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My MSAA Community

9,019 members • 20,711 posts

All posts for September 2020

A Time for Everything

My MS can be challenging at times to absolutely miserable but life in the world has been challenging and hard for many. I find myself not looking or reading...

My MS can be challenging at times to absolutely miserable but life in the world ...

•4 years ago

Unnumbered post I just watched an Elon Musk talk 24 Sep 2020

Family, I just finished watching an Elon Musk talk on YouTube. I got from it try, try, try. Keep trying, accept setbacks and failure. Learn from them,...

Family, I just finished watching an Elon Musk talk on YouTube. I got from it t...

•4 years ago

Post 691 I want what is best for you 24 Sep 2020

Good morning my beloved ms family (that is “YOU”). How are we this morning? A good calm nights sleep I hope. No ms gremlins causing havoc in your body....

Good morning my beloved ms family (that is “YOU”). How are we this morning? ...

•4 years ago

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What can I do about feet pain?

My feet hurt, freezing cold all the time. I am getting tired of this foot drop. I don't want to use my walker because I feel old when I do. I guess I should be...

My feet hurt, freezing cold all the time. I am getting tired of this foot drop. ...

•4 years ago

The sneakiness of MS

I did not realize prior to diagnosis and until I got treated with DMT how bad MS was. It's only after getting better that I realized how bad things had been:...

I did not realize prior to diagnosis and until I got treated with DMT how bad M...

•4 years ago

Unnumbered post I 22 Sep 2020 2

I (Royce the mswriter and your Brother) have love for all of "YOU" and wish "YOU" the very" best for "YOU now and in your journey. it at times is not easy,...

I (Royce the mswriter and your Brother) have love for all of "YOU" and wish "YOU...

•4 years ago

Poat 690 I am me and you are you 22 Sep 2020

G’day my beloved ms family. As always “YOU” have my best wishes for the day, last night, tonight and every moment of every d and night. As a member of...

G’day my beloved ms family. As always “YOU” have my best wishes for the day, l...

•4 years ago

Still driving? When to stop?

For those of you who have stopped driving, how did you determine it was time to hang up your keys? It is a huge decision. I appreciate your input.

For those of you who have stopped driving, how did you determine it was time to ...

•4 years ago

Does or has anyone else have a problem with the contrast they inject into you when you go for your MRI. My kidneys are now damaged.

Kidney problems

Kidney problems

•4 years ago

Just Dx w/ MS and Dr recommends Vumerity (same as Tecfidera component) however JCV+ and scared to take this meds. Any experience please?

I was just recently dx with MS this Aug 2020. My neurologist recommended taking Vumerity and have not started yet. My JCV test is positive at 1.65 and really...

I was just recently dx with MS this Aug 2020. My neurologist recommended taking ...

•4 years ago

Good Sources of Accounts of Progression?

Does anyone know of a good book (or other resource) that collects the particulars of the progression of many MS patients? I know "everyone's MS is different,"...

Does anyone know of a good book (or other resource) that collects the particular...

•4 years ago

Shortest Time Between Steroid Sets?

What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been...

What is the shortest amount of time you've had between needing sets of steroids?...

•4 years ago

Positive Ocrevus News

https://www.neurologylive.com/view/ocrelizumab-treatment-results-in-high-neda-rates-improvements-in-ms-symptoms

https://www.neurologylive.com/view/ocrelizumab-treatment-results-in-high-neda-ra...

•4 years ago

"Squawks"

I was searching for a file on my computer and came across this and thought you might like it. I have 2 brothers-in-law that are Colonels in the Air Force and...

I was searching for a file on my computer and came across this and thought you m...

•4 years ago

Afghan

I am so proud of the Afghan Turtlepie crocheted for me I thought I would show everyone how happy it makes me.

I am so proud of the Afghan Turtlepie crocheted for me I thought I would show ev...

•4 years ago

Post 689 Emergency room visit 20 Sep 2020

G’day my ms family. A good Sunday for you so far? Just listening to Bob Marley, if I was so inclined I should be smoking a huge joint. Everybody knows...

G’day my ms family. A good Sunday for you so far? Just listening to Bob Mar...

•4 years ago

computer issues

Hi folks in this nice little support space, just wanted to let people know my computer crashed so I have been unable to keep up lately( on a barrowed one...

Hi folks in this nice little support space, just wanted to let people know my co...

•4 years ago

Agapepilgrim

Did you know there triangles with no sides sorry for the typos

Did you know there triangles with no sides sorry for the typos

•4 years ago

What about having fibromyalgia also?

What to do when you also have fibromyalgia?

What to do when you also have fibromyalgia?

•4 years ago

2 choices

Normally people will send me an email with a good old fashioned clean joke, but not this morning. Read this as you won't regret it. Two Choices, What would...

Normally people will send me an email with a good old fashioned clean joke, but ...

•4 years ago

Unnumbered post today 19 Sep 2020

Good Morning ms family. I hope last night was a good and restful one. I think last nights sleep, actually checking my Fitbit it actually was 1 hr each of...

Good Morning ms family. I hope last night was a good and restful one. I thin...

•4 years ago

Math puzzle

Couldn’t post it with other post

Couldn’t post it with other post

•4 years ago

My furbabies 🥰

They love each other so much 😝☺️ Have a wonderful weekend everyone 👍🙏 Ken 🐾 🐾

They love each other so much 😝☺️ Have a wonderful weekend everyone 👍🙏 Ken 🐾 ...

•4 years ago

Rosh Hashana!!

Happy New Year! Warm Wishes, Leslie

Happy New Year! Warm Wishes, Leslie

•4 years ago

Post 690 Find your way to succeed 17 Sep 2020

Family, g’day again.This idea snuck into my head today and I thought I would share it and see where it goes. Everyday, all day find a way to succeed....

Family, g’day again.This idea snuck into my head today and I thought I would sha...

•4 years ago

New to the chat but not why where here.

Well where to start my first post. I've had MS for 8 years and it made me have to retire five years ago which still makes me hurt and mad. I live alone and not...

Well where to start my first post. I've had MS for 8 years and it made me have t...

•4 years ago

A funny one!

A man stares at a cake and says I have a lot of will power but not a lot of Won't Power. Leslie

A man stares at a cake and says I have a lot of will power but not a lot of Won...

•4 years ago

Post 689 This is usually for newbies 17 Sep 2020

Good morning my ms family. I think last night was a better nights sleep, and I hope it was for “YOU”. No ms gremlins running in my head and face, at least...

Good morning my ms family. I think last night was a better nights sleep, and I...

•4 years ago

Frank

Retired MS patient, an advocate working to improve the lives of persons living with MS, all other disabilities seen and unseen, and senior citizens.

Retired MS patient, an advocate working to improve the lives of persons living w...

•4 years ago

Proton pump

The proton pump inhibitor is not really working the way I wanted back to the drawing board I know this has to do with vegus nerve stimulator trying not to do...

The proton pump inhibitor is not really working the way I wanted back to the dra...

•4 years ago

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