FDA: Copaxone warning for possible anaphylaxis

[Lilith08]

The US FDA is adding a boxed warning to Copaxone / glatopa / glatiramer acetate regarding possible anaphylactic reactions.

Some people, even after years of use, may present with anaphylactic symptoms, “including wheezing or difficulty breathing, swelling of the face, lips, or throat, and hives.”

Read the whole article yourself and discuss with your neurologist. It’s important to recognize the difference between “normal” post-injection reactions and very serious reactions that suggest anaphylaxis.

drugs.com/fda/safety-commun...

[lbenmaor]

Thank you for posting this. Leslie

[CatsandCars]

If you're using this med, it seems like you should ask your doctor for an Epipen and learn how to use it.

[Lilith08 in reply to CatsandCars]

That’s a good idea!

[Helpmeup]

Thanks so much for posting this. Good info to have.

[stepsforNeeC]

Thank you, thank you so much for sharing this information!!!! I have been on Copaxone for years; mainly because my Neurologist has been concerned to switch me because I have “low blood pressure .” I I’m in my Sixties and blessed with my late mom’s good genes and take care of myself with diet and exercise! My exacerbations have been few and far and in between. I have been complimenting this decision for a few years now. It’s time to make a decision !!!!🙏

[Cag51]

Thank you for posting. I stopped Copaxone in 2008 after being on it for 7 years. I developed hives in 2003 that became more severe with each episode. My allergist ordered epi pens and told me to never be without one. I questioned both my MS neurologist and allergist about hives being caused by Copaxone. Both said no. Woke one night unable to breathe due to throat swelling. I stopped my injections because of plate sized welts. My Neuro was insistent that I go on Rebif which had the same warning of a rare chance of hives so I refused. Severe hives scared me more than MS. The hives finally subsided and have never returned. I always suspected Copaxone caused them. I now know to go with my gut no matter what docs recommend. This article makes me feel vindicated. My MS has remained stable.