Post 559 Not every day has to be hard ... - My MSAA Community

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Post 559 Not every day has to be hard 5 Nov 2019

RoyceNewton profile image
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"YOU" and I have Relapsing-Remitting ms (RRms). I am not sure why, nobody is. I am sure that I can not make it go away, nobody can. We have to live with this ailment forever, let me say that again, forever. As Prince says "that is a mighty long time." Look for your miracle cure, we all do at first. Though I do not remember it, I am sure I did as well. I will make your life easy, "YOU" my ms sibling will not find one no matter how hard "YOU" search or how much money "YOU" spend. Come to think of it, or how many trips "YOU" take to that secret clinic in South America or Asia. Get the hint? RRms is ours for life, our very long life, depending on your age forty or fifty years. I have enjoyed mine for over twenty years so far and expect another twenty or thirty. Of course, that is if I do not do anything really dumb, I am inclined to do dumb things. But that is just me. It does not have to be "YOU."

First things first, wipe away the tears it honestly will be alright if "YOU" are smart about this and do some work for a few years. Aim to make this condition boring a non-event. I really like a Dr AAron Boster of the Ohio ms Clinic on YouTube as an ms information source. Look at his Newly Diagnosed (Newbie) videos. Excellent information, but not the whole answer. Go to Everyday Health and look for an article "TOP tips to build and cultivate your resilience for everyday health. Go to Amazon and buy some Depends, protective underwear. Today "YOU" may not need it, but the day "YOU" do need it "YOU" will be glad "YOU" are wearing it, in public. At home who cares if "YOU urinate on yourself. Never has bothered me, but I do have two toilets and can usually make it in time.

RRms, is a little easier than what "YOU" first thought. Dr Aaron Boster YOUTUBE, Resilience on Everyday Health. Believe me, this is very important "YOU" will need to develop that skill. RRms will do a lot of confusing and frustrating things to "YOU" over your long lifetime, it will be useful to prepare yourself for any eventualities now, do not wait until they happen. That is why "YOU" take the Disease-Modifying Therapy (DMT). Nobody likes being a human pin cushion, but they are proven to slow down disease progression. RRms is a progressive disease, it gets worse as time goes by, but if "YOU" can do something to slows it. I highly recommend that "YOU" do. With that in mind, go for the strongest medicine that "YOU" can legally lay your hands on. This is your life, "YOU "like ME are going to get worse, that is the nature of our condition. Whyever start out on an older, less effective medicine. Start on the strongest and if "YOU" have to work your way down.

That is my opinion, remember though I am not your Doctor. Nor do I play one on television. I am just a man who has had RRms for twenty plus years, and lives with a woman who has had it for twenty-three plus years. I will not be hurt if "YOU" take what I say with two grains of salt, and ignore me. Yet more points. Be very careful what "YOU" believe, not everything that "YOU" hear and read are in your best interest. People will not only break your heart, but they will see "YOU" as weak and take advantage of "YOU". Not all, merely some and it only takes one to cause years of mental damage, and we do not want that.

Work hard, like "YOU" never thought "YOU could to make this a long and boring RRms life. Minimize anything that can hurt "YOU". Maximize everything that gives "YOU" a boost, a leg up. There is no need to be weak, and there are tools and skills that can help "YOU". Use them wisely and make your long RRms life a good one. One that family will tell around fireplaces at family events.

Royce (the ms writer)

do you remember Aunty\Uncle... she had RRms, but you could never tell, she was just so... if I ever get any illness I want to be strong like her\him

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RoyceNewton profile image
RoyceNewton
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twooldcrows profile image
twooldcrows

wow another great post ...keep them up as long as you can for the newbies as we all are in the beginning ...i wish i would of been able to have read your posts back then it would of helped me so much....again thank you ...take care and don't have too much fun being and doing some really dumb things that can hurt you....ha did ya look into the MS cruises ...i think this next year it is to Alaska just not sure ...have a great day ...

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

Yes, it is what I wish somebody had of told me long ago. Cruise she has already picked one

twooldcrows profile image
twooldcrows in reply toRoyceNewton

enjoy ....

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