Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,319 members•16,383 posts

All posts for June 2021

pramipexole

Hello all, I have recently been started on pramipexole and it is working in terms of greatly reducing my RLS and PLM symptoms, attacks were lasting up to six...

Hello all, I have recently been started on pramipexole and it is working in term...

Sorchap78

•3 years ago

12 Replies

RLS Nausea and Pramipexole

I am on 1200mg gabapentin, 1 mg clonazepam and now have started .25 of pramipexole. Does the nausea and headache get better? I am fighting throwing up...

I am on 1200mg gabapentin, 1 mg clonazepam and now have started .25 of pramipexo...

Blu34

•3 years ago

3 Replies

2 nights with no restless legs

After suffering with severe RLS for the last 6 years (I'm 22) I have finally been referred to a neurologist! He was fantastic 👏 He has started me on...

After suffering with severe RLS for the last 6 years (I'm 22) I have finally bee...

Jade1998

•3 years ago

27 Replies

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What’s Next??

What is the next med recommendation after the dopamine’s?? My VA Dr has admitted that RLS is out of her wheelhouse and has agreed to look at some literature...

What is the next med recommendation after the dopamine’s?? My VA Dr has admitte...

Woody4

•3 years ago

1 Reply

30 years sufferer with RLS desperately looking for help please

Hi fellow RLSers I'm a 67 year old woman and I've had RLS for at least 30 years I'm a very fit and active individual always have been don't drink a lot of...

Hi fellow RLSers I'm a 67 year old woman and I've had RLS for at least 30 years...

Janeco1

•3 years ago

22 Replies

What mg would I use of pramipexole , now on 2mg neupro patch with lots of skin irritations trying to taper down ?and how fast on pramipexole

Coming off neupro patch

Caperry

•3 years ago

24 Replies

At my wits end

I need advice and the wisdom of the members of this group. I’ve just had my Gabapentin increased to 900 mg at night and my Tramadol increased to 200 mg from...

I need advice and the wisdom of the members of this group. I’ve just had my Gaba...

Muftah36

•3 years ago

41 Replies

My experience with medically prescribed vaping for RLS

I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other RLS medications for fear of augmentation. My chosen path is an...

I have had RLS since my 20's and I am now 72. I have avoided taking dopamine ag...

Goldy700

•3 years ago

24 Replies

RLS help in Scotland

Hello everyone. I have suffered from RLS for over 20 years Controlled at the moment by Gabapentin. No idea what I will use when that stops its effectiveness...

Hello everyone. I have suffered from RLS for over 20 years Controlled at the mo...

99selkies

•3 years ago

8 Replies

Pregabalin not working so well anymore

Hi, I wonder if anyone has some advice about this. I take 300mg pregabalin 3 hours before I go to sleep. It has worked really well for over a year but now not...

Hi, I wonder if anyone has some advice about this. I take 300mg pregabalin 3 hou...

gobojo

•3 years ago

12 Replies

TV PROGRAMME

Did anyone here see the UK Channel 5 programme on rls wed night 23 june 2021?

Meritus

•3 years ago

11 Replies

Neurologists - supposedly our saviours.

The leading question: does anyone know of any RSL/PLMD-friendly neurologists who are both personable and knowledgeable? I'm in Herts so London and the...

The leading question: does anyone know of any RSL/PLMD-friendly neurologists who...

dickJones

•3 years ago

22 Replies

Coming off Neupro patch

Coming off 3 mg Neupro patch , lots of skin irritation and blisters! I’m on day 3 down to 2 mg Neupro. Up from 1200 mg Gabapentin to 1500 mg. Will increase...

Coming off 3 mg Neupro patch , lots of skin irritation and blisters! I’m on day ...

Caperry

•3 years ago

34 Replies

Ferritin 23 -- how long before relief?

My ferritin is 23 ng/ml. My panel reads: Iron 64 mcg/dl, Total Iron Binding Capacity 407 mcg/dl, Iron Sat 16% I am taking Nature's Bounty Gentle Iron...

My ferritin is 23 ng/ml. My panel reads: Iron 64 mcg/dl, Total Iron Binding Ca...

kicker2

•3 years ago

13 Replies

B1 ??

Anyone try B1 for RLS? Friend's husband's doc recommended it for him. Friend says it is helping him decrease his meds....

Anyone try B1 for RLS? Friend's husband's doc recommended it for him. Friend say...

kicker2

•3 years ago

2 Replies

Hello

Hey all, My name is Gearoid and I have had restless leg syndrome for many years.

Hey all, My name is Gearoid and I have had restless leg syndrome for many years....

Staines

•3 years ago

6 Replies

IS RLS really one thing? Or several different conditions brought under the RLS umbrella?

I've wondered for a while whether RLS is a single condition, or if maybe the people in our group have a range of unrelated conditions but RLS seems to be the...

I've wondered for a while whether RLS is a single condition, or if maybe the peo...

Mattly

•3 years ago

3 Replies

Augmentation

Hi I had a telephone consultation with my neurologist yesterday and I told her I was just about managing with my rls I take one 0.088 mg Pramipexole and two 75...

Hi I had a telephone consultation with my neurologist yesterday and I told her I...

Hoochybaby

•3 years ago

37 Replies

UK broadcast Channel 5, Restless Legs

I watched this hour-long programme last night, and this unsettled me in many ways. My heart went out to you sufferers, (though I think the programme showed...

I watched this hour-long programme last night, and this unsettled me in many way...

Spurdog1

•3 years ago

14 Replies

Sinemet augmenting my RLS - making it worse

withdrawing from 2 years on sinemet... trying mucuna...

betternowman

•3 years ago

10 Replies

Restless legs

Has anyone tried ropinirole for restless legs couldn't live without this medication as it works for my restless leg syndrome

Has anyone tried ropinirole for restless legs couldn't live without this medica...

Janette1964

•3 years ago

24 Replies

Cupping

Has anyone tried cupping therapy for RLS?

RLSCovid

•3 years ago

3 Replies

Medical card

Can somebody please tell me where I can get a medical alert card for RLS

Dell18

•3 years ago

2 Replies

Potential RLS treatments

Saw the RLS documentary earlier tonight on UK TV and realised that many people need further options for treatment, so I would like to share our treatments,...

Saw the RLS documentary earlier tonight on UK TV and realised that many people n...

Ragtacker

•3 years ago

4 Replies

How my restless legs have resolved

Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would...

Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep a...

biggurs

•3 years ago

1 Reply

PREGABLIN. a possible cure.

Not a question, but this may help someone. I suffer, from amongst other things, headaches. My doctor had me try a different tablet to the usual asprin. It...

Not a question, but this may help someone. I suffer, from amongst other things,...

whalley

•3 years ago

16 Replies

gabapentin and appetite

Hi, After augmenting on Ropinerole ( and getting loads of great advice on this site) I've started taking Gabapentin . Note that i was still taking Ropinerole...

Hi, After augmenting on Ropinerole ( and getting loads of great advice on this ...

Legflicker

•3 years ago

5 Replies

Searching for articles on Iron IV Therapy

Hello everyone. I have read several posts about using FerrisIV treatments for RLS. I have severe RLS 24/7 since a young child and it is only getting worse....

Hello everyone. I have read several posts about using FerrisIV treatments for R...

serengazer

•3 years ago

8 Replies

Possible future RLS med?

I'm invested in a biotech startup Vistagen which has several drugs in FDA trials. They use a fast acting nasal mist using pherines as a means to absorb the...

I'm invested in a biotech startup Vistagen which has several drugs in FDA trials...

ziggypiggy

•3 years ago

1 Reply

Pramipexole augmentation

The first time I was prescribed Pramipexole I had augmentation after a few months, which was terribly disappointing as I thought I ad found the answer, so I...

The first time I was prescribed Pramipexole I had augmentation after a few month...

Tamaroy

•3 years ago

1 Reply

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for June 2021

pramipexole

RLS Nausea and Pramipexole

2 nights with no restless legs

What’s Next??

30 years sufferer with RLS desperately looking for help please

What mg would I use of pramipexole , now on 2mg neupro patch with lots of skin irritations trying to taper down ?and how fast on pramipexole

At my wits end

My experience with medically prescribed vaping for RLS

RLS help in Scotland

Pregabalin not working so well anymore

TV PROGRAMME

Neurologists - supposedly our saviours.

Coming off Neupro patch

Ferritin 23 -- how long before relief?

B1 ??

Hello

IS RLS really one thing? Or several different conditions brought under the RLS umbrella?

Augmentation

UK broadcast Channel 5, Restless Legs

Sinemet augmenting my RLS - making it worse

Restless legs

Cupping

Medical card

Potential RLS treatments

How my restless legs have resolved

PREGABLIN. a possible cure.

gabapentin and appetite

Searching for articles on Iron IV Therapy

Possible future RLS med?

Pramipexole augmentation

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