Restless Legs Syndrome

19,686 members • 13,307 posts

RLS Consultant in London

Good morning. I'm seriously considering seeing someone privately about my RLS and wonder if there's anyone fellow-sufferers can recommend please? I've taken...

Good morning. I'm seriously considering seeing someone privately about my RLS an...

Firenze1

•2 days ago

26 Replies

So many questions ??

I am 71 years old, weigh 8 stone, generally fit and healthy. I have probably had RLS for many years causing the occasional sleepless night or restless evening...

I am 71 years old, weigh 8 stone, generally fit and healthy. I have probably had...

Dires

•5 days ago

38 Replies

Clonazepam instead of Pregabalin?

I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the...

I have just had a telephone appointment with a Neurologist which lasted all of 9...

oldfidgetlegs

•7 days ago

42 Replies

Methadone bliss

From feeling suicidal after so many years of unremitting RLS I’m without pain or discomfort for many hours. I have a wonderful team of consultants who...

From feeling suicidal after so many years of unremitting RLS I’m without pain or...

Nightwalker999

•4 days ago

30 Replies

Iron supplements dosage

Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but...

Is 20mg of gentle iron each night enough? It worked well the first night. What a...

pennygates

•8 days ago

44 Replies

Tingling

My issue is maddening tingling in my fingers and toes. I’m taking Pramipexole and it’s about 40% effective. Have tried Gabopentin, Ropenipol to no avail. I’m...

My issue is maddening tingling in my fingers and toes. I’m taking Pramipexole an...

tuckerdog109

•3 days ago

24 Replies

RLS/BUPRENORPHINE/ BREATHING

I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I use a sleep tracker and it started alerting me to a very serious sleep apnea...

I’m curious if anyone else has had sleep/breathing issues with buprenorphine. I ...

erinjee

•23 days ago

66 Replies

Restless Legs Syndrome

Why is RLS treated like epilepsy?

Elouis

•2 days ago

20 Replies

Blood results

Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum...

Hi, i have now received my blood results and would like some advice please Sue/J...

Dires

•14 days ago

47 Replies

Gentle iron

Hi everone,Following on from my recent posts regarding iron supplements, I would like to let you know that I have doubled my iron intake in the last couple of...

Hi everone,Following on from my recent posts regarding iron supplements, I would...

pennygates

•6 days ago

29 Replies

Coming off pramipexole

I am currently on a half of 0.088 mg of pramipexole and 200mg of pregabalin and one zapain tablet. I have cut my daily dose of pramipexole to half and am going...

I am currently on a half of 0.088 mg of pramipexole and 200mg of pregabalin and ...

Carolinetidy

•10 days ago

37 Replies

Augmentation

Hi , Im 66 and suffered with Rls for over 30 yrs. Currently on Ropinirole(about 8 yrs) but def suffering with augmentation . I take 2mgs slow release at 4pm...

Hi , Im 66 and suffered with Rls for over 30 yrs. Currently on Ropinirole(about ...

Huntingleroy

•11 days ago

37 Replies

Best docs in US

I've struggled with RLS for over 30 years. I also struggle with PLM and insomnia. I'm now taking trazodone, tizanidine, pramapexole and gabapentin. I don't...

I've struggled with RLS for over 30 years. I also struggle with PLM and insomnia...

givingITMybest

•1 day ago

13 Replies

Does anyone use ‘Active Iron’ in UK?

I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I...

I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron ...

Dires

•8 days ago

29 Replies

Oxycodone

Dear friends, I have to share with you that for the first time in simply YEARS I have been able to relax on the flights to the States to see our son & wife...

Dear friends, I have to share with you that for the first time in simply YEARS ...

Simkin

•10 days ago

33 Replies

Daytime leg tingling

can RLS also give daytime leg tingling in one leg? Any explanation why my RLS symptoms have worsened so much, so suddenly? Still waiting for blood results...

can RLS also give daytime leg tingling in one leg? Any explanation why my RLS ...

Dires

•15 days ago

37 Replies

Desperate.

Hi,I've stopped Pramipexole in the last few months which I'm happy about but and this is a BIG but,I've been taking Pregabalin without any ease at all,I'm at...

Hi,I've stopped Pramipexole in the last few months which I'm happy about but and...

Whymelord

•3 days ago

15 Replies

Specialists in UK?

Hi, I am new to this forum and I'm sure this has been asked many times but are there any specialists in the UK to be referred to for RLS? I've had RLS for...

Hi, I am new to this forum and I'm sure this has been asked many times but are t...

samd5555

•28 days ago

44 Replies

No help

Hi everyone I just got through to my gp after half an hour,I explained my situation and how I was feeling, she told me to visit my option if my eyesight is...

Hi everyone I just got through to my gp after half an hour,I explained my situat...

Whymelord

•2 days ago

11 Replies

RLS Cure Blog

I found this website that is located in the US. I recently started it, using mostly all the recommendations. The Blog owner does not appear to be profiting...

I found this website that is located in the US. I recently started it, using mo...

Wanman4

•1 month ago

43 Replies

Pregabalin to Gabapentin rough ride

Switched from 100 mg Pregabalin to 600 mg Gabapentin 8 nights ago. Getting maybe 4 hours disturbed sleep, mostly just shaking all night with PLMD....

Switched from 100 mg Pregabalin to 600 mg Gabapentin 8 nights ago. Getting mayb...

wantokporo

•16 hours ago

6 Replies

RLS & BURPRENORPHINE

Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film)....

Hello everyone, I had been on Oxy for the past couple of years for pain. Recent...

Josana13

•24 days ago

35 Replies

RLS what for I do now

The night before last was terrible. For some years I have been taking 2x 50mg Tramadol capsules after weaning off Ropinirole about 5 years agoBut this time the...

The night before last was terrible. For some years I have been taking 2x 50mg Tr...

m1946

•25 days ago

32 Replies

Here we go again!

Many of you may recall that I have suffered terribly with restless legs and arms for decades and that I FINALLY got some relief when I was prescribed Ferrous...

Many of you may recall that I have suffered terribly with restless legs and arms...

Sher78

•12 days ago

22 Replies

Newly diagnosed rls

Hi, I was diagnosed with rls about 6 weeks ago after finally going to gp. He ordered bloods and I have a ferritin level of 5. He is keen to find cause of low...

Hi, I was diagnosed with rls about 6 weeks ago after finally going to gp. He ord...

Smodge1

•9 days ago

19 Replies

Prednisone

My neuro just prescribed .5mg of ropinirole. I can't take gaba due to breathing issues. I really, really don't want to start the ropinirole!I think my rls...

My neuro just prescribed .5mg of ropinirole. I can't take gaba due to breathin...

rmbroadh

•1 month ago

36 Replies

Pennygates

I've recently had a worsening of my RLS symptoms. Now all day and night, with the odd hour of relief despite taking oxycodone (which I take for arthritic pain...

I've recently had a worsening of my RLS symptoms. Now all day and night, with th...

pennygates

•21 days ago

28 Replies

buprenorphine patch - any advice?

Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting from Monday. He will not prescribe tablets at this point - he feels the patch...

Hello, my GP has agreed to prescribe me the buprenorphine patch 5mg starting fro...

Drls

•20 days ago

27 Replies

Reducing Augmentation

https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on...

https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-synd...

Joolsg

•20 days ago

27 Replies

Sleeping tablets to offset Buprenorphine sublingual side effects.

I’ve been on first 0.4 and latterly .06 mg Buprenorphine sublingual tablets quite successfully for a couple of months now. Unfortunately, I suffer from the...

I’ve been on first 0.4 and latterly .06 mg Buprenorphine sublingual tablets quit...

dickJones

•9 days ago

18 Replies

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Restless Legs Syndrome

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RLS Consultant in London

So many questions ??

Clonazepam instead of Pregabalin?

Methadone bliss

Iron supplements dosage

Tingling

RLS/BUPRENORPHINE/ BREATHING

Restless Legs Syndrome

Blood results

Gentle iron

Coming off pramipexole

Augmentation

Best docs in US

Does anyone use ‘Active Iron’ in UK?

Oxycodone

Daytime leg tingling

Desperate.

Specialists in UK?

No help

RLS Cure Blog

Pregabalin to Gabapentin rough ride

RLS & BURPRENORPHINE

RLS what for I do now

Here we go again!

Newly diagnosed rls

Prednisone

Pennygates

buprenorphine patch - any advice?

Reducing Augmentation

Sleeping tablets to offset Buprenorphine sublingual side effects.

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