Positive Ocrevus News: neurologylive.com... - My MSAA Community

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Positive Ocrevus News

Raingrrl profile image
10 Replies

neurologylive.com/view/ocre...

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Raingrrl profile image
Raingrrl
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rjoneslaw profile image
rjoneslaw

thanks

greaterexp profile image
greaterexp

Great news!

carolek572 profile image
carolek572CommunityAmbassador

That's exactly what Ocrevus is supposed to do, Raingrrl and that's what it is doing for me :-D

Raingrrl profile image
Raingrrl in reply to carolek572

You are one of the lucky ones then carolek572 . The initial “marketing” of Ocrevus was about stability not improvement. I’ve not seen any improvement whatsoever even though I’ve been on it over 2 1/2 years. My symptoms seem stable but they were on Tysabri too. My neuro didn’t like something on my last MRI so that was unsettling. The jury is still out on whether or not it’s working for me.

carolek572 profile image
carolek572CommunityAmbassador in reply to Raingrrl

I am lucky in that my neuro has not seen any disease progression on my mri. I have been fairly stable and it was determined that I can go longer between mri's. I am happy that I am on Ocrevus, and until my neuro says to stop, I will remain on Ocrevus! Keep Smiling :-D

IFwczs profile image
IFwczs in reply to Raingrrl

Same here. No improvement but maybe actual progression.

twooldcrows profile image
twooldcrows

good one to read on Ocrevus

twooldcrows profile image
twooldcrows in reply to twooldcrows

forgot to thank you for posting this ...thank you ...love and much happiness..

Tazmanian profile image
Tazmanian

Thank you!

kdali profile image
kdali

Ty!! I needed to see this today. 1.5yrs to go until my NEDA 🎉

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