Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,396 members • 15,061 posts

All posts for October 2020

Iron Infusion - Ireland

For any sufferers living in Republic of Ireland who are experiencing difficulty accessing an iron infusion (and those who enjoy alliteration), my GP recently...

For any sufferers living in Republic of Ireland who are experiencing difficulty ...

involuntarydancer

•3 years ago

11 Replies

RLS-UK 2020 Christmas Card

Our 2020 'Hope' Christmas cards are now available to order via the Shop on our RLS-UK website: https://www.rls-uk.org/products A packet of ten, A6,...

Our 2020 'Hope' Christmas cards are now available to order via the Shop on our R...

Kaarina

Administrator•3 years ago

8 Replies

RSL sufferer

Hi I’m 44 and this is my fourth year with RLS,after thinking it was just me then watching a documentary on RSL I realised I’m not alone and tried to seek help...

Hi I’m 44 and this is my fourth year with RLS,after thinking it was just me then...

Lolabear1

•3 years ago

6 Replies

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Evening RLS people

I am fine tuning the vits and minerals that are key to helping eleviate RL. The only one that I need reminding about please is magnesium. How much should I...

I am fine tuning the vits and minerals that are key to helping eleviate RL. The...

smilingjane

•3 years ago

39 Replies

Painful Burning sensations

I am joining on behalf of my 87yr old sister in law who is not able to come through the Internet. She has been diagnosed medically with RLS & her blood...

I am joining on behalf of my 87yr old sister in law who is not able to come thro...

Hidden

•3 years ago

14 Replies

My solution for RL

My solution for Restless Legs. My restless legs started in May/June and gradually worsened. In august I had a real bad time with restless legs, I only slept...

My solution for Restless Legs. My restless legs started in May/June and graduall...

silvia10

•3 years ago

17 Replies

Augmentation percentage

I’ve been reading the NICE guidelines. They quote studies that show a very low percent of augmentation among RLS sufferers using DAs. This would suggest RLS is...

I’ve been reading the NICE guidelines. They quote studies that show a very low p...

rkatt

•3 years ago

34 Replies

No sleep!

So the inevitable has happened. It is 5.30am and I have not had one wink of sleep. My legs just don't want to be horizontal. I have kicked and shaken them,...

So the inevitable has happened. It is 5.30am and I have not had one wink of slee...

Sueloops

•3 years ago

13 Replies

Buprenorphine 12 month update and the glitch

Hi Everyone As many of you know 12 months I left my hospital bed in Brisbane Australia and flew to New York I was on the edge of life from this disgusting...

Hi Everyone As many of you know 12 months I left my hospital bed in Brisbane A...

Shumbah

•3 years ago

27 Replies

Clonazepam

The doctor recommended Clonazepam Auden for restless legs, which works a treat b ut I spend the next day fighting to stay awake. The problem then is either I...

The doctor recommended Clonazepam Auden for restless legs, which works a treat b...

Gardenera

•3 years ago

7 Replies

Am I doing the right thing?

I am new to this forum, and feeling uncertain of the way things are going regarding my Pramipexole - so it's good to read what others say on the subject....

I am new to this forum, and feeling uncertain of the way things are going regard...

Sueloops

•3 years ago

17 Replies

Query re changing from Oxycodone liquid to Buprenorphine to curb RLS

Morning everybody 😉 I have been taking 30mls Oxy daily for two years now and have been hugely greatfull to my GP for prescribing it. As some may remember...

Morning everybody 😉 I have been taking 30mls Oxy daily for two years now and ha...

smilingjane

•3 years ago

18 Replies

Augmentation query

Hi. Does augmentation stop as soon as the triggering medication is stopped? Or does it take longer to return to baseline symptoms? I would be very grateful if...

Hi. Does augmentation stop as soon as the triggering medication is stopped? Or d...

Jumpey

•3 years ago

11 Replies

Neurologist in Dallas who is open to opiates for RLS?

Long story short, I had a terrible experience with the neurologist I went to see earlier this year after trying to get off ropinerole due to lactation...

Long story short, I had a terrible experience with the neurologist I went to see...

Newmomma567

•3 years ago

3 Replies

Neupro patch side effects?

I'm wondering whether rotigotine can cause character change. (I'm not referring to the well documented changes like compulsive behaviours) I know that when I...

I'm wondering whether rotigotine can cause character change. (I'm not referring ...

Suberino

•3 years ago

2 Replies

Stress making RLS symptoms less

I have not been active on the forum for quite a while, but would be interested if anybody else has noticed what I have. I have been under a lot of stress...

I have not been active on the forum for quite a while, but would be interested i...

Grandmother8

•3 years ago

4 Replies

Phenergan addiction

I have been taking Phenergan for 10 years to help me sleep, I’m now suffering with restless legs & want to stop taking the phenergan, any advice please?

I have been taking Phenergan for 10 years to help me sleep, I’m now suffering wi...

Boxer215

•3 years ago

8 Replies

Rock and a Hard Place

After 45 years of various RLS drugs and a little over a year of taking 3 different opioids, I have developed breathing issues--"respiratory depression"--one of...

After 45 years of various RLS drugs and a little over a year of taking 3 differe...

grandpianoman

•3 years ago

12 Replies

A description of RLS heard this weekend

I attended the USA RLS symposium last weekend. One of the most disturbing but honest descriptions of RLS was " The most common disease in the human population...

I attended the USA RLS symposium last weekend. One of the most disturbing but ho...

HilsK

•3 years ago

10 Replies

Unsure what to do

Hi all, newbie here. I've suffered with rls for a number of years, I was on Amitriptyline for a while several years ago but it didn't help. Then about a year...

Hi all, newbie here. I've suffered with rls for a number of years, I was on Ami...

Wantnewlegs

•3 years ago

7 Replies

Can opioids replace pramaprixole?

I have finally gotten some sleep using dilaudid and taking them has also helped me reduce the amount of pramaprixole from .75 to .50 and now to .37.5. I...

I have finally gotten some sleep using dilaudid and taking them has also helped ...

PerniciousRLS

•3 years ago

8 Replies

Found a good RLS specialist (neurology consultant) in the North West of UK

I spent 8 months looking for a neurologist specialist who really knows about RLS in or near Cheshire in the NW of England. By chance I came across a...

I spent 8 months looking for a neurologist specialist who really knows about RL...

HilsK

•3 years ago

22 Replies

CBD tablets and RLS.

Good morning. I recently read a post about CBD tablets helping this individual w RLS. I asked which brand, type, etc but never received an answer that I can...

Good morning. I recently read a post about CBD tablets helping this individual ...

atwitsendd

•3 years ago

29 Replies

Hay Fever

I am suffering with hay fever, although I know antihistamines are a trigger, hay fever is so bad I had to try it BIG MISTAKE 😪 my nose is so itchy, even when...

I am suffering with hay fever, although I know antihistamines are a trigger, ha...

Doreenw

•3 years ago

17 Replies

Gabapentin vs Pramipexole Help please!!!!

Hi all. Im suffering terrible with RLS every day. I also suffer with really bad leg pain. I work from home at a computer for 12 hour nightshifts twice a week....

Hi all. Im suffering terrible with RLS every day. I also suffer with really bad ...

Jamhulio

•3 years ago

31 Replies

Gabapentin

Hi - I've just started taking Gabapentin 300m one per night. My RLS has calmed down early evening but rises with avengeance usually between 1.00am and 3.00am....

Hi - I've just started taking Gabapentin 300m one per night. My RLS has calmed d...

Mumswell

•3 years ago

5 Replies

Lifetime sufferer

Hi everyone. It's only by chance that I found this site today & I'm so pleased I did. RLS is a nightmare that I wouldn't wish on anyone. I've had mine as long...

Hi everyone. It's only by chance that I found this site today & I'm so pleased ...

Sootired15

•3 years ago

14 Replies

Starting Ropinirole

I been on Lyrics for almost a year now and just was diagnosed with Restless leg about a week ago. My doctor put me on Ropinirole but I'm a little eerie about...

I been on Lyrics for almost a year now and just was diagnosed with Restless leg ...

Dastallion1

•3 years ago

16 Replies

Blood tests.... not what I was hoping

I am a bit confused.... On 10/14/19 my Ferritin was 120, TSP was 38% this was 8 weeks after an infusion. My Hemoglobin was 15.4 and Hematocrit was 45.4....

I am a bit confused.... On 10/14/19 my Ferritin was 120, TSP was 38% this was...

WideBody

•3 years ago

8 Replies

barely any pain, mostly discomfort and restlessness. anyone else?

while i do get the aches and muscle spasms, i deal with the discomfort and restlessness even more. i just feel like i need to walk around and move. a lot of...

while i do get the aches and muscle spasms, i deal with the discomfort and restl...

mmjxc

•3 years ago

3 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for October 2020

Iron Infusion - Ireland

RLS-UK 2020 Christmas Card

RSL sufferer

Evening RLS people

Painful Burning sensations

My solution for RL

Augmentation percentage

No sleep!

Buprenorphine 12 month update and the glitch

Clonazepam

Am I doing the right thing?

Query re changing from Oxycodone liquid to Buprenorphine to curb RLS

Augmentation query

Neurologist in Dallas who is open to opiates for RLS?

Neupro patch side effects?

Stress making RLS symptoms less

Phenergan addiction

Rock and a Hard Place

A description of RLS heard this weekend

Unsure what to do

Can opioids replace pramaprixole?

Found a good RLS specialist (neurology consultant) in the North West of UK

CBD tablets and RLS.

Hay Fever

Gabapentin vs Pramipexole Help please!!!!

Gabapentin

Lifetime sufferer

Starting Ropinirole

Blood tests.... not what I was hoping

barely any pain, mostly discomfort and restlessness. anyone else?

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