Good morning my ms family. I think last night was a better nights sleep, and I hope it was for “YOU”. No ms gremlins running in my head and face, at least none that I noticed, and let me assure “YOU” when they are playing on my Trigeminal nerve I notice it. So life is good for me and I hope it is the same for “YOU”.
If “YOU” had taken the time to look at my writings “YOU” might have noticed a theme. I am VERY PRO Disease-Modifying Therapy (DMT). I have taken it for over 20 years and will continue until I pass. I very highly recommend that “YOU” do the same. If a medical professional suggest waiting and seeing, fire them and get another. Only a VERY SMALL percentage of us have a benign form of RRms , most of us will have the Relapsing-Remitting (RRms) form of the disease. With that being the case take your DMT, it is designed for RRms, and that is what “YOU” have.
All DMT has side effects, some much worse than others. In my experience, they can be minimized by changing your behaviour. Take your medicine on a full stomach. Be well hydrated, if aspirin, Tylenol, Benadryl (antihistamine) is recommended, take it. This is a very serious condition that we all have, act like it.
If “YOU” have noticed me saying this before, “YOU” may have. I feel that if somebody is a distance into their ms journey this is old news. BUT and I stress But, if “YOU” are newly diagnosed (Newby) or just struggling and need a reminder my writing is designed for “YOU”. I have nothing against ms stories in books at the book store, but I will try not to bore “YOU” with details of my life. I will try to tell “YOU” another way to make your life the best that “YOU” can, and let “YOU” know that it is okay to stumble and fall along the way. FALLING AND CRYING IS OKAY WE ALL DO IT, BUT AND THERE IS ALWAYS A BUT. “ YOU” MUST PULL YOURSELF UP, DUST YOURSELF OFF AND KEEP MOVING. I understand if this takes a little time, be gentle with yourself. Allow yourself to recuperate. There is no prize for the fastest anything in this illness. Take your time “YOU” have many years ahead of “YOU”. Be easy, be gentle with yourself, love yourself. This is your life, nobody else’s, live it at your pace, and remember crying is allowed. In fact, encouraged, so cry whenever and for as long as “YOU” need too
So my dear ms sibling, welcome to the family, make sure that “YOU” get a second opinion. Keep your own medical records. Start a diary, about anything “YOU” want. This is a very long incurable and chronic illness. Build yourself up, make yourself strong. Who knows when “YOU” might need that strength. Remember I am writing to one person out there, today it might be “YOU”. Tomorrow maybe not.
Always believe that no matter how bad “YOU” think it might be “YOU” can get through the struggles of RRms. We all have and “YOU” can as well. “YOU” have a very long life ahead of “YOU”. Yes, there will be struggles, this is NOT easy, but it most certainly is doable. Especially for somebody as strong as YOU.
Royce (your ms writer and brother)
YOU CAN DO THIS TOPSY TURVY MS LIFE
