HELP FOR RESTLESS LEGS SYNDROME - Restless Legs Syn...

Restless Legs Syndrome

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HELP FOR RESTLESS LEGS SYNDROME

Josana13 profile image
24 Replies

I have RLS so bad that I walk all night and get a couple of hours of sleep every other day. I live in a nightmare. Absolutely no life. Also in augmentation from Pramipexole.

I had ordered a supplement for my husband who gets bad cramps at night. The supplement immediately helped him. He told me why don't you try it, it might help. So I did over a week ago. HAPPY TO REPORT No RLS since first night and I sleep. A couple of nights my feet started and I walked a little and it was gone.

The supplement: MAG R&R - Muscle Recovery and sleep support. saltwrap.com PHONE; 866 444 3267

If you decide to try, please let me know if it works for you. Thank you and God bless.

JoAnn

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Josana13 profile image
Josana13
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24 Replies
Gmc54 profile image
Gmc54

Sounds good, shame it's in the US, or it would be worth a try.

SueJohnson profile image
SueJohnson in reply to Gmc54

I went out to the site and there would be popups every few minutes saying someone from xyz just purchased it and there were ones from England so you can purchase it.

goldlay profile image
goldlay in reply to SueJohnson

Would love to know how they ordered it as when I went to see how much shipping is ($24) there was a note that they only ship to the US and any other orders would be cancelled.

SueJohnson profile image
SueJohnson in reply to goldlay

Why don't you contact them and ask that question and tell them you saw popups showing orders from England.

goldlay profile image
goldlay in reply to SueJohnson

I already have, will see if they reply.

Covenant1962 profile image
Covenant1962 in reply to SueJohnson

Just had e-mail confirmation that they do not ship to UK. Suggested I try Amazon which I will do

kelirock profile image
kelirock

I have not seen that product here in Australia, where do you live?. so good to hear a positive story, good on you.

DicCarlson profile image
DicCarlson

Excellent ingredients - the GABA is suspect (can't usually cross the blood/brain barrier), and the melatonin might not agree with everyone. But, if it works, it works - good for you!

Henshaw241241 profile image
Henshaw241241

Hi I have had RLS for years many tablets I was on pramipexole then I went in to Augmentation very bad then I went to my doctor's then she asked me if I would like to see a neurologist very good checked me all over then she put me on pregabalin 75 mm 1 tablet at 6 pm 1 tablet at 9 with 2 codeine phosphate the best thing ever happened to me no climbing the walls walking outside at night time the best what happened ☺️ Tonyhenshaw241241 take care

Runedrun26 profile image
Runedrun26 in reply to Henshaw241241

Good luck to you

Josana13 profile image
Josana13 in reply to Runedrun26

Thank you. I pray it lasts.

Runedrun26 profile image
Runedrun26

Thank you for your input god bless.

Zurp111 profile image
Zurp111

Hello, impossible to get it here in Belgium... Would love to because I don't believe in medication, and all I read about it here confirm my opinion.

Pennydreadful66 profile image
Pennydreadful66

I can relate to that, I've spent many a night stood up swaying from side to side

with the sensations[?] running up n down my legs, sometimes arms and totally shattered before crumpling up on the floor exhausted eventually falling asleep. I've just been given my new medication, a gradual breakdown in dosage of the rotigotine patches I'm presently on 3mg, so today I start with 2mg for 2 weeks then 1mg for a further 2weeks before starting the tablets, Pregabalin Zentiva 1 twice a day. I have to say I'm not convinced but with no alternativeat this stage, whats choice do I have, I'm willing to try anything within reason.

Joolsg profile image
Joolsg in reply to Pennydreadful66

That may be too fast. It's best to reduce over a minimum of 3 months and you may need an opioid to help with the withdrawal symptoms. The pregabalin takes 4 weeks to be fully effective but won't help until about 2 to 3 weeks after last dose of the patch as you'll still be having withdrawal symptoms. Then just take the pregabalin at night. You won't need it in the day ( and it'll make you drowsy). The side effects of pregabalin usually settle within 3 months so don't give up too soon. Average dose for RLS is 150mg but some need higher.Good luck- the RLS is less intense once off the dopamine agonists.

friskyfem profile image
friskyfem

Ok

PLEASE try a tens machine I use it every evening for about 4 hours then I have relief from pain and can sleep ! Take care

Hoochybaby profile image
Hoochybaby in reply to

Hi I used a tens machine for many weeks to no availWhat settings and where do you place the patches

Glad it works for you!

in reply to Hoochybaby

Hi Hoochybaby , I have it quite high but for you I would start with a level so it doesn’t hurt because it shouldn’t be painful, and I put it anywhere on my legs and have it on for hours at a time , I do hope this can help you , take care ,Annie

CYF66 profile image
CYF66

Hi Josana, hi there everyone,

it might seem a simple silly tip, but from my experience, a 30 minutes warm bath just before sleeping helps a lot! I suffer of RLS and some of my nights are really horrible! When I make phisioterapy/fitness during the day, it gets worse and the next day I feel destroyed, extremely tired. I realized that when I let to make some of my fitness at late evening and after that take a longer warm bath, my body relax and I can sleep much better. Unfortunatelly, I can’t take these baths every night, for different reasons, but I thought I could contribute with your well-being by leaving here my experience.

I personally do not like medicaments and the only thing I take - when I don’t forget - is iron with vitamine C.

Stay well and take care,

Cynthia

Joolsg profile image
Joolsg

Glad to hear it's helping you Josana. How are you doing in reducing the Pramipexole? Remember to go slowly.

Josana13 profile image
Josana13 in reply to Joolsg

I have . 0.5' s and 0 .125.'s. Taking one 0.5 and three 0.125. Is that good coming from 1.5

Joolsg profile image
Joolsg in reply to Josana13

It is. Just keep reducing slowly. Drop 0.125 every 3 weeks and hopefully you'll get off the Pramipexole.I hope the Mag R&R keep helping.

Josana13 profile image
Josana13 in reply to Joolsg

The MAG R&R was wonderful for the first 6 weeks and now it isn't as great, but still much better than ever. I can handle this because all I have to do is get on my stationary bike and then go to sleep. Thank you for asking and I hope you have a wonderful weekend. Blessings from JoAnn

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