Over the past 15 years my requip dose increased to 4mg. After taking 4mg nightly...

Napoleon1st

•3 years ago

3 Replies

Scared

Coming off pramipexole. Not sure why just after midnight is my worst time. I’m coming off pramipexole but having some weird symptoms. I’ve got this weird...

Coming off pramipexole. Not sure why just after midnight is my worst time. I’m ...

Repunzel1972

•3 years ago

4 Replies

Manerva's posts? and subscriptions

This is for the the administrators really, but important to all of us. I see that Manerva is no longer showing as a member, which is I imagine is his choice...

This is for the the administrators really, but important to all of us. I see tha...

puzzler1

•3 years ago

14 Replies

pregabalin for RLS and libido

Hi All I'm new here so first post so please forgive if I've not done this right and I hope I can post about this topic. I did try and search but can find...

Hi All I'm new here so first post so please forgive if I've not done this right ...

Birdjross

•3 years ago

14 Replies

pramipexole cut back

My ferritin levels are 178 so that is okay ,starting tomorrow cutting out the other half of .180 mg and that leaves .350mg left see how it goes , if I can cut...

My ferritin levels are 178 so that is okay ,starting tomorrow cutting out the ot...

auldreekie18

•3 years ago

1 Reply

No relief in RLS

Having got much worse I have taken almost 3 months to get off Pramipexole and my Ferritin levels have come up from 35 to 150 yet still I have no relief in...

Having got much worse I have taken almost 3 months to get off Pramipexole and ...

Mycatis6

•3 years ago

7 Replies

QUESTIONS INSTAGRAM

This is just a thought I would like to run past you Would it be helpful if I set up an instagram page and did lives occassionally to answer some questions. As...

This is just a thought I would like to run past you Would it be helpful if I set...

Shumbah

•3 years ago

15 Replies

Musle probkems

Hi I suffer with leg syndrome and seems now all my muscles are effected with aches pain numbness cramps pins needles stiffness numb tingling feeling skin...

Hi I suffer with leg syndrome and seems now all my muscles are effected with ...

shazzafloyd

•3 years ago

12 Replies

Oxycodone.. it works for my husband

Hi friends I felt like I needed to update. I was vehemently against the use of any opioids because at one time my husband was trying to self medicate which...

Hi friends I felt like I needed to update. I was vehemently against the use of a...

RCHD

•3 years ago

10 Replies

Buprenorphine Subutex and Temgesic

I thought a visual might help some of you This is made in the UK

Shumbah

•3 years ago

25 Replies

Floradix

Hello all. Being disabled with many things wrong with me I've also suffered with RLS all my life. I'm 51 now. A few months ago it started to get really bad to...

Hello all. Being disabled with many things wrong with me I've also suffered with...

Gizzmo14

•3 years ago

2 Replies

EEG for tics and jerks

I know some of us get jerks and tics when falling asleep. I found this page. https://www.epilepsy.com/learn/types-seizures/myoclonic-seizures Has anyone here...

I know some of us get jerks and tics when falling asleep. I found this page. h...

WideBody

•3 years ago

11 Replies

Manerva will be back

OK I just went to the Post-Search and read the "Patient Expert" from Manerva. He did not say he was leaving this forum, just that it was his last post about...

OK I just went to the Post-Search and read the "Patient Expert" from Manerva. H...

1Ginge1

•3 years ago

10 Replies

Buprenorphine -Subutex difference from Suboxone

Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex is singular (pure Buprenorphine) Suboxone has Naloxone added ( the only...

Frequently asked question. Subutex and Suboxone are both Buprenorphine Subutex...

Shumbah

•3 years ago

2 Replies

CBD OIL BRAND I buy beautifully hand made

Im frequently asked what brand of CBD I use Instagram thebeautyelixers Email. Tinasabspre@gmail.com I have tried about 7brands from different areas...

Im frequently asked what brand of CBD I use Instagram thebeautyelixers Email....

Shumbah

•3 years ago

2 Replies

Manerva

The man was a genius and I really mean that his knowledge and understanding of restless legs was astonishing I trusted him more than any of the doctors I’ve...

The man was a genius and I really mean that his knowledge and understanding of r...

Hoochybaby

•3 years ago

4 Replies

ferritin

Having been told at reception you can have a test without seeing the doctor , went for test to be told you must see the doctor first ,so waiting on doctor...

Having been told at reception you can have a test without seeing the doctor , we...

auldreekie18

•3 years ago

2 Replies

Manerva

Please come back!!!

Hoochybaby

•3 years ago

2 Replies

Please come back Manerva

I too will miss Manerva’s excellent and knowledgeable input and putting things in perspective Please reconsider if you have left this forum All Take care

I too will miss Manerva’s excellent and knowledgeable input and putting things i...

Nikon-

•3 years ago

11 Replies

Thank You for Sharing Knowledge and Experiences

Augmentation hit my body hard. The pramipexole was making the RLS worse. After 3 years of taking 1mg once a day I stopped, cold turkey. I do not recommend...

Augmentation hit my body hard. The pramipexole was making the RLS worse. After ...

Sam4421

•3 years ago

9 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2021

Adding good news

RLS and the Moderna vaccine

Restless body movements...

RLS Article in The Lancet

RLS in hospital bed

Living with RLS

Manerva Reloaded?

Pramipexole, reducing

Manerva - Please come back

New doctor new town

Long term requip use side effects

Scared

Manerva's posts? and subscriptions

pregabalin for RLS and libido

pramipexole cut back

No relief in RLS

QUESTIONS INSTAGRAM

Musle probkems

Oxycodone.. it works for my husband

Buprenorphine Subutex and Temgesic

Floradix

EEG for tics and jerks

Manerva will be back

Buprenorphine -Subutex difference from Suboxone

CBD OIL BRAND I buy beautifully hand made

Manerva

ferritin

Manerva

Please come back Manerva

Thank You for Sharing Knowledge and Experiences

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