MS can impact every aspect of our "being".
I feel that physical symptoms whether visible or not are something we can learn to gauge over time as we learn about them all. I was in denial about many of them prior to DX, but now through this forum, online information, my regular assessment with my doctor, I have a list and know what to look for.
I also put fatigue under "physical", and it's something that can be measured, how much do you sleep, need to sleep. How much effort can you do before you need to rest.
The emotional impact of MS is hard to measure but I think it can be discussed with doctors. They have now have good frameworks for depression that can be used.
The cognitive impact of MS is something that I struggle with quite a bit. And this is the one that scared me the most when I was first diagnosed last year. First thing I did is ask my husband and close friends to tell me whether they saw a big change in me. But it was hard to assess where I was at. I think it's easier to see up or down changes such as:
- Brain fog: I only realized how much brain fog was impacted me until it started to dissipate thanks to treatment. I can focus, I can actually write more than one sentence at a time, I can stay on the same task more than 20 min at a time.
- Short-term memory: It has started to improve - I can now remember the short 6 digit codes that are sent to your phone when resetting a password, no need to write them down. This is one measure of it. A year back, I would have to write down everything, every single point of information I had to deal with.
- People's name is still a big issue.
- I play games a lot. Did not really see a change there. I wonder about the effectiveness of brain games and tools.
I'd love to hear from others on this forum. How do they evaluate their cognitive abilities? where do they see MS impacting them?