Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,326 members•16,393 posts

All posts for May 2014

Is anyone on Pregabilin? My consultant has taken me off Pramipexole due to augmentation.Reading side effects I am very bothered. I don't hav

I don't have pain with R .LS. So would be grateful for any comments.Thanks from Conchita.

I don't have pain with R .LS. So would be grateful for any comments.Thanks from ...

Conchita

•10 years ago

2 Replies

Hello everybody

Reading some of the posts here has made me realise that all the other problems that plague me may be associated with rls. I've had rls for about 12 years and...

Reading some of the posts here has made me realise that all the other problems t...

Hardly

•10 years ago

1 Reply

Driving a car.

Bit of advice needed please. Although i hold a license, i havnt driven since being diagnosed with rls. I do tend to nod off when my brain isnt stimulated....

Bit of advice needed please. Although i hold a license, i havnt driven since bei...

restless1973

•10 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Solutions for RSL. All natural and easily available. I hope this helps you all or at least someone!

Kratom. For the love of God and all that is holy, Kratom has been the ONLY cure for my RLS that crippled me for years. I literally thought I had Parkinson's...

Kratom. For the love of God and all that is holy, Kratom has been the ONLY cure ...

Vince123

•10 years ago

29 Replies

Iron & levothyroxine.

I`m on 50mg of Levothyroxine a day for hypothyroidism, & according to the leaflet that comes with the tablets, you can`t take iron with them. Iv`e read that...

I`m on 50mg of Levothyroxine a day for hypothyroidism, & according to the leafle...

hairyfairy

•11 years ago

10 Replies

I have had severe muscle spasms since before C-spine surgery in 06 because these spasms/seizures began in the neck & now over entire spine..

--After every type of med & therapy pain is worse resulting in 'seizures' at random points near the spine that result in trips to ER for relief. My regular...

--After every type of med & therapy pain is worse resulting in 'seizures' at ran...

Dax2014

•11 years ago

4 Replies

RLS and exercise.

Recently I have been swimming regularly and have found that my RLS is so much worse in the evening than on the days when I don't go swimming. so does the...

Recently I have been swimming regularly and have found that my RLS is so much wo...

bodicea

•11 years ago

6 Replies

Carbidopa/Levadopa (Sinemet) and augmentation. One thing that can cause this med not to work as well as it should for some people.

These days Sinemet is considered an "old fashioned" treatment for chronic sever RLS. Dr. Buchfuhrer says that he rarely uses it now, because of the fact that...

These days Sinemet is considered an "old fashioned" treatment for chronic sever ...

nightdancer

•11 years ago

1 Reply

I am 87 years old and take Dopermine but am getting desperate for a good nights sleep ,can anyone reccomend how to get a good sleep

I am getting up to go to the toilet all the time and am lucky to get more than 2 hours sleep at a time , is there any help on this problem.

I am getting up to go to the toilet all the time and am lucky to get more than ...

kimpusan

•11 years ago

11 Replies

Has any research been done into possible links with any type of bladder issue?

I have just joined the site, and this is an odd opening question maybe, but I'll explain...... I am 40 yrs old, and have severe RLS from the neck down, 24/7. I...

I have just joined the site, and this is an odd opening question maybe, but I'll...

Jo-purple

•11 years ago

19 Replies

last chance to support Sarah's jump tomorrow

come on everyone - this is our last chance to support brave Sarah's parachute jump tomorrow. We RLS-ers are all aware - very uncomfortably aware a lot of the...

come on everyone - this is our last chance to support brave Sarah's parachute ju...

jumpingvalley

•11 years ago

11 Replies

Another question. I have hay fever for the 1 st time! Oh joy. Antihistamines? I'm desperate ...

jitterbug

•11 years ago

4 Replies

My 'movement disorder specialist has put me on Marmite morning and evening for 4 weeks. Anyone had good results?

jitterbug

•11 years ago

8 Replies

Is it normal to get a jerky feeling in the pelvic region with RLS? It's an annoying spasm almost that makes you want to thump yourself?

I've been suffering this for a while now and really could just cry. Every night now as I settle down I start to get these feelings along with jerking feet and...

I've been suffering this for a while now and really could just cry. Every night ...

V1c70r1a

•11 years ago

4 Replies

Hi, I suffer from RLS each night and I am due to go into hospital for a knee joint replacement. Any advice would be welcome

Having suffered with RLS for many years on a nightly basis I take Pramipexole and Co Codamol and have my own routine for trying to get some quality sleep. I am...

Having suffered with RLS for many years on a nightly basis I take Pramipexole an...

Greenacre

•11 years ago

12 Replies

Question about Quinine

Hello everything, I have a question about this drug and would greatly appreciate some advise on it. I am currently doing a methadone detox and right down to...

Hello everything, I have a question about this drug and would greatly appreciate...

xLadyDx

•11 years ago

10 Replies

First Post (hello Everybody)

Hi, I'm a 65 year old man who six months ago was diagnosed with RLS by a Consultant Neurosurgeon. At the time my symptoms were an irresistable need to move my...

Hi, I'm a 65 year old man who six months ago was diagnosed with RLS by a Consult...

Jovian

•11 years ago

19 Replies

People who are unlucky enough to have a limb amputated invariably report the missing limb as a " phantom limb". That is, they feel like the

limb is still there. I believe that this sensation is essential if the amputee is to be able to use a prosthetic. Anyway my question is "Do amputees who...

limb is still there. I believe that this sensation is essential if the amputee i...

Pete-1

•11 years ago

8 Replies

Dopamine agonist withdrawal syndrome: DAWS This is a MUST READ if you are considering quitting dopamine drugs!

First Thank You ,p1pp1ns, for turning me onto Jenna's article. From there I learned about DAWS. I read 11 articles in which some were clinical studies and...

First Thank You ,p1pp1ns, for turning me onto Jenna's article. From there I lea...

carla6556

•11 years ago

31 Replies

Wed, May 21... University of Florida.....my last hope Anyone been on a high mg of Mirapex for years and made it off???

I'm sorry my comments were short a few days ago. No sleep for 4 or 5 days. I read and think about everybody's comments and I appreciate the time you took to...

I'm sorry my comments were short a few days ago. No sleep for 4 or 5 days. I r...

carla6556

•11 years ago

8 Replies

Show your support for Sarah Blanksby!

It is now just one week until Sarah Blanksby and her friend Jacqui Killker do a 13,000 foot parachute jump in memory of Sarah’s brother, Andrew Wilson, who...

It is now just one week until Sarah Blanksby and her friend Jacqui Killker do a ...

Daragh

•11 years ago

11 Replies

Thyroid UK - patient conference in Solihull, West Midlands in October.

Thyroid UK has asked RLS UK if we could mention their forthcoming conference on our forum as it may be of interest to some members. As mentioned on the NHS...

Thyroid UK has asked RLS UK if we could mention their forthcoming conference on ...

Tiredparent

Restless Leg Syndrome•11 years ago

2 Replies

has anyone heard of the restless feeling occuring all over body

the feeling has spread first to my back then neck and arms and now the back of my head causing itchy feelings and creepy crawling feeling all over

the feeling has spread first to my back then neck and arms and now the back of m...

katierp

•11 years ago

52 Replies

Hello Everyone.I am seeing my G.P. in a few days time and am considering asking her for Mirapex E.R. I have tried ropinerol and it was OK

but it sometimes gave me nasty symptoms like nausea and fainting. As I'm on my own I found this worrying. I tried Neupro patches next which was a disaster...

but it sometimes gave me nasty symptoms like nausea and fainting. As I'm on my o...

bedith6

•11 years ago

12 Replies

Quit Mirapex after 16 years....Cold turkey or ween off....And then take what???

So I have been on Mirapex 2mg for 16 years and finding out all the side affects, most which I have, have decided I need to get off this drug. I'm just not...

So I have been on Mirapex 2mg for 16 years and finding out all the side affects,...

carla6556

•11 years ago

48 Replies

What are the problems(side affects) if one discontinues using the NEUPRO patch?

alkjlk

•11 years ago

2 Replies

Food types as the cause.

I was just wondering if anyones issue here is related to the type of food they eat? Tuna, Nuts, Chicken, anything preserved in Vinegar are usually starters...

I was just wondering if anyones issue here is related to the type of food they e...

LastminuteLee

•11 years ago

4 Replies

Florida RLS???

Does anyone have suggestions for a Restless Leg doctor in Florida that will take me off Mirapex and put me on Opiods ?

Does anyone have suggestions for a Restless Leg doctor in Florida that will take...

carla6556

•11 years ago

2 Replies

Has anyone tried acupuncture for RLS as apposed to meds?

I was wondering the success rate for acupuncture for RLS. Has anyone tried it?

carla6556

•11 years ago

14 Replies

Gabapentin Question

Was anyone told about the sexual side effects of Gaba? I was reading a medical journal and it stated that gabapentin will cause you to loose your libedo -...

Was anyone told about the sexual side effects of Gaba? I was reading a medical j...

Brett85

•11 years ago

3 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for May 2014

Is anyone on Pregabilin? My consultant has taken me off Pramipexole due to augmentation.Reading side effects I am very bothered. I don't hav

Hello everybody

Driving a car.

Solutions for RSL. All natural and easily available. I hope this helps you all or at least someone!

Iron & levothyroxine.

I have had severe muscle spasms since before C-spine surgery in 06 because these spasms/seizures began in the neck & now over entire spine..

RLS and exercise.

Carbidopa/Levadopa (Sinemet) and augmentation. One thing that can cause this med not to work as well as it should for some people.

I am 87 years old and take Dopermine but am getting desperate for a good nights sleep ,can anyone reccomend how to get a good sleep

Has any research been done into possible links with any type of bladder issue?

last chance to support Sarah's jump tomorrow

Another question. I have hay fever for the 1 st time! Oh joy. Antihistamines? I'm desperate ...

My 'movement disorder specialist has put me on Marmite morning and evening for 4 weeks. Anyone had good results?

Is it normal to get a jerky feeling in the pelvic region with RLS? It's an annoying spasm almost that makes you want to thump yourself?

Hi, I suffer from RLS each night and I am due to go into hospital for a knee joint replacement. Any advice would be welcome

Question about Quinine

First Post (hello Everybody)

People who are unlucky enough to have a limb amputated invariably report the missing limb as a " phantom limb". That is, they feel like the

Dopamine agonist withdrawal syndrome: DAWS This is a MUST READ if you are considering quitting dopamine drugs!

Wed, May 21... University of Florida.....my last hope Anyone been on a high mg of Mirapex for years and made it off???

Show your support for Sarah Blanksby!

Thyroid UK - patient conference in Solihull, West Midlands in October.

has anyone heard of the restless feeling occuring all over body

Hello Everyone.I am seeing my G.P. in a few days time and am considering asking her for Mirapex E.R. I have tried ropinerol and it was OK

Quit Mirapex after 16 years....Cold turkey or ween off....And then take what???

What are the problems(side affects) if one discontinues using the NEUPRO patch?

Food types as the cause.

Florida RLS???

Has anyone tried acupuncture for RLS as apposed to meds?

Gabapentin Question

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