Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,319 members•16,380 posts

Changing medication advice please

Hello, I am a 50 year old female living in the U.K and have suffered with RLS since first becoming pregnant 30 years ago. RLS gradually got worse and worse and...

Hello, I am a 50 year old female living in the U.K and have suffered with RLS si...

Tami8073

•4 days ago

43 Replies

My Rls . Is it unique?

I've had severe RLS for over 20yrd. In my late 50's not and otherwise healthy. Is it common to have it in one limb at a time.? I would say 80% in the left leg....

I've had severe RLS for over 20yrd. In my late 50's not and otherwise healthy. I...

Sleepdodger

•12 days ago

57 Replies

Zero RLS - possible?

Hello, I’ve read many posts here which has given me hope. IF YOU FOUND COMPLETE RELIEF from buprenorphine or any other drug, please write a short comment to...

Hello, I’ve read many posts here which has given me hope. IF YOU FOUND COMPLET...

Artifcial

•17 days ago

66 Replies

Struggling with depression and panic attacks as tapering off ropinirole.

I am really struggling at the moment with anxiety, depression and am ever on the edge of a panic attack. I started to taper Ropinirole on October 14th so it's...

I am really struggling at the moment with anxiety, depression and am ever on the...

Faith_Hope_1

•3 days ago

24 Replies

New German RLS Guidelines

https://neurolrespract.biomedcentral.com/articles/10.1186/s42466-024-00353-0 The German RLS group has released new Guidelines for the Treatment of RLS.I...

https://neurolrespract.biomedcentral.com/articles/10.1186/s42466-024-00353-0 Th...

Joolsg

•13 days ago

50 Replies

Gabapentinoids & increased risk of hip fractures

A new study shows an increased risk of hip fractures in the elderly on gabapentinoids. This shouldn't be too much of a worry as long as the risk is explained...

A new study shows an increased risk of hip fractures in the elderly on gabapenti...

Joolsg

•1 day ago

16 Replies

mental health and RLS

Dear all, I don't remember seeing any posts about the relation between your mental health and RLS, I am just interested, if anyone consulted a therapist for...

Dear all, I don't remember seeing any posts about the relation between your ment...

daisydaisy26

•9 days ago

36 Replies

Omeprazole alternative

I have been suffering with moderate to severe Rls for approx 2yrs, I also have me/ cfs. I have noticed that Omeprazole that my gp prescribed to take along side...

I have been suffering with moderate to severe Rls for approx 2yrs, I also have m...

Rosiecatblue

•11 days ago

32 Replies

Nidra TOMAC device working!

I’ve had the Nidra bands for over a month now and I have had remarkable results for severe RLS seven days a week. I’m on a better medication regimen and now...

I’ve had the Nidra bands for over a month now and I have had remarkable results ...

SleeplessinNC

•6 days ago

23 Replies

Buprenorphine & Nausea

As some of you on the forum will know from my earlier posts I have been able to successfully block my severe RLS with buprenorphine patches (10-15mcg/hr). What...

As some of you on the forum will know from my earlier posts I have been able to ...

davchar23

•5 days ago

22 Replies

Ferritin Improvement

Had my iron tested for the first time 8 months ago when my ferritin was a lowly 22. I've been taking iron supplement (with vitamin C -and a probiotic- more...

Had my iron tested for the first time 8 months ago when my ferritin was a lowly ...

Jauny

•20 days ago

43 Replies

Ropinirole

Today my doctor is taking me slowly off of Pramipexole and onto Ropinirole. Any other drug is habit forming so she will not prescribe anything else. I did,...

Today my doctor is taking me slowly off of Pramipexole and onto Ropinirole. Any ...

Bloodhound669

•1 day ago

11 Replies

Husband with restless legs and Parkinsons disease

Hello I have only posted briefly before but read most of the posts. I am really in complete despair with regard to my 75 year old husband and the worsening...

Hello I have only posted briefly before but read most of the posts. I am rea...

markland

•3 days ago

14 Replies

Buprenorphine for RLS

anyone using Buprenorphine for RLS? Please share your results.

Graceman

•20 days ago

37 Replies

what is the trigger

guys need your help! my husband suffers with RLS badly, every night when he is getting tired and start drifting into sleep he can’t fall asleep as his legs...

guys need your help! my husband suffers with RLS badly, every night when he is ...

Martina777

•1 month ago

47 Replies

No methadone

I’m stuck on pramipexole now. The first week at 2.5 mg of methadone wasn’t too bad but after one week at 5 mg the side effects were overwhelming. I talked to...

I’m stuck on pramipexole now. The first week at 2.5 mg of methadone wasn’t too b...

tagaxel

•5 days ago

17 Replies

Levodopa Can Help If Used Correctly

I’ve found a way to use Levodopa, and it finally works for me—previously, I had very negative effects. In short, I take it not before going to bed but after I...

I’ve found a way to use Levodopa, and it finally works for me—previously, I had ...

VladimirF

•12 days ago

27 Replies

Finally off ropinorole!

After 7 months I am finally off ropinorole. I started at 10 mg. I am still struggling with withdrawal symptoms. I am taking 600 mg gabapentin. My Dr gave me...

After 7 months I am finally off ropinorole. I started at 10 mg. I am still stru...

ParisianTN55

•4 days ago

15 Replies

my RLS is ruining my life

hi, My rls started 11 or 12 years ago and I started taking pramipexole 0.88 around 2021 at first I was only taking 1-2 tablets but my rls was getting worse....

hi, My rls started 11 or 12 years ago and I started taking pramipexole 0.88 ar...

ving444

•1 month ago

39 Replies

Ferritin dropping

Hello I'm new so I appoligise if this has been asked before still navigating around the app. I've had rls for around 10 years but I would only get symptoms...

Hello I'm new so I appoligise if this has been asked before still navigating aro...

Gibralter2023

•14 days ago

26 Replies

Buprenorphine

My GP still refuses to prescribe Buprenorphine even when Dr Fackrell has sent e mails and a letter recommending it. All of you who are lucky to get your GP to...

My GP still refuses to prescribe Buprenorphine even when Dr Fackrell has sent e ...

Gonzo123

•19 days ago

30 Replies

Worsening Restless Legs, Please help

I have suffered with Restless Legs for 13 years but since the beginning of October it has become much worse. Last night I got about 1 hour's sleep! I can't go...

I have suffered with Restless Legs for 13 years but since the beginning of Octob...

Doggywalker

•5 days ago

15 Replies

Low Potassium and RLS

Finally received the labs from the V.A. No workup on iron but everything else. Appears that I am low 3.3 mEg/l. I've read that it may be due to the water pills...

Finally received the labs from the V.A. No workup on iron but everything else. A...

Bloodhound669

•5 days ago

15 Replies

Methadone plus cannabis THC?

Hi all, I take 7.5mg methadone before bed. This helps with the RL , though still get breakthroughs quite frequently. Often I am awake with insomnia and after...

Hi all, I take 7.5mg methadone before bed. This helps with the RL , though sti...

Rayme

•4 days ago

13 Replies

Day time RLS

Hello. A quick question for Sue. I've read now a couple ot times on these pages that day time RLS isn't the same as night time RLS. I can get terrible bouts of...

Hello. A quick question for Sue. I've read now a couple ot times on these pages ...

TeddyRupert

•21 hours ago

6 Replies

re help

my restless legs are now not only in my legs I have symptoms in both stem and shoulders Does anyone else suffer in these other places please help Driving...

my restless legs are now not only in my legs I have symptoms in both stem and sh...

mjm1929

•16 days ago

25 Replies

More advice please!

I had an MRI 2 weeks ago because the pain from my fractured vertebrae is now unbearable although the Buprenorphine tablet's help for a while. Still waiting to...

I had an MRI 2 weeks ago because the pain from my fractured vertebrae is now unb...

Danni54

•15 days ago

24 Replies

Serum Ferritin Levels RLS

Hello. My name is William Henry and I have posted many times on this Forum. I have had RLS for many years and it has been very bad recently I have decided to...

Hello. My name is William Henry and I have posted many times on this Forum. I ha...

williamghenry

•10 days ago

20 Replies

Video of RLS/PLMD

Just came across this on Instagram. How many thousands of people have this and are totally unaware they're getting terrible quality sleep? Fascinating....

Just came across this on Instagram. How many thousands of people have this and a...

Joolsg

•16 days ago

24 Replies

Flares

I've had RLS for almost 65 years, it's far, far worse now than at the beginning. I also have its partner fibromyalgia and linked tendinitis plus arthritis in...

I've had RLS for almost 65 years, it's far, far worse now than at the beginning....

MumofBella

•8 days ago

16 Replies

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