Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

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Meds that react against rls

Hi all, I thought there was a list of medication that reacts against rls but cannot find it. Thank you

Hi all, I thought there was a list of medication that reacts against rls but can...

keiralee

•53 minutes ago

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Johns Hopkins

Has any one received care for RLS at Johns Hopkins in Baltimore? They are supposedly a "Center for Excellence" in RLS treatment but I'm having a very negative...

Has any one received care for RLS at Johns Hopkins in Baltimore? They are suppo...

Westann

•5 hours ago

1 Reply

lab work 8 weeks post iron infusion - advice?

I had an infusion of Injectafer 750 mg on April 29 and had labs drawn exactly 8 weeks later per advice or information on this lifeline :) Now I would truly...

I had an infusion of Injectafer 750 mg on April 29 and had labs drawn exactly 8 ...

SleeplessinNC

•23 hours ago

3 Replies

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Sleeplessness

Hi, I posted a while ago and since have been medicated with 200mg Pregabalin and iron ferritin at 134…. it isn’t helping. I thought it would but I am up most...

Hi, I posted a while ago and since have been medicated with 200mg Pregabalin an...

VAF61

•1 day ago

4 Replies

Summary of RLS resources

These have all been posted before, I thought a stand alone post of current resources could be useful. You can select "Save Post" below and you won't have to...

These have all been posted before, I thought a stand alone post of current resou...

ChickenTwisty

•1 day ago

1 Reply

Pain in legs at night and Pregabalin

Hello and thank you again to everyone for their insight. Quick background: with the help and advice of the members here, I slowly weaned off pramipexole...

Hello and thank you again to everyone for their insight. Quick background: with...

abby1003

•1 day ago

6 Replies

Gabapentin Update

I have been taking 400-500mg of Gabapentin for the last few months - usually an hour, or an hour and a half before bed. This has largely eliminated or...

I have been taking 400-500mg of Gabapentin for the last few months - usually an ...

Rameau

•1 day ago

3 Replies

Looking for a neurologist

My doctor has told me that he will prescribe Buprenorphine for me if I can get a neurologist to authorise it. I am having a really tough time with restless...

My doctor has told me that he will prescribe Buprenorphine for me if I can get a...

Faith_Hope_1

•2 days ago

16 Replies

Gabapentin start

I’ve recently been subscribed Gabapentin by an neurologist and started the withdrawel of Sifrol. The Gabapentin is on 300 mg. You usually recommend to increase...

I’ve recently been subscribed Gabapentin by an neurologist and started the withd...

RLSchrippe

•2 days ago

4 Replies

Buprenorphine Effectiveness for Severe Restless Legs Syndrome and Dopaminergic Augmentation

I don't think this has been posted before, but here is some data from SLEEP 2023 supporting what those on Buprenorphine have been saying about it's...

I don't think this has been posted before, but here is some data from SLEEP 2023...

ChickenTwisty

•2 days ago

8 Replies

pramipexole

I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist...

I have been on Pramipexole for more years than I can remember. I was put on it a...

Onion01

•2 days ago

15 Replies

Neuropathy and Osteoarthritis

Hello All, I am writing on behalf of my 89 year old mom who has been struggling with severe leg and back pain. Mom had Guillaune Barre Syndrome in 2009...

Hello All, I am writing on behalf of my 89 year old mom who has been struggling...

Mira_Mira

•3 days ago

8 Replies

Journal Request

Want to keep tract of my RLS journey for my Dr. appointment in October. Is there a detailed PDF Journal out there to get me started?

Want to keep tract of my RLS journey for my Dr. appointment in October. Is there...

C82021

•3 days ago

2 Replies

PLMD and RLS Update

25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP...

25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, c...

vikkitennis

•3 days ago

16 Replies

RLS Update

Hi RLS community I have been coming down from 200mg of Pregablin for a few months now. I’ve been slow and steady and had mostly good results. GP is on board...

Hi RLS community I have been coming down from 200mg of Pregablin for a few mo...

careerSquirrel

•3 days ago

15 Replies

Can someone please help!!!

I’ve been on Dilaudid 4mg three times a day. I saw a new pain specialist who specialises in Ehlers Danlos Syndrome, the reason I have such severe pain. I was...

I’ve been on Dilaudid 4mg three times a day. I saw a new pain specialist who sp...

kristivera

•3 days ago

1 Reply

Asking for a friend re patient leaflet info in the UK

Hi does anyone know when the warnings about augmentation and compulsive gambling were included in the patient information leaflet please?If it was on the...

Hi does anyone know when the warnings about augmentation and compulsive gambling...

Pippins2

•3 days ago

2 Replies

Quviviq or daridorexant

Just started a few days ago on Quviviq but it was like an act of congress to obtain it. I had a great coupon that could have gotten me a zero copay, but...

Just started a few days ago on Quviviq but it was like an act of congress to obt...

DocCookie

•4 days ago

13 Replies

RLS diagnosis

Hello I’ve recently joined and am learning so much for everyone sharing their experience, so thank you all! In 2016 I was experiencing neuropathic symptoms...

Hello I’ve recently joined and am learning so much for everyone sharing their e...

MummaE

•4 days ago

6 Replies

Finally on opioids and it's not working

So after da augmentation, no results with gabapentin and two unsuccessful iron infusions I finally got a doctor to give me Tramadol. I'm aware buprenorphine is...

So after da augmentation, no results with gabapentin and two unsuccessful iron i...

Anthas

•4 days ago

27 Replies

Buprenorphine

I have been taking the above 10mcg for a couple of weeks and then changed to 15mcg a couple of days ago. I am still getting bouts of RLS through the night and...

I have been taking the above 10mcg for a couple of weeks and then changed to 15...

keiralee

•4 days ago

5 Replies

Doctors /drugs and blood results

I recently posted I'd had a knee replacement 1st march . I've had 2 before no problem . This time my Rls has gone mad . I've had all the normal drugs and been...

I recently posted I'd had a knee replacement 1st march . I've had 2 before no pr...

Palamino

•4 days ago

29 Replies

Sifrol (Pramipexole) and Gambling addiction

Hi I am new here and at rock bottom. I've been prescribed Sifrol for Restless Legs Syndrome for, at a guess 4-5 years. During this time I have developed a...

Hi I am new here and at rock bottom. I've been prescribed Sifrol for Restless L...

KPPA

•5 days ago

38 Replies

Working with RLS

Previously I was a high level public servant though my RLS combined with stress resulted me in leaving two jobs. I have decided that I am unable to return to 9...

Previously I was a high level public servant though my RLS combined with stress ...

ChickenTwisty

•5 days ago

23 Replies

Back Trauma significantly worsening RLS - anyone else?

Running through some posts on this board, I followed a thread to this website: https://www.rlshelp.org/. Within it, there is a section where he writes, "There...

Running through some posts on this board, I followed a thread to this website: h...

JaggySr

•5 days ago

11 Replies

Microdosing and RLS

Anyone have experience with microdosing? Any good practioners?

RLScure

•5 days ago

5 Replies

UK Parkinson's Charity Research Projects

https://acrobat.adobe.com/id/urn:aaid:sc:EU:a624e942-3aef-4cc7-a14e-607a6758c1a6 PD UK is spending Millions on various research projects related to Parkinson's...

https://acrobat.adobe.com/id/urn:aaid:sc:EU:a624e942-3aef-4cc7-a14e-607a6758c1a6...

Joolsg

•6 days ago

17 Replies

buprenorphine & LDN

I feel like an idiot 😱. I thought that I was having augmentation-like issues with buprenorphine. I had overlooked the fact that I started taking LDN (low...

I feel like an idiot 😱. I thought that I was having augmentation-like issues w...

707twitcher

•6 days ago

4 Replies

flying

just returned from holiday and the flights were horrible due to my restless legs we only do short flights now which are 2 hours long give or take but my legs...

just returned from holiday and the flights were horrible due to my restless legs...

nick-the-turk

•6 days ago

14 Replies

new symptoms with RLS

Hi I have had RLS on and off for the last 20 . It used to be once or twice a year that it would keep me awake but lately I seem to be getting it a lot more . A...

Hi I have had RLS on and off for the last 20 . It used to be once or twice a yea...

LadyElanor

•6 days ago

17 Replies

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Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

Meds that react against rls

Johns Hopkins

lab work 8 weeks post iron infusion - advice?

Sleeplessness

Summary of RLS resources

Pain in legs at night and Pregabalin

Gabapentin Update

Looking for a neurologist

Gabapentin start

Buprenorphine Effectiveness for Severe Restless Legs Syndrome and Dopaminergic Augmentation

pramipexole

Neuropathy and Osteoarthritis

Journal Request

PLMD and RLS Update

RLS Update

Can someone please help!!!

Asking for a friend re patient leaflet info in the UK

Quviviq or daridorexant

RLS diagnosis

Finally on opioids and it's not working

Buprenorphine

Doctors /drugs and blood results

Sifrol (Pramipexole) and Gambling addiction

Working with RLS

Back Trauma significantly worsening RLS - anyone else?

Microdosing and RLS

UK Parkinson's Charity Research Projects

buprenorphine & LDN

flying

new symptoms with RLS

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