Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,379 members • 15,041 posts

All posts for December 2013

Is there a specialist in the uk for RLS?

My doctor is useless and doesn'tseem interested in my condition they have told me that they will not refer me onto anyone for my rls. Is there anyone in the uk...

My doctor is useless and doesn'tseem interested in my condition they have told m...

JenniferG

•10 years ago

22 Replies

Ropinirole and RSL

I was prescribed Ropinirole beginning of November 2013 with a low dosage 0.25mg increasing every two weeks to 0.5mg in the morning and 0.50 mg in the......

I was prescribed Ropinirole beginning of November 2013 with a low dosage 0.25mg ...

m1946

•10 years ago

10 Replies

as anyone got any advice about taking repinarole & other meds to control symtems

I have had a nightmare of a xmas with my RLS we have just spent xmas on holiday but returning by plane (it took 4hrs) I had to stand all the way because I...

I have had a nightmare of a xmas with my RLS we have just spent xmas on holiday...

connie50

•10 years ago

18 Replies

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RLS meds initiate RLS symtoms before suppressing them?

After several years of taking RLS medicines, most recently Rapinerole and now Sinemet (Carbidopa-Levo ER) both in combination with small dosage of Clonazepam....

After several years of taking RLS medicines, most recently Rapinerole and now Si...

Walnut32

•10 years ago

5 Replies

Pramipexole alternative.

Hi, I recently came off pramipexole after I started experiencing aching joints, and dizziness. I took tramadol for around 6weeks and got some amazing sleep....

Hi, I recently came off pramipexole after I started experiencing aching joints, ...

JenniferG

•10 years ago

13 Replies

Family not understanding!

Hi everyone, I hope you have had a lovely Christmas, as good as it can be anyhow! I had a good one, until I spoke to my daughter at her sisters party....

Hi everyone, I hope you have had a lovely Christmas, as good as it can be any...

Hidden

•10 years ago

12 Replies

Thankyou to everyone who has replied to me I now know I am not alone.

I will have to go and see my gp.My husband summed up the majority of non suffers reactions to restless legs the night I stoppef my mirapex.I woke him up I was...

I will have to go and see my gp.My husband summed up the majority of non suffers...

Hidden

•10 years ago

17 Replies

I cant take it anymore I want to chop my legs off! I am taking mirapex which helped for a year then I had to keep upping the dose.Now my

Legs start from noon.It has spread from into my arms.I tried tapering down the mirapex then stopping for 2 nights and my symptoms were soo so bad I had to give...

Legs start from noon.It has spread from into my arms.I tried tapering down the m...

Hidden

•10 years ago

37 Replies

Is everyone ok..??

I thought i would look in and i see its very quiet on here. I hope everyone is ok and didnt suffer to much with RLS over Christmas. :)

I thought i would look in and i see its very quiet on here. I hope everyone is o...

Hidden

•10 years ago

4 Replies

MIRAPEX

After trying most of the meds out there I am still on Mirapex with its horrible side effects. over the years I gained 20 lbs and now I find that it's coming on...

After trying most of the meds out there I am still on Mirapex with its horrible ...

Bella5

•10 years ago

8 Replies

Christmas Greetings from the RLS Forum Administrators!

Dear RLS forum members, The Administrators of the RLS Forum would like to wish each and every one of you an enjoyable Christmas, despite whatever our RLS may...

Dear RLS forum members, The Administrators of the RLS Forum would like to wish ...

Tiredparent

Restless Leg Syndrome•10 years ago

5 Replies

Hey Bevy Ann here a new member I have been taking Klonopin for 16 years but would like to get off the prescription

One night without seizure control and I want to put a gun to my head

BevyAnn

•10 years ago

2 Replies

Up Next: Baclofen

Well, it's not the med I asked for, but hopefully it's the med I need. I asked the doctor to try skelaxin, but he said that wasn't good for long term use. As...

Well, it's not the med I asked for, but hopefully it's the med I need. I asked t...

ookla

•10 years ago

7 Replies

For information

National Sleep Foundation A recent survey of patients with RLS found that 2/3 believe physicians need more education about the disease. While 73% of those...

National Sleep Foundation A recent survey of patients with RLS found that 2/3 be...

Hidden

•10 years ago

3 Replies

More failed medication attempts

So this week I'm trying codeine and/or ambien. The codeine is 15 mg and seems to have no real effect (there might be a slight effect) and whatever it does...

So this week I'm trying codeine and/or ambien. The codeine is 15 mg and seems to...

ookla

•10 years ago

29 Replies

can anyone tell me who is john Hopkins is I've heard quite a lot about this guy

connie50

•10 years ago

10 Replies

Can anybody tell me about side effects from Rotigotine patches - I'm on 3mg patches, is this the highest anybody has for RLS?

I'm wondering what other medication others take to supplement the patches if the dosage is not controlling the symptoms. Gabapentin did not suit me and I have...

I'm wondering what other medication others take to supplement the patches if the...

geebo4

•10 years ago

5 Replies

Updates at Health Unlocked

I received the following today from Health Unlocked. I am sorry that some of you have had problems on the forum and it is now clear why! I will be in touch...

I received the following today from Health Unlocked. I am sorry that some of you...

Tiredparent

Restless Leg Syndrome•10 years ago

3 Replies

Fibromyalgia?

Anyone also have fibromyalgia? If so, what do you take for it?

ookla

•10 years ago

8 Replies

Greetings fellow sufferers....this is my first post. Have had this dreadful affliction for 13 year's. I'm flying out to Johns Hopkins

Tomorrow to take part in their rls study. Has anyone else taken part in one of these? It requires you to be completely off of meds for 10 days prior to going...

Tomorrow to take part in their rls study. Has anyone else taken part in one of ...

Denver

•10 years ago

7 Replies

Lost contact..

Hi everyone, for days, i havent been able to load the forum, just got a blank page..or an error message. After contacting the Tech Support team, i am now able...

Hi everyone, for days, i havent been able to load the forum, just got a blank pa...

Hidden

•10 years ago

7 Replies

RLS and Diabetes.

Suffered RLS for last 10 years and getting worse (24/7) taking pramipxole .018mg.Just diagnosed with diabetes and not sure if leg and foot pain is due to this...

Suffered RLS for last 10 years and getting worse (24/7) taking pramipxole .018mg...

blokie

•10 years ago

5 Replies

I have suffered from RLS for the past 10 years (I am 70 years of age) and it is getting worse and happens 24/7, now suffering from diabetes.

blokie

•10 years ago

1 Reply

Augmentation with Clonazepam

Does augmentation occur with Clonazepam in the same way as it does with the dopamine agonist drugs? I have been taking 2 x 0.5 mg each night but now find they...

Does augmentation occur with Clonazepam in the same way as it does with the dopa...

JosieL

•10 years ago

5 Replies

RLS and daytime sleepiness

Studies claim that RLS patients rarely report excessive daytime sleepiness. Is this true for you? Please take a moment to respond to our poll, which can be...

Studies claim that RLS patients rarely report excessive daytime sleepiness. Is t...

Daragh

•10 years ago

9 Replies

I found this quiet interesting, long but a good read

http://www.rlcure.com/rls_study.pdf

Carol456

•10 years ago

11 Replies

How can I get my doctor to understand just how severe my RLS IS?

I am currently seeing a pain management doctor. I was referred to him by my family doctor because of the high dose of Tramadol I need in order to find relief....

I am currently seeing a pain management doctor. I was referred to him by my fami...

Twitch1972

•10 years ago

13 Replies

No success with klonopin.

Tried klonopin for a week. Made me groggy in the morning, hard to get out of bed, and drowsy all day. Also made me a little bit depressed. So I've stopped...

Tried klonopin for a week. Made me groggy in the morning, hard to get out of bed...

ookla

•10 years ago

3 Replies

Confusion and memory problems while taking Horizant

Been on Horizant for one week with little success.Today confused and having trouble remembering things .Not sure if this is from lack of sleep or side...

Been on Horizant for one week with little success.Today confused and having trou...

Beth1004

•10 years ago

3 Replies

Sadness this morning

I was shocked and very sad this morning to find that Yikes has left the forum. Yikes was a valuable member of this forum, one of the most helpful and...

I was shocked and very sad this morning to find that Yikes has left the forum. Y...

Hidden

•10 years ago

23 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for December 2013

Is there a specialist in the uk for RLS?

Ropinirole and RSL

as anyone got any advice about taking repinarole & other meds to control symtems

RLS meds initiate RLS symtoms before suppressing them?

Pramipexole alternative.

Family not understanding!

Thankyou to everyone who has replied to me I now know I am not alone.

I cant take it anymore I want to chop my legs off! I am taking mirapex which helped for a year then I had to keep upping the dose.Now my

Is everyone ok..??

MIRAPEX

Christmas Greetings from the RLS Forum Administrators!

Hey Bevy Ann here a new member I have been taking Klonopin for 16 years but would like to get off the prescription

Up Next: Baclofen

For information

More failed medication attempts

can anyone tell me who is john Hopkins is I've heard quite a lot about this guy

Can anybody tell me about side effects from Rotigotine patches - I'm on 3mg patches, is this the highest anybody has for RLS?

Updates at Health Unlocked

Fibromyalgia?

Greetings fellow sufferers....this is my first post. Have had this dreadful affliction for 13 year's. I'm flying out to Johns Hopkins

Lost contact..

RLS and Diabetes.

I have suffered from RLS for the past 10 years (I am 70 years of age) and it is getting worse and happens 24/7, now suffering from diabetes.

Augmentation with Clonazepam

RLS and daytime sleepiness

I found this quiet interesting, long but a good read

How can I get my doctor to understand just how severe my RLS IS?

No success with klonopin.

Confusion and memory problems while taking Horizant

Sadness this morning

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