Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,435 members • 15,102 posts

All posts for March 2018

Neurologist/Sleep specialist

Does anyone know of anyone of the above expertise I could find in West Yorkshire? I had an appointment to see one in January this year after waiting 18 weeks...

Does anyone know of anyone of the above expertise I could find in West Yorkshire...

Hooc

•6 years ago

6 Replies

New to this condition

Hi all I am 50 this year and female I have had a few nights now which cause me to not be able to sleep due to the desire to keep moving my arms and sometimes...

Hi all I am 50 this year and female I have had a few nights now which cause me ...

Lizzie108

•6 years ago

14 Replies

Severe Full body RLS with no health ins.

I have had RLS since I was a kid long before they even knew what it was. It has gotten so much worse. I am in so much pain and I have no insurance so my...

I have had RLS since I was a kid long before they even knew what it was. It has...

Cntrybabe1965

•6 years ago

5 Replies

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Survey for 18 - 35 year olds

Hi all. Here is a survey for the more youthful HE (RLS) member: https://www.surveymonkey.com/r/EFNA-YS My apologies if its on here and I've missed it.

Hi all. Here is a survey for the more youthful HE (RLS) member: https://www.sur...

Hidden

•6 years ago

Be the first to reply

Terrible RLS

I suffer terribly with full body RLS that lasts for day's at a time if I don't take strong opioid medication,does anyone else have it this severely and is...

I suffer terribly with full body RLS that lasts for day's at a time if I don't t...

Alyson66

•6 years ago

13 Replies

Tramadol ER

Everybody talks about how great tramadol is, but I have been on Tramadol ER (extended release) for over 2 months now and it doesn't help. I've tried other...

Everybody talks about how great tramadol is, but I have been on Tramadol ER (ext...

LanaCSR

•6 years ago

8 Replies

Gabapentin

What meds can be taken instead of gabapentin? Would like to stop taking the gaba but I'm sure will need another med.

What meds can be taken instead of gabapentin? Would like to stop taking the gab...

Ikeeptrying

•6 years ago

8 Replies

Do halcyon bracelets work?

I heard of these from family in the UK.. Do they really work? I have gotten so much worse over the last 4 weeks. It’s never just my legs now, my back, arms and...

I heard of these from family in the UK.. Do they really work? I have gotten so m...

loops12

•6 years ago

28 Replies

i am new here. About RLS and pramipexole dihydrochloride-- bad withdrawal?

EDWARD1001

•6 years ago

10 Replies

RLS Voices in NY Times

RLS Voices in NY TIMES: https://www.nytimes.com/interactive/2018/well/patient-voices-rls.html

RLS Voices in NY TIMES: https://www.nytimes.com/interactive/2018/well/patient-vo...

Bajatom

•6 years ago

1 Reply

Can gabapentin and pregabalin be taken together?

My RLS has got worse again recently as I have been tapering off 8 x Tramadol which was prescribed during DAWS last summer. My GP has prescribed my pregabalin 3...

My RLS has got worse again recently as I have been tapering off 8 x Tramadol whi...

Adge

•6 years ago

7 Replies

UPDATE ON JOB

This past week, in my voluntary role as a Patient Liaison Advocate, I was somewhat surprised to be given a ward that I definitely did not expect .... THE...

This past week, in my voluntary role as a Patient Liaison Advocate, I was somewh...

Phogan

•6 years ago

2 Replies

Third week of pram withdrawal.Worried.

I am already at my third week of withdrawal (no pram at all also on 175mg of lyrica) but rls hasnt settled down.It was so difficult to go to work today since i...

I am already at my third week of withdrawal (no pram at all also on 175mg of lyr...

Katerina22

•6 years ago

4 Replies

RLS improved for 2nd time while ill with a virus

Some time ago someone else posted something about this happening to them and I said I'd experienced it also. So here it is again! There must be some as yet...

Some time ago someone else posted something about this happening to them and I s...

Hidden

•6 years ago

31 Replies

Update 3/26/18

UPDATE 3/26/18: Last neurologist visit on 3/21 has me on an agreed upon path of getting off the Neupro patch and all dopamine agonists. Currently still on the...

UPDATE 3/26/18: Last neurologist visit on 3/21 has me on an agreed upon path of ...

lenpharleyd

•6 years ago

2 Replies

RLS, Pramipexole & Vine Extract

Hi! I’m new here & glad to have found fellow RLS sufferers. I’ve been taking pramipexole for a few years now. I take 0.088mg x3 tabs a night each evening. I...

Hi! I’m new here & glad to have found fellow RLS sufferers. I’ve been taking pr...

Sallysews

•6 years ago

15 Replies

Rls and vitamin d

Has everyone had their vitamin d checked? When my rls was first diagnosed 3 yrs ago,I had my bloods checked and vit d,it came back that I was low on vit d but...

Has everyone had their vitamin d checked? When my rls was first diagnosed 3 yrs ...

Kells22

•6 years ago

23 Replies

My dipyridamole experiment - progress report

It's well over a month since I started taking dipyridamole to treat my rls. I have to report that I am beyond delighted with how the new system is working at...

It's well over a month since I started taking dipyridamole to treat my rls. I ha...

involuntarydancer

•6 years ago

30 Replies

Positional Release Therapy

Hi has anyone tried PRT would love to hear from anyone who has and wether it worked or not . Its expensive but if it works i would do it . But have not seen...

Hi has anyone tried PRT would love to hear from anyone who has and wether it wor...

Palamino

•6 years ago

3 Replies

A funny thing happened...perhaps it was RLS, in reverse!

Usually RLS travels down the spine and into the legs. That seems to be the usual experience of most people. But one day about 2 weeks ago, I stubbed my toe...

Usually RLS travels down the spine and into the legs. That seems to be the usua...

lauraflora

•6 years ago

7 Replies

Ropinirole, safe dose to avoid augmentation??

Can anyone advise me please, on a safe dose of Ropinirole in order to avoid augmentation. I have been taking .75 mg for a year, and it certainly helps my RSL,...

Can anyone advise me please, on a safe dose of Ropinirole in order to avoid augm...

jenny891

•6 years ago

10 Replies

Using cannabis for RLS

I'm a long term sufferer of RLS. Mine comes on in the evening when I'm trying to relax after a long day. I've never sought out any medication. Choosing instead...

I'm a long term sufferer of RLS. Mine comes on in the evening when I'm trying to...

tens-or-bust

•6 years ago

31 Replies

Steroids side effects

I have developed an oral anti immune disease...Lichen plantar...(bit like thrush) and was prescribed steroid pills to use as mouth wash. that same first day ,...

I have developed an oral anti immune disease...Lichen plantar...(bit like thrush...

funnyfennel

•6 years ago

9 Replies

Alternatives to Pramipoxele

Hi I'm new to this forum I've had RLS for some time. I felt like it was originating from the base of my spine so to cope with it at night I used to rub...

Hi I'm new to this forum I've had RLS for some time. I felt like it was originat...

marigold60

•6 years ago

8 Replies

FIRST NIGHT ON LOW-DOSE NALTREXONE

As I posted last week I am still trying to wean off of 0.25 Pramipexole after having suffered for a long time with augmentation from first Ropinirole and then...

As I posted last week I am still trying to wean off of 0.25 Pramipexole after ha...

lbrosa

•6 years ago

27 Replies

Interproximal gaps in teeth..side effect of dopamine drug?

Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone...

Hi, I haven't been on the site for a while because the RLS is better. However I ...

Tazmania1

•6 years ago

10 Replies

Long term rls sufferer

Hi I,m 56 and have had rls since around 9 year's of age. It's got progressively worse in the last 15 years to the point of feeling like I was going out of my...

Hi I,m 56 and have had rls since around 9 year's of age. It's got progressively...

Sophiebella-

•6 years ago

13 Replies

Foot problems

Hi. I am new to this forum. I have been diagnosed with RLS - but in one foot. As I understand it most people suffer at night - I am exactly the opposite and...

Hi. I am new to this forum. I have been diagnosed with RLS - but in one foot. As...

Hidden

•6 years ago

21 Replies

terrible night/different medicine

Gabapentin promethazine and lipitor are new meds i took yesterday, had the worst RL ever, please can you tell me which of these are affecting it

Gabapentin promethazine and lipitor are new meds i took yesterday, had the worst...

FLAME43

•6 years ago

25 Replies

Urine odor?

This is somewhat of an odd question and I'm hoping I'm not the only one but my urine has a truly awful odor. I'm a med tech so I know what urine ought to smell...

This is somewhat of an odd question and I'm hoping I'm not the only one but my u...

Whippetmama

•6 years ago

12 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for March 2018

Neurologist/Sleep specialist

New to this condition

Severe Full body RLS with no health ins.

Survey for 18 - 35 year olds

Terrible RLS

Tramadol ER

Gabapentin

Do halcyon bracelets work?

i am new here. About RLS and pramipexole dihydrochloride-- bad withdrawal?

RLS Voices in NY Times

Can gabapentin and pregabalin be taken together?

UPDATE ON JOB

Third week of pram withdrawal.Worried.

RLS improved for 2nd time while ill with a virus

Update 3/26/18

RLS, Pramipexole & Vine Extract

Rls and vitamin d

My dipyridamole experiment - progress report

Positional Release Therapy

A funny thing happened...perhaps it was RLS, in reverse!

Ropinirole, safe dose to avoid augmentation??

Using cannabis for RLS

Steroids side effects

Alternatives to Pramipoxele

FIRST NIGHT ON LOW-DOSE NALTREXONE

Interproximal gaps in teeth..side effect of dopamine drug?

Long term rls sufferer

Foot problems

terrible night/different medicine

Urine odor?

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